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      Welcome   01/25/2017

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swiftlaw

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swiftlaw last won the day on July 3 2016

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About swiftlaw

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  1. Wow, I've hadclusters for 26 years.
  2. https://en.wikipedia.org/wiki/Rapastinel Sounds promising but nothing official on its commercial release I could find.
  3. Re visiting this issue. I have been careless with the Triptan injections. Here's why - I cycle once a year now - up to 12 weeks starting in early Spring. So, all last year I did not discontinue my Sumatriptan injection prescriptions. I stockpiled. The cycle started in late April this year (2017) in June I had a very rare chance to take my 14-year-old to London and Paris on a ten-day trip. I loaded up my suitcase with the injections and hit at least every day - sometimes 2 times a day and also used the Imitrex pill as a prophylactic - each for 10 days straight. The first rebound, when it came, was so horrible I could not stop myself from using another injection to fight back the rebound - then when the CH broke through the Imitrex barrier - it was like white light - I was screaming out loud - a new level of pain and I know it scared my son a lot. Stupid ? OK, but I did not want to have to bail on my boy while in the Eiffel Tower or interfere with his first trip to Paris. And I had not been thorough on these boards on the side-effects or actually read and digested Denny's post. Now back 3+ weeks and the rebounds seemed to dissipate after I took them on cold turkey with no meds for 2 days a break and then 2 more days. Now 2+ weeks later I have developed a nighttime hit every night at 2:30AM at KIP 4-5. These I can put down with ice on the carotid and maybe some caffeine, however I have developed a permanent all day shadow and a sore neck now for 10 days. I have not been taking the Imitrex but I feel like the medicine has me in a long-term downward spiral. This continuation of the cycle is terrifying me - it will stop right ?
  4. Keeping tabs on the beast. July 24 is three months in cycle. Heavy triptans use for 10 days. Cycle seems to be extended.

  5. Big Hitter. Welcome; but sorry to meet you. prednesone is great for me - I use a dose pack once in a long (10 week) cycle - just to get a few good days in a row. The other side of the prednisone pack is like - "Welcome back to Hell !" Good luck
  6. Guys: I expound a theory that the ultimate treatment for the headache cycle lies within the pain itself. I have found the Triptans do cause me re-bounds, but only when in high cycle - also found that there is a point in high cycle when I have to go down in my office at home and let 'er rip. No meds - cold turkey - ice on the head - bang and scream and let the attack run its course. It seems almost like there is a number of attacks in a cycle that you must endure in the purest form of the pain for the Beast to begin to release its bloody talons. However those of you who have let me whine here for the last decade or more know that I keep the injections handy - and I take a healthy dose of Verap. every day all year - I have the big big O2 tank in the hall all year - I have tried a visit to the Portuguese wizard, busting with shrooms, Chinese doctor and herbs - nothing but licorice water for a week, water water water, exercise rapidly, ice on the carotid artery, steroid dose pak, Cluster vitamin regimen, Opioids, benzos, advil, melatonin, a Shaman in the Navajo tradition, Hot water pads, every other god dam thing. In the end; every single cluster cycle required absolute submission to the Beast in varying amounts before I can see the light.
  7. I tried the Botox 3 years ago - I agree with Pixie that it hurt a lot - I felt bruised for a week or more. The result for me was strange - it was as if it put a doughnut in the pain - there was a hole in the middle of the pain. No going back there at this time - heading into annual Spring cluster God Help Me.
  8. Pain free right now - expect the Spring cycle - just thinking of you all and wanted to wish you all relief and peace from the Beast.  See you next cycle

  9. Anybody - a dose of antihistamines over the counter - any one ?
  10. So - this is new information for me. It makes sense too. Pretty limited foo choices. I wonder if this will work mid cluster ?
  11. CH Father - Thanks - we have known each other on here for years. primarily I just want somebody who understands, Query: I have a soreness in my head - sensitive to touch after a very bad attack - have you heard of this ?
  12. I'm baack. Again. 4 weeks in and definitely the cycle is peaking. Screamers, headbanging - "Oh My God Help Me" screamers. My head hurts when I touch it. Like someone scooped out a piece of my skull - just sore all day. Headache every day at 5:00 pm and then again at 2:00 am. I'm a mess - I hate it that no one knows how sick I am. Just venting.
  13. This new article doesn't offer any info on Clusters, but seems to work on other vascular headaches. Plus the device looks so cool !. http://www.counselheal.com/articles/3820/20130211/nerve-stimulation-device-prevent-migraine-attacks-study.htm
  14. Keep us posted - whats been happening ?
  15. The frozen spoons is a fantastic idea . Out of cycle right now but will remember that. thanks