AlexItalian Posted May 10, 2015 Posted May 10, 2015 Hi all, I have been pain free for almost three years since my last cluster and, before that, for other 2 years. I have been chronic till 2010 and then, thanks to ALL of you and your magnificent job, I started to bust RC seeds and.....miracle. I can say that a total of 2 months clusters in 5 years is an incredible success. Also, I am able to abort the 99% of attacks with oxygen and only 2/3 of them are around Kip8. But, of course, now that is back I fear, like every time, to get back at the old times, when I had 6/8 attacks daily. Every day I ask myself: "will go away once again, or this time will last forever?". I only do busting with RC seeds (sometimes 25 of them, other times 40/80....upon necessity) and never did a particular treatment with integrator (no D3 regimen). So, knowing very well that many of you are not as lucky as I am (or have been), I was wondering "how many of you have or have had years or long periods of remission"? Best to all of you Quote
ThatHurtsMyHead Posted May 11, 2015 Posted May 11, 2015 Mostly - over 5 years pain free. Accept a couple of times I didn't take my proper preventative dose. My CH came back and I had to go through the complete busting regimen to get my CH put back in the box. J Quote
Pete M Posted May 11, 2015 Posted May 11, 2015 Hey AlexItalian I am getting incredible results from being on the D3 regimen. I strongly advise you to give it a try. Keep a headache diary and track your results. Let me know if it works for you too. Take care Pete M Quote
Ajax Posted May 11, 2015 Posted May 11, 2015 As long as I follow my preventative schedule I am PF 6+ years. I tried to press my luck on the schedule(extended my MM bust a couple months) about 3 years ago and got the Sh-t kicked out of me in back to back cycles(I am episodic). WONT make that mistake again. I have said it before and I will say it again. This site and the people here saved my life! Not to mention the good doctor in Boston Quote
AlexItalian Posted May 12, 2015 Author Posted May 12, 2015 Thank you all for your feedback I have also started the 3d regimen (felt a bit "softer" and dizzy though). Will keep you posted Quote
ThatHurtsMyHead Posted May 13, 2015 Posted May 13, 2015 Ajax, Spot on brother! I did the same a few times. NEVER again. I'm PF with 1 dose every 2 months. Never again will I try to extend it longer. The beast gets crazy when he's away for so long and is allowed to come back... J Quote
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