cludster

Have a look at this folks. http://www.researchgate.net/publication/12624298_Percutaneous_retrogasserian_glycerol_rhizolysis_for_treatment_of_chronic_intractable_cluster_headaches_long-term_results This study suggests that glycerol provides long term efficacy and safety for clusters. Has anyone come across this treatment before? A brief search online seems to suggest it is useful for Trigeminal Neuralgia but some sites say for clusters. I am desperate for an effective treatment. I have been chronic for 4 years and my attacks last 14 hours straight. Oxygen doesn't abort for me, only subdues, and shrooms now only bust me for very short periods only (less than a week). Any information from you fine people will be appreciated. Kindly, Claudster in Toronto

Has anyone tried busting with 4-aco-DMT?

Hi Folks, On this board I have often read how exercising can abort an attack and that is because of the increased oxygen associated with vigorous physical activity. This idea about the extra oxygen provided by exercise never sat well with me. Even before I learned about busting and gained more knowledge about clusters, whenever I felt an attack coming on during the day I intuitively felt it would be a good idea to lift weights or do some exercise, and it usually always aborted the attack. So, I recently came across a site that discussed Hemicrania Continua and it mentioned that HC sufferers get relief from what the webmaster called the Valsalva manoeuvre (www.hemicraniacontinua.com). I quote, "The Valsalva manoeuvre is... the action of attempting to exhale against a closed airwave. Many sports professionals routinely if not knowingly perform the Valsalva manoeuvre during physical exertion." In my experience I think that this aspect of exercise - the holding of the breath periodically as part of the act of exerting force when flexing muscles is what terminates my head attacks during vigorous exercise. I am speculating that this triggers something in the hypothalamus and provides the actual relief and not "extra oxygen" otherwise yogic breathing and hyperventilation techniques would provide relief as well no? Has this topic ever come up for discussion before? Is there any real evidence that exercise provides sufficiently higher levels of oxygen equivalent to an O2 tank with non-rebreather mask to abort an attack? And to add to the paradox of this poorly understood dimension of our shared affliction, for me vigorous exercise can often trigger an attack hours later or later that evening during my REM sleep, so again there may be a relation between this valsalva action and hypothalamic activity. Any thoughts on all of this would be much appreciated! cheers, C

Absolutely! For me triggers include many oil based paints (not linseed oil artistic paints), diesel fumes from trucks and buses, fumes from old cars without pollution control, tar and road asphalt, many other strong chemical odors like ink toner. I once used rubbing alcohol on my nose for to clean a small cut and I had an attack within 15 minutes! Pooey! C

I'm kinda new here and I absolutely agree! CHfather is helping people change their lives. Thank you so so much!!

I remember first taking 5-HTP about ten years ago and got a headache within about 30 minutes. Ginkgo Biloba also triggers headaches for me but even worse than 5-HTP. Everyone is slightly different but I thought I'd weigh in. cheers, C

This is an interesting topic that I have often wondered about. So, when one is using shrooms to treat clusters can one still use imitrex when a headache is coming on? I was under the impression that taking imitrex will "unbust" and eliminate the effects of the shrooms. As a result I have avoided imitrex for months but have had to take shroom tea almost every two or three weeks. Any clarification would be appreciated

I have had bad headaches since I was a teenager and was only recently diagnosed with clusters. But I have also had another disabling problem since I was a child: namely the need for 10 to 12 hours of sleep every night. I can't nap. If I do not get that amount of sleep I am constantly groggy and coffee doesn't wake me up but instead makes me tired and hyper, and I am more prone to a cluster later that night. I also go to sleep at 2am or later. If I try to sleep earlier I just sleep longer and do not wake up any earlier. I also do not have much of an appetite even though I work out with weights and am fit and muscular. I do eat a superfood diet so I was thinking that has been suppressing my appetite. Now I am convinced that my sleepiness and lack of appetite are connected to the same hypothalamus malfunction that is part of cluster syndrome. BTW my cluster headaches last for hours - never minutes. I am familiar with recent sleep studies that claim the old belief that people only need 6-8 hrs is false. Some people seem to need more - but is this a hypothalamus malfunction again? Anyhow I am just wondering of any of you have similar issues with sleep and appetite. The clusters and the excessive need for sleep have prevented me from achieving a number of major life goals and its getting worse even though I'm in my 40s. Your thoughts would be appreciated.Â

Thanks everyone for your kind replies Yes! I was quite astounded with my results from such a small amount of very old mushrooms. I am curious about RC seeds. I will do some further research about them - can anyone tell me the basics about them? Are they hallucinogenic, and if so generally pleasant or unpleasant? What I really like about the mushrooms is the very low toxicity levels. I was also wondering whether or not the mushrooms will have a positive effect on my excessive fatigue and need for sleep because during my few weeks of headache free living I was still a sleepyhead. I'm really being hopeful! Â

I am new here. Hello! So after years of cluster pain I was eager to bust it and could only get hold of 1 gram of 12 yr old mushrooms from a friend who had them in a box. I ground it and made a tea and within 30 minutes the level 2 headache I had diminished and I did not have another cluster for two weeks! Then I took an Adderall (and I usually do not take any pharmaceutical pills, even avoid tylenol) as I was told it would help me catch up on the work I had not completed as I was having headaches everyday for a few months. The next day I had a level 3 headache and within a few days they were back full on. Now I want to try the mushrooms again but have to find them. Also, I don't seem to have the same cluster symptoms as others. I do not get a series of 30 minute pain attacks. Mine start at 11:30pm, then I use oxygen and oral imitrex (1/3 pill) and then at 6am I am awake with level 6 pain and need more imitrex. I get nasal congestion but no eye tearing at night, and I do not pace around when I have a headache but prefer to sit up and stay calm until the pain eases. My guess is that my clusters are hypothalamus related as I have been a 10-11 hour per night sleeper since I was a little boy and have always felt fatigued and half alive. I am thinking that clusters come in a variety of different manifestations and may have different etiological pathways for different clusterheads. Any thoughts would be appreciated.