Steroid taper and beast hits more

[Debbieclusters1996]

Cluster sufferer since 1996. Last cluster cycle was February 2023 until this current cycle. I have been in this cycle since beginning of august. On second steroid taper 60 for 3 days then 50 for 3 days and so on till done with taper. Feel like the beast is coming in full force and I am on day 2. Second month of emgality been on and still on verapamil. Oxygen tanks all over the house and my classroom. Truvaga should be here by Friday. Also had steroid and nerve block injection on head September 6th. 
 

Has anyone had this happen? Praying it is kicking them out and will get better but losing hope quickly. 

[xBoss]

1 hour ago, Debbieclusters1996 said:

Cluster sufferer since 1996. Last cluster cycle was February 2023 until this current cycle. I have been in this cycle since beginning of august. On second steroid taper 60 for 3 days then 50 for 3 days and so on till done with taper. Feel like the beast is coming in full force and I am on day 2. Second month of emgality been on and still on verapamil. Oxygen tanks all over the house and my classroom. Truvaga should be here by Friday. Also had steroid and nerve block injection on head September 6th. 
 

Has anyone had this happen? Praying it is kicking them out and will get better but losing hope quickly. 

Since 98 here. One thing clusters are well known for is changing and stuff that used to work does not work anymore. 

[Bejeeber]

I won' t be receiving any awards for sharp memory or perfect recall, but I do not recall any other reports of the initial high dose phase of a prednisone burst causing CH to get worse (you're on day 2 at 60, right?). Reports of CH worsening following the taper down, yes, but not at peak dose.

I would hope you still may encounter some of the expected relief any minute.