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Everything posted by Racer1_NC
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2018 Clusterbusters Patient Conference Denver
Racer1_NC replied to eileenbunny's topic in Advocacy, Events and Conferences
Greetings... Personally I've never had altitude trigger an attack but I know that some have. Where I live is about 1000 ft....where I snow ski is an hour and 45 minute drive and the elevation is roughly that of Denver so I'm not worried. If flying is a trigger for you Denver could still be ok as cabin pressure is roughly equivalent to 8000 ft. Denver is roughly a 5400 average. -
I've never indulged myself but after being around many, many cluster people I've heard a range of comments....it doesn't help and it doesn't hurt being far and away the most common. I've also heard a few swear it helps....and a few swear it's a trigger. Damifino. I do know when I was a tobacco user even the thought of lighting up during an attack would make me worse....but then the first thing I wanted after the pain was gone was a smoke.
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I'd contact my supplier and ask it both the connections are controlled by the same valve. I must admit that it looks like that would be the case but one never knows.
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I don't think I'd ever call a CHFather reply unhelpful. I think what you've found is spot on. I've just never laid hands on the parts in question and as such I'm cautious about recommending something I've never had experience with.
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It looks like your tanks have built in regulators and I am unfamiliar with the PTO set up pictured. I will offer one other idea.....it you can find a "T" fitting (see picture below) and some spare tubing you can run the output from 2 tanks into one mask which will just about double your flow rate. Worth a shot if you are looking for a rate higher than 15lpm on the cheap.
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A quick Google search found several demand valves for under $300. DISS fitting regulators can be had for less than $60...and that's new equipment....not ebay which could be even cheaper. I'm not familiar with that fitting. It must be a UK thing.
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Stuff happens....No biggie.
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Social media "groups" are the fastest and easiest way to start your own fiefdom. Everybody wants to rule the world.
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2017 Clusterbusters Conference
Racer1_NC replied to eileenbunny's topic in Advocacy, Events and Conferences
Hate you aren't going to make it this year. -
Yes...that's the plan....Friday around noon if memory serves. Hope anyone that is new to O2 or just wants to talk about usage stops by for a chat.
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If it's like previous years we'll have mostly "E" tanks with a couple "M" tanks for the main room and demo's. Bring your mask and regulator.
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Much better mask to invest in......makes a world of difference. Cluster Kit And for those using welding tanks or the larger med tanks with the 540 fitting.....this gives you any flow rate you desire. It takes a few to figure out what works best but then it's off to the races. Harbor Freight to the rescue.
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Clusters better under control, now I'm getting migraines. Anyone else?
Racer1_NC replied to paulamac's topic in General Board
During the "pre-cluster headache era" oh so many years ago, I would get 2-3 bad migraines a year. I know......not many...and I was thankful. Now.....in cycle or not, I've not had but a couple midlevel migraines since clusters appeared in the late '90s. Why? Damifino. -
Propofol (for tooth surgery) - is this any bad ?
Racer1_NC replied to Archimedes's topic in General Board
They used Propofol on me yesterday for a minor procedure. Not in cycle at the moment and it in no way aggravated my head. Just like taking a nap...nothing more. Of course....your experience could be different. Bill -
I doubt you'd see much of any difference between the two under most circumstances. That being said...I treat o2 like money...I'd rather have too much than not enough.
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Does anyone know if they make Oxygen Concentrators with an LPM > 10?
Racer1_NC replied to bounty's topic in General Board
A concentrator is not able to dispense 100% o2. -
There were over a hundred there last month.....
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540 regulator....Harbor Freight. http://www.harborfreight.com/oxygen-regulator-94846.html
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Hits while sleeping generally occur when one hits REM sleep......
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I'm sorry....DJ.....the man behind the website that sold you the mask.....unless you assembled the parts and pieces yourself. I mentioned assembly errors just because it can happen.....Hell I did it once and I've put countless masks together.
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A true demand valve supplies o2 automatically as the user inhales. Kinda why it's called a demand valve...it supplies gas....on demand. Most also have the button as well. I would assume that a button only valve would be more of a resuscitation unit.....As the the OP's question about difficulty exhaling with a cluster mask...that usually happens with one that's been used a while and needs cleaning. If it's new...it could have a defective valve....be assembled incorrectly or the valve is stuck as a dirty one might be. Hard to say without examination. If it's defective DJ would undoubtedlydo what's needed to solve the problem.
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Won't work for me.....
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Made it back late last night.... Was a great conference and already looking towards next year.
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For once I am flying in. Be there late this afternoon.
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If a phone call would be of help let me know...