spiny Posted September 12, 2014 Share Posted September 12, 2014 Hi All! Has anyone been prescribed this drug for CH? The nasal spray was prescribed. It is for use in an emergency for me, which would be when my O2 is not available. I have never taken or heard of it. So, not too sure I want to try it. Mountain of side effects too. thanks!! spiny Quote Link to comment Share on other sites More sharing options...
Potter Posted September 12, 2014 Share Posted September 12, 2014 Throw it away. Potter Quote Link to comment Share on other sites More sharing options...
Bejeeber Posted September 12, 2014 Share Posted September 12, 2014 My experience with Stadol supports Potter's fairly brief commentary. This synthetic opioid didn't work for me, and when I've seen the subject come up I don't recall anyone reporting having a successful experience with it for CH. I think of it as being one of those buncha drugs that was being tried out for CH 20 + years ago, but has mostly fallen by the wayside now due to it's failure.. So I'm sorry Spiny, but this one sounds to me like a swing and a miss form your neuro. :'( Quote Link to comment Share on other sites More sharing options...
spiny Posted September 12, 2014 Author Share Posted September 12, 2014 Potter and Jeebs, Thanks!!! Did not figure it would be worth a lot since I have not heard of it before. Dr. is just trying since Trex is out. Perhaps I should just make a cutout between the seats of my car into the trunk to stick the valve and hose thru so Mr. O2 can go everywhere with me! The bastard dragon showed up early yesterday! It is NOT the Equinox yet damnit!!!!! Anyway, it was perfect timing since my annual appt. was yesterday too. On a better note, he introduced me to V8 Fusion Energy!! Get your veggies/fruit and caffeine and B vits all in one. 8-) Should be a relief from coffee for me. And I had the pleasure of telling him about Autonomic Tech. new device!!! Sent him the info today, so trying to educate some more. He was actually bemoaning the fact that there was nothing new or effective for CH. Off to throw out some trash. spiny Quote Link to comment Share on other sites More sharing options...
Bejeeber Posted September 12, 2014 Share Posted September 12, 2014 The bastard dragon showed up early yesterday! That sux. V8 Fusion Energy!! Ooh that sounds like it might not blow - thanks for the hedzup. Quote Link to comment Share on other sites More sharing options...
spiny Posted September 13, 2014 Author Share Posted September 13, 2014 Life goes on, right? Yes it does. This early bird will not win and get the worm as they say!!!! Not to worry. 8-) The V8 is great too! Quote Link to comment Share on other sites More sharing options...
Bejeeber Posted September 13, 2014 Share Posted September 13, 2014 Perhaps I should just make a cutout between the seats of my car into the trunk to stick the valve and hose thru so Mr. O2 can go everywhere with me! I like that idea! Then there's Giuseppi who was extremely successful with carrying an E tank with a demand valve in his patrol car with him everywhere he ummm.....patrolled.....and would pull over real quick whenever a CH was about to hit. Of course if you're navigating winding mountain roads maybe pulling over real quick isn't always such a realistic option.... Quote Link to comment Share on other sites More sharing options...
spiny Posted September 13, 2014 Author Share Posted September 13, 2014 Yeah Jeebs, coming up the mountain is the problem. No place to pull off unless you wish to hit the mountain or fly down to the valley! 30 plus miles of two lane. But, life is still good, right? Yes. Quote Link to comment Share on other sites More sharing options...
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