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  This is my first post here so please be patient with me if I making any mistakes.

I am 63 and have had cluster headaches from the time I was 18 until my mid 50s when they suddenly stopped. I have no idea why but I am very thankful for every pain-free day that I have. I am an endurance  athlete and I am incredibly thankful to be able to do what I do pain-free. In an effort to give back and hopefully help others  I try to raise awareness through my racing. This coming April 7 and 8 I will be competing in a 24 hour cycling event in Brookshire Texas called the http://bessiescreek24.com/  in effort to raise funds and awareness for a good  friend that has not been as fortunate as I have. 

 I urge everyone to check out Tom's blog, http://clusterheadsurvivor.blogspot.com/

 If anyone is interested in donating or sharing this information here is the link to the page I have set up. https://pledgeit.org/toms24

 If you happen to be in the neighborhood please feel free to come by and support me, 24 hours on a bicycle is a long time. Come by and help keep the party going. 

 Thank you and aloha 

Bill Greineisen

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On 3/29/2017 at 5:37 PM, Bill G said:

  This is my first post here so please be patient with me if I making any mistakes.

I am 63 and have had cluster headaches from the time I was 18 until my mid 50s when they suddenly stopped. I have no idea why but I am very thankful for every pain-free day that I have. I am an endurance  athlete and I am incredibly thankful to be able to do what I do pain-free. In an effort to give back and hopefully help others  I try to raise awareness through my racing. This coming April 7 and 8 I will be competing in a 24 hour cycling event in Brookshire Texas called the http://bessiescreek24.com/  in effort to raise funds and awareness for a good  friend that has not been as fortunate as I have. 

 I urge everyone to check out Tom's blog, http://clusterheadsurvivor.blogspot.com/

 If anyone is interested in donating or sharing this information here is the link to the page I have set up. https://pledgeit.org/toms24

 If you happen to be in the neighborhood please feel free to come by and support me, 24 hours on a bicycle is a long time. Come by and help keep the party going. 

 Thank you and aloha 

Bill Greineisen

Like u I share a passion for cycling, but since the CH...i have a poor quality of life...but I am wishing u wishing u much success!

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20 hours ago, CH girl said:

Cluster headaches are make life so difficult for me...I take injections SUMITRIPTAN...and oxygen to relieve the pain...anyone know utilizing anything else for pain managment

CH girl, it would be good for you to start a separate thread, but I'll make a few suggestions here.

The vitamin D3 regimen, which is described in the ClusterBuster Files section, has helped hundreds of people,  You should definitely strongly consider starting that.

Also in the ClusterBuster Files section, you will see a file called "Extending Imitrex."  That will show you how to use less sumatriptan with each injection. There is pretty strong evidence that sumatriptan can cause rebound attacks and possibly extend cycles, so you at least want to minimize your use of it.

It's pretty common for people to also take a pharmaceutical preventive.  Usually that's verapamil.  Have you tried that?

If you don't abort your attacks within 10-12 minutes using O2, you should probably consider upgrading your O2 system, with a higher-flow regulator and a top-quality mask.  Can tell you more about that if you're interested.

Busting has helped many people here manage their CH better than pharmaceuticals.  You can read about busting also in the CBFiles section, in the numbered posts.

 

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