Lymestoney Posted February 29 Share Posted February 29 The cluster mask from the store looks great but I’m in the UK, and although it’s only 30 dollars, the postage from US is about another 45 dollars! Does anyone know anyone selling them in the UK? Quote Link to comment Share on other sites More sharing options...
Dallas Denny Posted February 29 Share Posted February 29 Welcome to the community @Lymestoney! To my knowledge it's only available thru the clusterheadache dot com store I'm afraid! If you happen to have plans to attend our 2nd annual clusterbusters European patient conference in Glasgow in May you might be able to purchase one there!! I know that we did send a few to last years inaugural event. After having used one for 15 years I can tell you if I were to lose mine I would gladly pay $75 to replace it! They are just that good!! Dallas Denny 4 Quote Link to comment Share on other sites More sharing options...
Lymestoney Posted February 29 Author Share Posted February 29 No worries. I didn’t realise there was a conference coming up. It’s all a bit new to me. I’ve only just found this forum. I’ll check out the details. I think I might try to get my doctor to prescribe a demand valve, or buy one if I have to. Thanks for your reply Quote Link to comment Share on other sites More sharing options...
Amholla3 Posted March 1 Share Posted March 1 Similar to Dallas Denny, I too would pay to replace mine in a heartbeat! I am about to order a second for a portable tank. I've only used it once so far, but let me tell you.... It is SO much better than a standard non-rebreather mask!!! I was hesitant at first too because I just bought an expensive O2 tank, regulators, etc and didn't want another cost but it is so worth it in my opinion. 1 Quote Link to comment Share on other sites More sharing options...
Lymestoney Posted March 1 Author Share Posted March 1 I’m very impressed, but hope to find something similar in the UK. My demand valve arrived today and is working well. I got the oxygen free on prescription but opted to buy a demand valve myself. I’m just delighted to have been taken seriously by my doctor at last 1 Quote Link to comment Share on other sites More sharing options...
Amholla3 Posted March 6 Share Posted March 6 On 3/1/2024 at 2:05 PM, Lymestoney said: I’m very impressed, but hope to find something similar in the UK. My demand valve arrived today and is working well. I got the oxygen free on prescription but opted to buy a demand valve myself. I’m just delighted to have been taken seriously by my doctor at last Glad to hear it!! I hope the demand valve wasn't too expensive. 1 Quote Link to comment Share on other sites More sharing options...
Lymestoney Posted March 6 Author Share Posted March 6 It was £200 but it’s worth it. My GP has actually now prescribed one for me for free, in addition, so I’ll have a spare which will be useful 2 Quote Link to comment Share on other sites More sharing options...
Racer1_NC Posted March 6 Share Posted March 6 I feel certain there will be a few mask kits at the UK conference. Quote Link to comment Share on other sites More sharing options...
Lymestoney Posted March 6 Author Share Posted March 6 I guess so. I can’t make it to the conference but maybe someone could buy a few to sell on. Now using an ultra flow demand valve and it’s great 2 Quote Link to comment Share on other sites More sharing options...
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