Luis

Well guys, I am on emgality. I had a horrible attack yesterday morning and a second one in the afternoon which prompted my family to make me go to my neurologist again. I’ll keep you guys posted. No headache today.

I am not sure if insurance covers oxygen. I have to find out. I’m just in a pain fog most of the day. I hope my cycle ends soon so I can actually prepare for the next.

No, not yet. I work full time and haven’t had the time to even start searching.

@Brain on fire same. I started the d3 regimen, continuing to take verapamil and rozatriptan as an abortive. I got two clusters today at work. I’m just tired of this pain.

I wish you as many pain free days as possible!!!

Dude, if you really want to help everybody here just tell us. If you do want to help everybody in this site then say something.

Thank you all! I will do more research into D3 regimen and will try to get oxygen.

Thank you! Ok, sure any help is appreciated. I do not have oxygen or have any idea where to get. I have been on verapamil for about a week now. Before that I was on zonegran and it was working well..until it didn’t. I have not tried d3 regimen but have read things somewhere. If there’s any information about it that yall can provide that would be awesome. That’s the only preventative medication I’ve tried. I have tried melatonin and energy drinks and it only seemed to make my headaches worse. I have episodic headaches. They come roughly at the end of the year. They last for about a month with my first week being an intro and my second week being the worst week of my life. During the second week I get clusters maybe twice or three times a day but they last sometimes the entire day. It just depends. My clusters are at night, and early morning when I wake up. I’ve had clusters Around noon which for this cycle that’s the most common. I see a neurologist here in Houston. Again any help and support will be appreciated.

Hello my name is Luis. I just got diagnosed with cluster headaches one week ago but have been suffering from clusters since I was about 13 or so. I remember the first one starting when I was like 8, maybe. Anyway, I am kinda depressed due to my headaches. My cycle started nov. 16 and is still going. The second week was horrible. I went to the hospital 3 times in this cycle. One because I had a panic attack due to too much steroids and worrying about my headaches. I still feel really crappy cause I just started a new job and have been absent twice now. I also crashed my car due to the feeling of shadows, luckily my car can be repaired. I just wanted to reach out since I am feeling very alone and depressed. Sometimes I think that I don’t want to deal with this pain every year. I am on verapamil 120 and maxalt. it is semi working but may be thinking about another injectable preventative. I just don’t want to be in pain.