FunGuy Posted March 27, 2010 Share Posted March 27, 2010 I thank Cluster for finding and posting this link and Bonkers for pointing it out, but this paper is so important I feel it deserves its own thread. From Cephalalgia, March 26, 2010 The non-hallucinogen 2-bromo-lysergic acid diethylamide as preventative treatment for cluster headache: An open, non-randomized case series. Matthias Karst, John H Halpern, Michael Bernateck and Torsten Passie http://cep.sagepub.com/cgi/rapidpdf/0333102410363490v1 Also, here is the link to the BOL poster presented by Dr. Halpern, which is also on our site: http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1260934443 Well done gentlemen. Well done. This is certainly the beginning of something wonderful. FG Quote Link to comment Share on other sites More sharing options...
Brew Posted March 27, 2010 Share Posted March 27, 2010 Please, if there's a God in heaven, let it become reality for every one of us. Quote Link to comment Share on other sites More sharing options...
Guest Posted December 15, 2010 Share Posted December 15, 2010 bump Man there are some really good threads back here. bb Quote Link to comment Share on other sites More sharing options...
Bonkers Posted December 15, 2010 Share Posted December 15, 2010 I've come across several articles lately (e.g. the above mentioned study from Cephalalgia) that are now inaccessible and require either a subscription to a journal or a one-time fee of $30 or so to read. Is there some way that this type of article can be copy-pasted to this website so we can read them without charge? Quote Link to comment Share on other sites More sharing options...
cluster Posted December 15, 2010 Share Posted December 15, 2010 http://www.clusterheadaches.com/cb/cgi-bin/yabb2/YaBB.pl?num=1269814078 Quote Link to comment Share on other sites More sharing options...
Bonkers Posted December 15, 2010 Share Posted December 15, 2010 Thanks cluster and bobb. Ron Quote Link to comment Share on other sites More sharing options...
TakinitEZ Posted December 18, 2010 Share Posted December 18, 2010 I don't see a duplicate attachment for this article" The Lancet: Treatment of medically intractable cluster headache by occipital nerve stimulation: long-term follow-up of eight patients file:///C:/Users/Bob/Documents/Cluster%20Info-%20Misc/Occipital%20Nerve%20Stimul... Looks like the link points to your c: drive AllyOop. Could you post? Tx. -T Quote Link to comment Share on other sites More sharing options...
alleyoop Posted December 18, 2010 Share Posted December 18, 2010 The Lancet article was too big to upload to this site??? > PM me with your email addy T, and I will send it to you. Bob Quote Link to comment Share on other sites More sharing options...
FunGuy Posted December 18, 2010 Author Share Posted December 18, 2010 Bob: If you want to send it to me also, I'll upload. Administration has its privileges. :-) FG Quote Link to comment Share on other sites More sharing options...
alleyoop Posted December 18, 2010 Share Posted December 18, 2010 Done. Quote Link to comment Share on other sites More sharing options...
FunGuy Posted December 19, 2010 Author Share Posted December 19, 2010 2 links attached: Nerve stimulation may ease chronic cluster headaches Occipital nerve stimulation long term follow up Thanks to BobB for sending these. FG Nerve_Stimulation_May_Ease_Chronic_Cluster_Headaches.htm Treatment_of_medically_intractable_cluster_headache_by_occipital_nerve_stimulation_long-term_follow-up_of_eight_patients.htm Quote Link to comment Share on other sites More sharing options...
CHfather Posted December 20, 2010 Share Posted December 20, 2010 Thanks, BobB and FG. I had been discouraged reading some of the ONS results posted here at the site, but maybe there's long-term hope with this procedure. I listened to Dr. Goadsby talking about this procedure a while back (at http://www.reachmd.com/xmsegment.aspx?sid=4280). I seem to remember that it was there, or somewhere else, that he was saying that it's not even necessary to place the stimulation very close to the nerve: the mechanism of relief is somewhat mysterious. I'd rather have BOL or its ilk available, but it seems to me that any promising treatment gives hope. Jerry Quote Link to comment Share on other sites More sharing options...
alleyoop Posted December 20, 2010 Share Posted December 20, 2010 "Two patients noticed a substantial improvement (90% and 95%) in their attacks; three patients noticed a moderate improvement (40%, 60%, and 20–80%) and one reported mild improvement (25%). Improvements occurred in both frequency and severity of attacks." I don't know. Call me a wet rag, but these figures don't (and didn't) make me optimistic about long term results. Bobb Quote Link to comment Share on other sites More sharing options...
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