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Everything posted by Racer1_NC
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Cluster Headache Medication & Psychedelic Use Survey 2023
Racer1_NC replied to MichelleC's topic in General Board
Bumping this up just as a reminder.... -
I've messaged a member of the Busters that has direct experience with some of these issues. Hopefully he will be by to connect...
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I haven't followed this story from the beginning so forgive me. When I looked at the first picture, I thought "Abby doo"? Odd pet name for her S/O..... Then I saw the dog...... I'll just leave via the back door.....
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It's good thing to try various techniques. What works for one doesn't work for all. I talk to people that have successful aborts in a short amount of time using methods that would just serve to piss me off while getting hit. It works for them and that's all that counts in my book. I would recommend a complete exhale in every breathing cycle as a starting point. Where someone goes from there will vary with the individual....and maybe from hit to hit.
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Now that's what I call going in for a major overhaul. Pulling for ya!
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Surprisingly most Docs I've encountered recently have been knowledgeable enough to at least have an understanding of how much pain clusters cause. I've even gotten a "Damn. I'm sorry." out of one... If they don't have a clue, they get educated in a hurry.
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I tell them I have Clusters, so my assessment of pain levels will reflect that fact.
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If you do decide to come off Verapamil, TAPER down. Don't go cold turkey.