andrew zappara Posted January 2 Share Posted January 2 Hi to everyone here im new to this site but i have suffered from chronic cluster headaches for the past 6 years.There has not been 1 day in the last 6 years where i have had a single day without having any where between 3 to 8 severe attacks per day.Ive had everything that medical science has had to offer,sumatriptan ,verapamill,botox injections imgality,nerve blockers,you name it and nothing work as most of those treatments were only proven to help people that had episonic clusters but not affective for chronic cluster headaches. It got to a point where i was that depressed that thinking about suicide was my only option to end my suffering and even went as far as paying $14000 dollars to buy a funeral plan before ending my life.Then after watching several videos of people claiming that taking magic mushrooms or lsd gave far better results in very small micro dosages of 0.4 grams every 3 to 4 days had far better results than any medications with no nasty side affects what so ever i started taking shrooms and to my suprise i was getting alot less attacks per day and not as severe.Then i started looking into something that no one really ever talks about and that is ECS short for Endocannabinoid system wich is something that we are all born with our bodies naturally produce endocannabinods however as we are all different so some of us dont produce enough of this compound in our body and funnilly enough i found that people that suffer from chronic migraine and cluster headaches were the ones that were lacking this enzyme.The reason we have cluster attacks as far as i know is due to vessels in our brain become inflammed and cause the vessels in our head to swell up and put pressure on the trigeminal nerve just above our ear and intern sends severe pain signals to the nerves behind your eye your nose your cheek bone and your jaw line and in my case even my neck.So i thought well if this theory is correct then how can i increase endcannabanoids in my system that my body could not do naturally.And thats where my life changed completely.I got onto a company who was liscenced to sell very pure high grade CBD oil which had no thc in it but had the cannabanoids CBD,CBG and CBN also particularly CBG which has a very powerfull inflammitory property bound to it but also helps greatly with dealing with chronic pain, so i thought well if its such a powerfull inflammitory then if it reduces the swelling in blood vessels in my head then it will not put pressure on the trigeminal nerve.Low and behold from the first day i took a very small dosage of 0.2mlg under my tongue twice a day it was instant.For the first time in 6 years i went a full day without a cluster attack it was almost to good to be true ,but 4 weeks have past since ive been taking this particular CBD oil and my clusters have dissapeared completely.Doctors say they just dont have a cure or know why people get cluster headaches well all i can say is they need to start looking into the endo cannabanoid .I urge any one here suffering from this debilitating illness to try it i mean what have you got to loose buy giving it a try .After having chronic clusters for 6 years without have not 1 day without at least 3 to 8 attacks per day to just stop completely from taking this CBD oil cannot be just a coincidence.I feel your pain and only want to give you another possible option that is drug free with absolutely no side affects that comes with traditional medication,and if you would like to talk to me personally about how to go about it im happy to leave a number if you would like to talk to me personally. 2 Quote Link to comment Share on other sites More sharing options...
Cloudy Posted January 2 Share Posted January 2 can you please be specific as to the brand of oil and where you bought it Quote Link to comment Share on other sites More sharing options...
CHfather Posted January 2 Share Posted January 2 I very much appreciate this report, and as you say, it probably couldn't hurt for people to give it a try. It's wonderful that you have experienced this relief! I will say that you are far from the first person who has reported here on trying CBD, and some have indeed reported good results -- though not a "cure," which is not a word we use here lightly, and surely not until at least a couple of years have gone by. If you (or anyone else reading here) want to see past reports related to CBD, just put CBD in the search bar located at the top of each page (here's an example: https://clusterbusters.org/forums/topic/5581-cbd-i-know-i-know-but-bear-with-me/#comment-56361). Of course, it is possible that through your research you might have hit on just the right oil and/or just the right dosage and/or who-knows-what other "just right" thing that gets it all aligned. If you don't mind, I have a few questions/requests: 16 hours ago, andrew zappara said: several videos of people claiming that taking magic mushrooms or lsd gave far better results in very small micro dosages of 0.4 grams every 3 to 4 days had far better results than any medications with no nasty side affects what so ever i started taking shrooms and to my suprise i was getting alot less attacks per day and not as severe Two questions here: (1) Did you continue dosing with shrooms? (2) Would you point me to one of those videos you mention, making that specific recommendation ("small micro dosages of 0.4 grams every 3 to 4 days")? As the first site specifically created to encourage/help people to use psychedelic substances to treat CH, we try to keep track of what people are saying out there about how to do it, and I have not seen videos making this recommendation (which is different from what we have learned here about the best way of treating CH with psychedelics). 17 hours ago, andrew zappara said: i started looking into something . . . endocannabinods . . . some of us dont produce enough of this compound in our body and funnily enough i found that people that suffer from chronic migraine and cluster headaches were the ones that were lacking this enzyme. As people here know, I like to dig into the research, so I have the same request: Would you be kind enough to point me to one of the studies you found showing this deficiency in people with CH? I have tried googling, and I have found research about hormones lacked by people with CH (one study, for example, says "CH often show accompanying neuro-endocrinological changes such as a blunted circadian rhythmicity of hypothalamically regulated hormones including testosterone, cortisol, growth hormone, thyroid-stimulating hormone, prolactin, melatonin, follicle-stimulating hormone, and luteinizing hormone..."), but I haven't located anything about endocannabinoids and CH. 1 Quote Link to comment Share on other sites More sharing options...
