Clusterbusters Website-> app?

[Nikkk]

Ok so this is a few suggestions ideas, and i'm not sure exactly where this post belong so mods feel free to move it anywhere you feel fits.

I am a product designer and I work also as graphic UX designer sometimes, and while using the website here I started to get a few ideas, so here it comes:

- That one is an easy one: Can we implement a dark mode toggle for the website? I feel like all of us clusterheads would appreciate it greatly:)

-The other idea is a tad more complex but i'm sure that there are other members that could team up with me to achieve this: a clusterbusters app! 

It could include different parts but basically would be a comprehensive toolbox:

-one repository of treatments and resources available at hand, it could be parametric so you can basically tick your journey in treatments and whenever they match other users treatments create a node, refer to forum chats on that topic etc.

-a logging app, like cluster uck, where you log and keep track of your cycles, attacks and medication protocols, the logs and time stamps can be automatically link to location in order to log atmospheric pressure, pollution, etc

-the forum, an inbox, etc

Its just an in between attacks idea, but please let me know if you think this is potentially interesting, I am so thankful for this community, I would love to give back to it with whatever skills and time I have.

Happy holidays everyone 

<3

[Craigo]

As I said in my other post, I’m pleased to have you here - whilst sorry you are in a bout, you have a good vibe that I resonate with.

Yes! I have thought more than once about most of your suggestions and I love it - whether there is an out of the box solution or something custom, there is an old world charm about the forums here that I really do appreciate but understand if it was a little more in line with the times like integrated into an app it might be able to add more value, whether support, social connections, helping more people, fellowship etc. 

Someone from the awesome admin team might be able to give an update on any behind the scenes improvements that are in the pipeline. I’m sure I read somewhere there were some website things in the works.

Good on you for offering your skills man, that’s what I just love about this community, people are too good. 

[Dallas Denny]

@Nikkk I'll echo Craigs kudos for offering your time and skills!!

I've lived long enough to become the elder statesman of the forum having been here since our go live date 16 years ago and counting!!  That was Oct of 2009 and at that time the only online support sites were OUCH, clusterheadaches dot com which i think DJ launched in 1998.....and DJ was instrumental on getting us online as a yabb powered sister site.  Although I've become the senior member, the jeebster AKA @Bejeeber and @CHfather got here in short order!

I think Im safe in saying for all 3 of us that those years of the forum before Facebook were vastly different than they are today!!  I've made several appeals at past conferences for folks that I personally know and who were once active members to take a little time and comeback and be a part of this community to no avail!!

Although we transitioned to the current forum software probably 10 years ago, it is still a "static" type of board vs the "dynamics" of Facebook.

As a result the forum has become just a few active members who support the few clusterheads who happen to find us before they find the many support groups on the "Book"!

I was able to have a conversation with our fearless leader Bob at our Conference in Dallas this past September regarding the future of the forum.......I walked away from that conversation not anticipating any upgrades!!  However, I can't speak for Bob and will definitely bring this thread to his attention!!

The real tragedy is that this is the only place that you get reliable, time proven advice on the "clusterbusters protocol" while in the Facebook groups the term "busting" has become so bastardized that the information and advice is often worthless!!  I used to keep my eye on those groups but eventually got tired of sounding like a broken record as I tried to offer correct information when I saw bullshit advice being given and finally just gave up posting there!!

As to an app, although I've never used one, I know that there are several out there in use......in fact we had a member here several years ago that developed an app called "Nobism" if I'm remembering correctly......but I haven't heard anything about it either here or Facebook in at least a couple years!

Once again, kudos and welcome to the community!!

[dhuddly]

If we could compile a detailed list of what the app would need to do I could have us a fullstack app in no time. I can do several frameworks but enjoy NextJs the best since it is web based. No need for playstore and apple when you use NextJS. This website here is great though and could easily be converted. If you mean a native app, I would offer some positive pushback why keeping it web based can reach more people though. If you mean social media type of app with various functions and more dynamic than static, I have a couple MVP's collecting dust we could use. Whatever you decide though please know I'd definitely volunteer my skills and knowledge for the mission. 

