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ClusterBusters

Brew

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About Brew

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  1. At this year's auction, I will be donating the final piece of art by Pat Mitchell from her now finite portfolio. Simply entitled "Mushroom," it is a mosaic piece designed for the garden. It stands about two-and-a-half feet tall and is grouted with epoxy grout, designed to remain outdoors all year long.
  2. One of our own has fallen on hard times. Jeannie is one of the sweetest, most caring clusterheads I know, and she needs our help. Please consider lending a hand so her family's life can be a little less devastating this time of the year: https://www.gofundme.com/34mj29k Thank you. God bless us, everyone.
  3. Brew

    The beast and ED meds

    They (the ED drugs) are vasodilators. Kind of the opposite of the direction we want to go when we're having an attack.
  4. 16 months pain-free does not a cure make. I went three years pain-free. But I'm not cured. Sure was a nice three years.
  5. Brew

    Can anyone tell me...

    ...if there's a private message area in this new forum? If there is, I can't find it. Thanks.
  6. Brew

    Question on Ouch

    Power-hungry buttmunch.
  7. How did CB do raising money at the raffle?
  8. Once I kicked my attacks to the curb in May of 2012 with mega-doses of D3, I have maintained my 25(OH)D levels since by taking 10,000 iu / day. My serum 25(OH)D level stays between 70-80 ng/mL. No attacks or shadows since.
  9. Brew

    Jacob

    I'm so sorry for you and your family, Bob. Please accept our most heartfelt condolences.
  10. Brew

    Call to Action

    Done.
  11. Brew

    Do you have another incurable condition

    Three that I can think of: That last one, well, I'm not sure if it's an incurable disease or if it just means that I have to be careful which, if any, biologic medications I can take in the future. I've been told that use of biologics like Humira, Remicade, etc. can increase the chances that I'll develop lupus. The first two - treatable but not "curable."
  12. Brew

    It's the smell...

    Can't say one way or the other. I've always taken them dried and powdered inside a gelatin capsule or three.
  13. Brew

    The Merry Christmas Post

    Happy Crimbustime, errabody!
  14. Brew

    doc wont help.

    Jeebs, you RAWK too!
  15. Brew

    doc wont help.

    Here's a link to the colleague letter: http://www.ouch-us.org/downloads/ch_syndrome.pdf
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