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zgreek last won the day on September 2 2018

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About zgreek

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  1. Hey Scott, I lived on Imitrex injections and verapamil for years. Routinely 2 to 4 inj. a day, as high as 6/day. During one particularly bad cycle I used over 100 in 5 weeks (that got the attention of my neuro). This was my only means to get thru work, and keep my sanity. I also knew I could not keep that regiment up. Since finding CB, my Trex use is minimal, maybe 1 to 6 times per cycle(desperate times require desperate measures), my cycles were about 16 weeks, now they are about 12 using O2, D3, and busting.
  2. Hey THMH, I doing well. I have dodged a couple of CH bullets (your advice has been great). My first attempt at farming had a lot to be desired, as with everything CH, it is a learning process.
  3. CHF , you are spot on about Dr Kudrow and family. I was his patient in the early 80's, I don't remember anything about feet, but he did slap an O2 mask on me , to abort the hit in his office. I find it amazing to meet a CHer who managed med school and residency , he had a young neuro working with him who was chronic. When I'm in cycle, tying my shoes is tough.
  4. "When I broached mms with her, about 8 years, ago, she was dead set against it ." I had the same response from my neuro about 10 years ago (been his patient 34 years). 3 years ago I told my Doc what I was doing with busting, he has been extremely supportive.
  5. To CHF, a 6' hose comes with the demand valve. I use the CB mask, without the bag, O2 flows only when you inhale. I also use a welding regulator (this can be opened to well past 40 LPM), I don't know my liters per minute, the regulator reads in PSI, when using the non demand valve set up, I opened the valve enough to fill the bag and keep it filled. With the demand valve I open the regulator enough to take in whatever amount of O2 I desire, again only when I inhale. Here's a pic of how I use the Demand Valve. bb1283, don't know which it is, maybe Racer1_NC will chime in, he's well versed
  6. Sorry for the mistake CHF, I just went online and typed in Dan in the address search/address bar, and got https://www.diversalertnetwork.org/dive-store/?. DAN DIVERS ALERT NETWORK I believe I had to use the sku # 611-3000 in the search, let me know how it goes.
  7. Hey bb1283, I purchased a demand valve last year after the CB Conf., on the recommendation of another clusterhead. It works really well, and saves a lot of O2. https://www.diversalertnetwork.org/dive-store/?id=39 . I paid $205 last year, last week it was $192. Description: DAN Demand Valve w/6-foot hose sku is 611-3000. Good Luck
  8. Thanks Swiftlaw, I too have tried it all, with very little success ( except for the wonder drug imitrex, which I robustly abused ). Your story of CBD oil is fascinating, could it be that simple? I hope so, I bust now and it takes planning and work. Freud, I went on the Lazarus website, just to make sure.. You are referring to the "Flavorless High Potency Tincture"? Thanks guys, the more ammo I carry, the better to fight the beast.
  9. zgreek


    Hey there bbb, the short answer to your question about hangovers from CH.... ABSOLUTELY. You don't mention what pharma your taking, in my experience, if you are trying to "tough it out" with nothing, experiencing a KIP 8-10 CH, my cognitive processes were shot, I felt awful (hungover) and it would last for hours. My neuro's explanation was... chemicals in the brain are released during CH, this is the hangover. For me imitrex injections worked GREAT, abort the CH and no CH hangover. There's a lot written on this site about triptans. I keep them close, but now, with busting, O2, D3, they d
  10. 1. Knowledgeable, compassionate, willing to listen to me. Has the office treat CH with urgency. 2. Been with my neuro. for 32 years, I have been fortunate.
  11. Hey fiftyamp, in response to your question about becoming chronic, with the start of a new cycle preceding one just finished, I feel your anxiety and pain. This is something that happened to me for 5 consecutive years, in the fifth year I 3peated my cycles. I was at a loss, didn't know what to do. I found this community of knowledgeable and caring people. Through much trial and error(and pain) I managed to limit my cycle in that sixth year to just once and go from 16 weeks to 11. The one thing I've learned about CH is that what happens in your past cycles does not always hold true f
  12. Thanks for the fix, I need my fix of CB Forums
  13. I was at my neuro's office on Thursday, the gammacore representative was there to demonstrate the device and answer questions for the doc's, I sat in. I'm not sure the positives for the device outweigh the negatives, but the fact that something new can be added to our arsenal of weapons to fight the beast has to be a good thing. I tried it, feels like small electrical pulse on your neck, while that is going on, the corner of your mouth droops a little. Positives: 1. Portable, looks like a 2 headed electric razor, sounds like it also. 2. No evasive surgical implant. 3. No si
  14. John2000, I have to agree with jon019, If you think the CH is 8, it is a Freaking 8! I used to feel the same as you, and downgrade the pain, and myself. At that time I did not know anyone else with this bitch of a problem, my neuro thought I was nuts (maybe), that I do have a high tolerance for pain(don't think so), simply by the fact that I am still standing after 45 years of this S--t. Over the last 20 plus years of using 100's of Imitrex inj's, and mountains of Verp, I started to forget about the 8's and 9's. Then I had that late warning, that I ignored, now I know I will never forget, an
  15. Thanks everyone for the advice, it finally happened yesterday, I got O2, it was not easy. Chfather, I used the brother-in-law story, and it worked out fine. I started D3 a few days ago and without getting to far ahead of my self, I believe I feel better, I'll know more in a few weeks. I went to my Neuro. 3 weeks ago for the O2, and to inform him that I was busting. He is completely on board, and wants updates, he may come to Chicago next Sept. Thanks again, I hope in my next post I can report PF, or close to it.
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