Frilling Posted March 10, 2015 Share Posted March 10, 2015 Not only does my husband have cluster headaches...now my 19 yr old daughter was just diagnosed with them! :'( Coincidence or genetics? Quote Link to comment Share on other sites More sharing options...
tangerinearmy Posted March 11, 2015 Share Posted March 11, 2015 well firstly let me say how sorry i am about that.i cant imagine how your husband must feel i say that as a sufferer imo and it is only my opinion its genetic.the reason i think that is there are to many family members with CH be it siblings or parents and children. in 1973 my mum died of a brain hemorrhage and my father was told it wasnt a genetics thing and his children will be fine,both my sisters have since died following brain hemorrhages and i need to be ct scanned every 3 years now. saying that it doesnt 100% mean others in the family will get it just like i may not have a brain hemorrhage Quote Link to comment Share on other sites More sharing options...
spiny Posted March 11, 2015 Share Posted March 11, 2015 I am so sorry to read this. Studies do indicate that there may be a genetic component. That being said, it by no means indicates that we all need to worry about passing it on. My son has migraines and one daughter has Aural (?) migraines. Which apparently means that she gets the aura but no pain. My mother had migraines. I do not. However, my son now has ice pick headaches. I am the only Cher. It is a scary thought that you might pass this on, but what is to be done? At least your daughter has you and her father who understand her condition and she has a jump start on treatments. That beats the heck out of years of mis-diagnosis and pain. Her family will be her rock. Quote Link to comment Share on other sites More sharing options...
Frilling Posted March 11, 2015 Author Share Posted March 11, 2015 Thank you for your concern. I may not understand how horrific the pain is since I don't experience them myself..but I watch my husband go through it...now my daughter and it is unbearable to watch. I do believe it could be genetics. Our parents do pass on good and not so good genes.. How long have you had CB and have you found anything to provide you relief? Quote Link to comment Share on other sites More sharing options...
Frilling Posted March 11, 2015 Author Share Posted March 11, 2015 Thanks for the info Spiny. I guess the only true way to really know is Genetic testing. You are correct about having a head start on it. Both my mother in law and her granddaughter have Trigeminal Neuralgia. My husband is also episodic. Hopefully he can get signed onto the new Elli Lilly Study that is coming next month. I hope you have found something that has given you some kind of pain relief as you deal with this monster! Quote Link to comment Share on other sites More sharing options...
spiny Posted March 11, 2015 Share Posted March 11, 2015 Thank you Frilling. I too have TN along with CH. It is a -itch. > And yes, I have found help and relief here. Knowledge is power. Someday, they will find the gene. I contributed to the Duke Scoliosis Study years ago. I have a moderate S curve type, my oldest daughter has the single curve type and my youngest the worst S curve type. They are still trying to find the gene, but yes, for my family the Scoliosis is genetic. Our Back Specialist has done 4 surgeries on the three of us and will soon do a 5th!!! Needless to say, we have been on a first name basis for 22 years now!!!! Some day they will announce, if they haven't already, that it is genetic. Would I have prevented their birth had I known? No. We understand each other totally in this one area. We work together and laugh and cry together over it if needed. Hugs!!!!! Quote Link to comment Share on other sites More sharing options...
alleyoop Posted March 11, 2015 Share Posted March 11, 2015 Studies do indicate that there may be a genetic component. Genetic aspects of cluster headache. Authors Sjöstrand C1. Author information Journal Expert Rev Neurother. 2009 Mar;9(3):359-68. doi: 10.1586/14737175.9.3.359. Affiliation Abstract Cluster headache (CH), a primary neurovascular headache syndrome, is characterized by recurrent, unilateral, short-lasting attacks of excruciating pain in the temporal and/or orbital region. The pain is considered one of the most severe pain conditions known to humans. Compared with the general population, first-degree relatives of probands with CH have a significantly increased risk of the same disorder. However, there seems to be no clear mode of inheritance, suggesting that both genetic and environmental factors are of importance, with the pathophysiology being multifactorial. Despite the genetic influence of the disease, a low prevalence and small pedigrees complicate the feasibility of genetic studies. To date, only genetic studies with limited sample sizes have been performed, but results have indicated an association with the HCRTR2 gene, which is involved in the regulation of chronobiological rhythms. Collaborative multicenter studies on large clinically well-defined materials are needed to reach a better understanding of the complex genetic background of CH. PMID 19271945 [PubMed - indexed for MEDLINE] http://www.ncbi.nlm.nih.gov/m/pubmed/19271945/?i=3&from=%2F20425202%2Frelated Quote Link to comment Share on other sites More sharing options...
spiny Posted March 12, 2015 Share Posted March 12, 2015 Thanks alley!! Quote Link to comment Share on other sites More sharing options...
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