Racer1_NC

There are many things I worry about. Starting a car with an O2 tank in the trunk isn't one of them. I carry a smaller D tank in my vehicle. It's in a carrying sling with the regulator attached, tank valve off. I wedge it partially under the drivers seat from the rear so it doesn't move around while driving. It can be ready to use in 30 seconds.

I attribute my PF status to D3. Took time....more than I would have thought but it appears to be working....and has been for a while now. My personal, for what it's worth, recommendation is to have O2 set up and ready all the time.....a safety net. A good mask from clusterheadaches.com and a 25 lpm reg does the trick for many.

Sounds like one of those "I'll only tell ya if you beg, plead and recognize me." type posts. I've seen many through the years. I know that if one of the many people I know with CH were to somehow stumble on to a real cure for this crap we have, they would be shouting it from the treetops. No one that lives with this shit would withhold information that could bring relief to others that suffer. The desire for personal gain causing a closed mind??? Here???? Seriously????? The fact the you even suggest such a thing shows how off target your sales pitch is. This place is a direct result of Bob's quest to help others. Because of that, many others here have spent far more than they'd care to admit trying to educate people on options, advocate for our collective and lending a helping hand when needed. To suggest a profit motive here of all places is beyond asinine....at best. I'd better stop here before I earn a posting vacation for my non-PC, obscenity laced tirade kicks in to high gear.

Short answer...yes. Here is but one that is available. You configure the order from the drop downs. CGA-540 I've ordered from them before and they are good pieces. There are adapters available from a different source but they aren't cheap. Unless you just gotta have a certain regulator it's best to just order one like the one above. Oh....one can also source an inexpensive welding reg as well if money is tight. They can be a tad tricky at first but once you dial it in, it's great.

Good deal! Those masks he gave you while better than nothing, are not the best for our use. Order the Cluster O2 kit if you haven't already. http://www.clusterheadaches.com/ccp8/

Damn it Denny....you mean I have to lug a thumb drive all the way to Dallas??!??! What kinda rookie operation is this?

I'm not a big fan of having a plastic bag full of accelerant just hanging around the house. Each to his own.

Inquiring minds want to know. Fill us in DD. Not being privy to the Facebook chatter it would be great to know who is coming. And I'm all in for Pizza..... As for pics.....Back in the days of OUCH I used to fill up CH.com with convention pics but have never really done so for CB. I always figured people might value privacy at these gatherings. Plus it's nice not snapping pics all the time. That being said I could be talked in to taking a few and posting them up as long as everyone was good with it.

I'm always open to local restaurants. It's been several years since my last visit to Dallas (connecting flights not included) so I'm not up on the best places. Keep the suggestions coming!

I'll be there. Flying in that Tuesday.....

That's not a bad price from what I've seen lately. As to the quality of one over another.....I can't really speak to that with any authority.

Demand valves on med regulators need a DISS fitting. DISS fittings can be found on either type regulator but they are not standard on either type. I've seen welding regs that can support the demand valves as well.

History is always in the hands of those who write about it.

Personally I'd switch doctors if one laughed at me.... Internet based cluster headache communities helped save my life. I have no time for self important gasbags who believe they know it all.

Some of you may know about Lilly's new drug Emgality. It appears that it's now FDA approved and ready to go for migraine. The interesting thing is during an interview this morning on CNBC, Christi Shaw, Lilly Bio-Medicines president spoke not only of the new drug's effectiveness with migraine but of Lilly's desire for FDA approval for cluster headache. Have a listen.....the CH reference starts at approximately 1:55. CNBC Video More about Emgality

It was good to see everyone. I no long take pics at the gatherings as I used to. I'm sure there are those that do and I hope some of them get posted up here.

If they can coil it, a pipeline could be a 3rd option. No doc here but we were faced with the choices when my wife was diagnosed a few years ago.

They like people to register in advance, but I think walk ups are fine.

They will have a couple larger tanks that will accept welding regs. You do not need a script to buy a medical tank regulator. Even though you use welding O2 it pays to keep a medical reg around. They can be had for under 30 bucks online. I hope you'll attend one of my informal O2 sessions where such things are covered in as much detail as possible. Please check your PM's here.

Depending on the location of the aneurysm a pipeline stint could be used. A small cut in the groin area beats brain surgery. Ask your doctor's opinion.

My thoughts on Verapamil from a different thread...

I THINK it was Lincare but I'm not 100% certain. From what I've gathered from others...and my own experience, your local office (of what ever supplier you can name) makes all the difference when negotiating rates. I had a supplier that was good as gold for years but when the management changed I was treated like a liar and a thief. Long story short, they had failed to charge out several tanks and accused me of stealing them. How I was supposedly able to steal these tanks from outside a locked cage was never addressed. Apparently anything but blaming employee incompetence was an acceptable answer. Needless to say I'm no longer with this vendor.

I have known several people that paid out of pocket for tanks. One in particular had a deal for $10 E tanks anywhere in the country. It can be done.

Mum3115, check your messages.

I believe you will find the rough outline in this thread: Here.