andrew zappara Posted January 3 Author Share Posted January 3 As far the specific dosage for shrooms i didnt get this recomended dosage from the internet i was fortunate enough to get a hold of a guy that sold shrooms called GOLDEN TOPS and i told him i didnt want these for recreational use i wanted them for clusters and it just so happened that he had another customer he was dealing with on a regular basis that also suffered suffered from ch . He told me that person was taking that specific dosage every 4 days and said on the first dosage you take you start with a higher dosage of between 1 and 1.5 grams to start with then start micro dosing 0.4 grams every 4 days after that so you dont feel the affect and can still function without the sphycadellic affect from the shrooms.What is important to mention when using shrooms and this is also stated in one of Bob Wolds videos that you must stop taking all of the medications you are currently on as he states that the medications interfere with how the mushrooms work in your brains receptors.As for your first question i took shrooms over a period of 5 months and found it more affective than any other medication i had tried.The problem with most medications we take all seem to be abortive treatments once the ch attack has occured but very little on preventative medicines to stop the attacks from even occuring in the first place ,thats where the shrooms were the better alternative.Once i went onto CBD oil called Humacology wich is a broad spectrum oil that contains 0thc,270mgCBD,60mgCBG,10mgCBN with a very low dosage of 0.2mg under the tongue twice a day for iits inflammitory properties ,chronic pain releif my clusters have completly disapeared so i am completely free of all other medications,sumatriptan,verapamil,imgality,and also no longer take the mushrooms. Quote Link to comment Share on other sites More sharing options...
CHfather Posted January 3 Share Posted January 3 If the CBD ever lets you down and you start having attacks again, please check back in here. Some of what you say above is a little bit inaccurate, and people here will be able to give you some guidance about highly effective preventives and abortives that you can use while dosing with psychedelics (or on their own). But for now, may your CH-free life continue forever!! 1 Quote Link to comment Share on other sites More sharing options...
andrew zappara Posted January 3 Author Share Posted January 3 yea but you have to remember most preventative treatments have only been proven to be affective with people that have episodic clusters but have next to no relief for chronic clusters just like imgality injections once a month have worked very well for episodic clusters but unfortunately for me the studies did not perfom so well for chronic sufferers. Quote Link to comment Share on other sites More sharing options...
CHfather Posted January 3 Share Posted January 3 the anti-inflammatory vitamin D3 regimen has worked very well for people with chronic and episodic CH (https://clusterbusters.org/forums/topic/1308-d3-regimen/), and "busting" (using psychedelics), when done properly (not with microdoses and generally five days apart, not three or four), has also benefitted many to prevent cycles/attacks and provide an end to episodic cycles or remission from chronic attacks. you don't mention oxygen in your posts, but it is a very effective abortive for chronic and episodic folks, and so is DMT. None of these things (D3, oxygen, or DMT) blocks busting, and there are other CH meds that don't block busting. again -- may you never need any of this information, and may your discovery benefit many others. 1 Quote Link to comment Share on other sites More sharing options...
andrew zappara Posted January 4 Author Share Posted January 4 yeah i didnt mention oxygen theropy i just figured every one already new about it i use med oxygen alot but because im chronic and was having up to 8 attacks per day i was goin through the bottles like there was no tomorrow and its not covered by my insurance here so it was costing me a fortune.I ended up buying a large oxygen concentrator machine so i never have to worry about it running out or having to get the bottles replaced. 1 Quote Link to comment Share on other sites More sharing options...
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