DesertShark Posted February 18 Share Posted February 18 I live in rural Southeast Utah and am having difficulty finding an oxygen provider that will provide oxygen/regulator with the proper flow rate. I am willing to travel anywhere in Utah/Western Colorado to obtain the oxygen on my own, and am also willing to self-pay. For those in my region, who do you work with? Quote Link to comment Share on other sites More sharing options...
Racer1_NC Posted February 18 Share Posted February 18 All you need is a provider for the tanks, you can buy the regulator you need off Amazon for under 30 bucks...... If you are looking for an O2 supplier to rent you a high flow reg, you will look a long time. Most of them don't even know they exist. 2 Quote Link to comment Share on other sites More sharing options...
CHfather Posted February 18 Share Posted February 18 4 hours ago, DesertShark said: I am willing to travel anywhere in Utah/Western Colorado to obtain the oxygen on my own Do you have a prescription for medical O2? Quote Link to comment Share on other sites More sharing options...
DesertShark Posted February 19 Author Share Posted February 19 Yes, I do have a Rx. The first oxygen provider from Blanding, Utah, brought an air concentrator to the house with a canula and said they couldn't provide up to 10 liters flow/minute. They kept treating me like a patient with lung issues. What a disappointing experience. I spoke to others on the phone who said they were unable to go up to the 10 liters per minute I needed, and when they did have the supplies they reserved them for hospice patients (LinCare and Alpine Air in Price, Utah). But, I just got off the phone with MountainAire Medical Supply in Grand Junction, Colorado, and I think they're going to set me up. When I called, the lady on the phone knew immediately what I needed; how refreshing! They have the regulator to rent but also suggested buying my own to save money. Now I'm waiting for my neurologist to send them the Rx. Fingers crossed! 2 Quote Link to comment Share on other sites More sharing options...
CHfather Posted February 19 Share Posted February 19 Fingers and toes!! Keep us informed, please. Quote Link to comment Share on other sites More sharing options...
DesertShark Posted February 22 Author Share Posted February 22 MountainAire Medical Supply in Grand Junction, Colorado, came through for me. Unfortunately the mask provided was a joke, so I've ordered the mask system that is available on this site. First night I needed to use oxygen and even with the funky mask, it worked wonderfully to abort the headache! Yay! After seeing the tanks, regulator and mask, I have no idea why the other places were giving me the runaround. One place literally said the regulators were hard to come by so they were saving them for hospice patients. Doesn't make sense. It might be because I wanted to self-pay because we're out of network for my insurance. We've found with other medical procedures that entities get a lot more $$ from insurance then if a patient self-pays. 3 Quote Link to comment Share on other sites More sharing options...
FunTimes Posted February 24 Share Posted February 24 Here are links for regulators I have gotten, You can find them for a better price on amazon or used on ebay sometimes also Larger M60 and M tanks use the CGA540 Oxygen Standard Body Click Regulator CGA 540 From WT Farley Smaller E tanks use https://www.wtfarley.com/Oxygen-Standard-Body-Click-Regulator 1 Quote Link to comment Share on other sites More sharing options...
DesertShark Posted February 25 Author Share Posted February 25 Thanks for the info! Quote Link to comment Share on other sites More sharing options...
Racer1_NC Posted February 25 Share Posted February 25 Couple more.... https://www.amazon.com/Ever-Ready-First-Aid-Regulator/dp/B08J174TP5/ref=sr_1_2?dchild=1&keywords=0-25%2BLPM%2BCGA870&qid=1607641221&s=hpc&sr=1-2&th=1 https://www.amazon.com/ResOne-Regulator-CGA-540-MR540-25B-Adjustable/dp/B0CQDBC2HR/ref=sr_1_4?crid=2QYEUHX23GXC1&dib=eyJ2IjoiMSJ9.oKBh0KlatGfqNTbgJbxBnQh9QTrxp80VJAEr-xCQNpMmfWmLaoXZFg370X98qOV96c-kmFJxZ0zjqRj7kvmnr2TZxaEKh8IaWN55CNOwtBqEfJT1MqVJBVHKG8dowLjhmwg0llt6zkFkDOQetC8CLIEnQU7inaT4tMuL_vQkRSF3MRigni7ygyh8bV6zdC2bKJ8atwCe3QFEmCLc9KO1Bl_PmLycnBqgZ1nZ42Kh0IkoYSgvXxw1HqXw-mDZFxp_olA9f51-8f9tlenyediN4e1KsKsL_dgsSTAXxQRR3ka-zug2gnjyZ0RrpUTWqoccRWNp6_5xCZUvvA3bnFt1fzN_FQ9XaQBsFjA1863R45k.qjHFLtlv4JkM0LLF-LKWLE-FSWku6Sfk6hdiJsdZ79c&dib_tag=se&keywords=25%2BLPM%2BEMS%2BOxygen%2BRegulator%2BCGA-540&qid=1739312002&s=hpc&sprefix=25%2Blpm%2Bems%2Boxygen%2Bregulator%2Bcga-540%2Chpc%2C89&sr=1-4&th=1 1 Quote Link to comment Share on other sites More sharing options...
CHfather Posted February 25 Share Posted February 25 (edited) Definitely much better prices on Amazon. I would not advise getting a regulator that only goes up to 15lpm. Many people need more. In my opinion, a welding reg (also CGA-540) is the best way to go, because it gives you a flow rate that can be pretty much as high as you need it to be. It's very slightly tricky to use the first time because the settings aren't "clickable" like they are on the others that have been mentioned, but everyone gets the hang of that very quickly. One example of many at Amazon: Amazon.com: KLLsmDesign Heavy Duty Oxygen Regulator, Large Tank Gauge Cutting Torch Regulator, Outlet 0-200PSI Inlet 0-4000PSI CGA 540 : Health & Household Welding reg is only good for the big tanks; the clickable ones are what there is for the smaller tanks. Edited February 25 by CHfather Quote Link to comment Share on other sites More sharing options...
DesertShark Posted March 6 Author Share Posted March 6 I found a provider in Blanding, Utah, and they even accept my insurance. I thought they were the ones that brought the concentrator to my house, but that was Alpine. The oxygen provider I'm dealing with now is Peterson Medical Supply, and I've spoken with Tracy Nielsen, who is very helpful. They will deliver oxygen to my home in Moab, which about 70 miles away. I've found in my short experience that oxygen does stop the cluster headaches, but only for a short period. For instance, last night I had an attack around 11:00 pm, used oxygen, went back to sleep, and another attack around 2:00 am. Sumitriptan works better for me to completely knock it out; however I can't use it as often as needed due to potential of Medication Overuse Headaches. So . . . oxygen is a really great complement to medication for me. Quote Link to comment Share on other sites More sharing options...
CHfather Posted March 8 Share Posted March 8 Some people find that staying on the O2 for five minutes or more after the attack has been stopped can hold off future attacks. Others don't find that it helps. Worth trying if you aren't already. Just to confirm that you know about this: Getting partial doses from sumatriptan injectors (Imitrex, Imigran, etc.) - ClusterBuster Files - ClusterBusters And this: D3 regimen - ClusterBuster Files - ClusterBusters Quote Link to comment Share on other sites More sharing options...
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