Episodic CH dillema

[Nikola]

Hello, I am new to the forum. I've been having episodic CH since 2012. An episode normally lasts 1,5-2 months, I get 3-4 attacks a day. They last from 15 to 25 minutes. Normally in the night, but it can occasionally switch to daily periods. The pain is unbearable as you know. Since CH started I usually had two periods a year, winter and summer. As time passed it came down to once a year, normally winter. Since 2020 they occurred even less frequently on 18 months, and now it has been 2,5 years that the episode didn't occur. And it came back now. My questions is: Is this maybe an indicator that they will be less and less frequent in the future or it doesn't have to mean anything? I was so happy that two and a half years I was pain free and now I am depressed really. I will go trough this of course but really hope that for the next two years might be living without CH. Please share your experience and point some relevant studies if any regarding my situation. Thank you very much. I am 45 by the way, if that is important. 

[Dallas Denny]

Welcome to the community @Nikola, sorry you have the need to join us!!

Unfortunately, the short answer is there really isn't a definitive answer to your question!!

ive been a episodic clusterhead since 84.....42 glorious years now......before I got here 16 years ago my cycles we're fairly predictable.....18 to 19 month remission and 5 to 6 mo cycle usually beginning in August.  But I know many folks that get 2 cycles per year and always have.....the untreated Beast truly has a mind of it's own!!

Couple things you might look at here are high flow oxygen for aborting individual attacks, and the anti inflammatory vitamin D3 regimen to lessen the frequency and severity of attacks.

Dallas Denny