[dhuddly]

We should also specifically look at adding video features. Because as I have learned recently, all of us talk and type differently. We are from all walks of life. If there's been misinterpreting due to text lengths and formats then video is an option to help us differentiate things like crazy or delicate. Because when anyone lands here, it means that they are finally vulnerable enough to be here. For example, in video you guys would see me talk fast. It's my nature.  But in text forums like this, I write very long replies. Not because I am long and slow or delicate. Lol for me it's literally an ADHD thing that's never slowed me down. If storage is an issue for video features then there are plenty of avenues we can use or explore. It also would allow for a healthier community experience because anytime you have a face and voice to connect to the text it paints the whole picture. Just some food for thought. 

[Trent]

Its got some minor glitches I am still working out but here is what I built for myself.   I use it to track cycles, attacks within the Cycle and the attack it self.   If there is interest I will provide updates. 

The glitches I found where adding past attacks, the calendar was off by one day, so I choose one day ahead for yesterday's log date.  I also want to add the ability to edit past attacks and notes.  But  otherwise working great.   Provides good analytics for Cycles, and Attacks.   Logs Pain, and O2 Usage and tie to local weather for increased data collection.  Files can be exported into JSAN or CSV for medical or historical record keeping.   The Notes can be for anything you wan to record, busting attempts, diet, D3 Regime tracking ect.

Hope you all like it. 

https://github.com/MyDigitalFreedom/ClusterTracker/releases

 

 

Edited 16 hours ago by Trent
Removed Attachment and posted Github Release

[Trent]

The above app is 100% hosted and stored on your own phone/tablet.  No data is transmitted to anywhere else.  I specifically built without Google play services for privacy reasons.  Now to be honest I would not install a random app on my device without knowing where it came from.  So my recommendation is to load it on a old phone you got kicking around and try it there first.  It won't need a sim card or even to be up to date, and can be installed over wifi.

[Trent]

Here is some screen shots, also of note not available on i-phone.   You can see where I thought it was going away, so I stopped O2, then quickly regretted that.  

[CHfather]

@Trent, I remember from some years back that you gave a lot of thought to optimizing your O2 usage, and you were dealing with some Canadian restrictions on equipment.  An average attack duration of 44 minutes seems too long, and a total O2 usage of 45 minutes over 16 attacks seems quite low, so I'm curious about what's going on, and of course I am also curious about whether you are doing the D3 regimen or busting, both of which typically reduce attack durations.  Since this isn't really the subject of these posts and you aren't asking for any advice, you don't have any obligation at all to answer . . . It just makes me curious about whether there's something that could reduce those longer attacks.  

[Trent]

I hadn't loaded all the the data into the app yet, I only had a few actual live runs with it where O2 was logged, and then I was back loading attacks so that I could see a complete cycle.  When doing so I realized that the past logged events didn't include O2 usage so it through the stats off.   I fixed that, in the latest update.  The new Stat averages 19.61 min per attack or 922 Minutes over 47.    I had also corrected the calendar issues, added edit ability to past attacks (sometimes I forget to hit end) I'm just so happy its over.    We already had the JSON export, but I added and tested an import in case you switch phones later, you can export out of current phone, load app in new and re import.  No data loss.   

I ended up hosting it on Github as then when I push releases or add on's people can just update.    There is also good notes on what app is all about along with ability to audit the code if your inclined.   For $25.00 I get get it listed on the Play Store, something I might consider to get it to  a larger community after I get feedback and see if this is an app people will want to use, then updates will be automatic.  I did look into optimizing for Iphone, I figure it would take me an entire weekend (personally I am not a fan of Iphone) but I may consider it if like I said there is enough interest.   Good news is that I will not allow advertising or charge a fee as I consider this my contribution to the community.

https://github.com/MyDigitalFreedom/ClusterTracker/releases

As far as optimizing O2, I can't say that I have been overly successful, What works one day, doesn't the next, as many know this beast just changing.  My old manual records were harder to see any patterns.   I'm hoping with the graphs I will get more insight.  

[dhuddly]

I'll check that app out in the next few days. What framework is it? Also the iPhone thing I can relate to. That is why I usually stick to a web app so both android and apple are available without needing to build two apps but thats just my preference.