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Sphenopalentine Ganglion Neuromodulation


1EYEcries
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hello everyone, new faces and old friends.

 

some of you remember me having a difficult case of chronic clusters, effects from medications that destroyed my body and life, no success from busting and basically waiting for BOL.

 

Well no need to wait, and for me no need for it at all.

 

There is a new proceedure, well its actually an old prceedure that has been modified.

 

Its not a cure and my need to be done 1/week or 1/month. who knows everyone is different. But before you go drilling holes in your head, or eating large amounts of mushrooms consider taking a look at this

 

http://www.headachecontrolclinic.com/newapproach.html

 

http://www.sphenocath.com/

 

 

this video is of the doctor who does my treatment and where i go

 

now before you rambo internet badasses who know everything start flaming me for a BS cure or trying to sell something. no thats not what i am here to do. if youve been down the road that ive been down, with collapsed hip joints from steroids, near death experiences in hospitals from imitrex and verampamil, losing jobs, health insurance, and being forced to drop out of school cause you have clusters will know i dont bring BS.

 

chronic clusters for 7  years, all day every day 3-5 a day with nothing but a bottle of oxygen that i pay out of pocket for. yea thats my life... well it was

 

this treatment is immediate, and can be done over and over there is no side effect, other that the liquid smells like a wet dog and it tastes awful. it doesnt hurt it feels like snorting a bunch of water. its covered by ins and medicare

 

so if youre tired of breaking the law and tripping balls with little to no success, carrying imitrex like ID and using oxygen like you live on the moon please look into this, whether its migraines or clusters it will help. how much it will help? that depends on the severity of your case.

 

also with this you can throw in the occpiital and peripheral nerve blocks as well. for me those two procedures were partially effective. a combination of all 3  might be a silver bullet for you

 

if you have ?'s dont hesitate to ask, i am following the thread and will respond as quickly as I can

 

AO/1eye aka Brian

 

PS hi BobB & Dan and of course Phil where ever you may be :D

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Wow, if there's one extreme headbanger who deserved a breakthrough like this it's you Brian, very relieved to hear of it, just wish it would have arrived for you several years ago!

 

Although "breaking the law and tripping balls" does work for a high percentage of CH'ers, I especially hope this SPG action can work to fill the gap for others like yourself who have been cursed with stubborn/resistant/severe CH and other head pains.

 

Some CH'ers here didn't have as impressive results as are described in the video when they tried SPG, but still, you have me adding the SPG info to my priority CH files, thanks.  :)

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gentlemen thanks for your interest and replies,

 

now if we all go by what others say, especially when things dont work, well we would have all tried nothing. yes i understand busting works for some, in most cases i suspect episodics cycles ending natural in most cases. it helps me dont forget ... but it doesnt stick... we all know what works for one may not work for another. everytreatment, medication or procedure doesnt work for at least one person. we all know things may work the first few times and not work the next few times.

 

my advice is collect all the tools that work, and that help. build that tool box, always have something marked as plan B. this procedure is nothing more than another tool for the box.

 

maybe try the spg, with the peripheral and occipital nerve blocks, come home and dose and curl up on the couch with your favorite mask and o2 tank while having rows of energy drinks lined up like civil war soldiers in your fridge

 

i dont know about everyone else but tripping has gotten old and tiresome, ive grown to hate it, sure it stops my ha's for 6-18 hrs but i cant even enjoy that time cuz im flying through hyper space. and once i deploy the parachute and return to this hell we call earth, its like i never left.

 

wouldnt be so bad if the effects of hallucinating could be removed. and for that to happen we are all sitting around doing the same thing over and over waiting for the government to come help us. lol dont get me wrong bol  is probably the final answer, but man it seems an awful long ways away

 

when ya cant take a shower, go to sleep, and even wake up without getting hit. one needs to try something, i had the choice of nerve blocks, coma, or go to mexico for ketamine infusions. mexico is a no cuz soon there will be a wall :o

 

personally with my situation, and basically being turned into a profit for ins companies and big pharma, who wish not to help pay for oxygen. i have decided to keep getting nerve blocks, as many as i can as often as i can. they arent cheap, and they dont stop the headaches for long. so instead of giving me my oxygen for a nice low price, they can pay big bucks over and over again.

 

the way i see it it cant be that much for some lidocaine and a rubber tube. but the office visit, trained professional, and equipment use is where the cost is. theres no profit for the drug companies, infact they are losing money when you replace the BS meds with other means. maybe thats the way to go, hit their pocket and make the headache industry not an industry. where then there is no money to be made and to actualy help the sufferers bol becomes the most logical because the profits there would be larger than the meds that no one is taking. a twisted way to think, but i still hold a grudge. so if i can better my quality of life a little bit and at the same time stick it up the backside of those who i feel wronged me. im all in :D

 

but at the end of the day, try it... like you guys said it may be the gap filler where busting cant cover for some

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Good information, does your doctor use X-ray technology to locate the nerve with applicator and then apply medicine? The doctor I went to was not a radiologist, he just kinda put it up my nose with me sitting up. I never thought this was an effective way to apply medicine. It ran down my throat most of the time. After seeing this I would be willing to try this again if it was applied by a radiologist.

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Good information, does your doctor use X-ray technology to locate the nerve with applicator and then apply medicine? The doctor I went to was not a radiologist, he just kinda put it up my nose with me sitting up. I never thought this was an effective way to apply medicine. It ran down my throat most of the time. After seeing this I would be willing to try this again if it was applied by a radiologist.

 

yes , they used a fluoroscope. its essential for getting the right spot. i had very little over flow during mine and i was also told to stay laying down for about 10 mins so the surrounding tissue would absorb the majority of the fluid. i was told that there is also bone in there that encases the nerve and laying down would provide the best opportunity for it to be absorbed. i was told dont move a couple times after the goop was applied

 

the people, facility and procedure shown in the video is exactly where i went and what was done

 

i would agree that sitting up would  nearly render the procedure useless, and not being in the right spot would further the chances of being unsuccessful. theres like two palates or 'flaps' in the nose, and that applicator is designed to get up and around the top flap that hides the channel to the SPG nerve. they also did both sides of the nose eventhough the pain is only on the right side for me, reasoning was  that they said there can be 'cross firing' of the nerves. how? idk  :D

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