UMASS Posted May 31, 2017 Share Posted May 31, 2017 Hi All: I guess my subject line says it all. My name is Alex & I'm 51. I've been free of CH for about 13+ years. I'm was so very grateful for not having the pain anymore. Pure joy. Mine started for me when I was 17 or 18. The worse time in terms of the pain was from my mid- 20's to mid 30's, then the frequency started to taper down as the years progressed. By my late 30's they simply never came back. About 4 weeks ago...I felt the warning pain coming on (about 10-15 minutes for me), then I was back in the world of pain again. I've been taking Verapamil (240MG twice a day) for over 25 years. It seems to help, but when the CH decides to get completely unruly, it doesn't work. I remember years ago my doctor put me on the Amazing drug called Sansert/Deseril. It was the ONLY drug to would stop a CH dead in it's tracks. Come to find out the drug has been discontinued because of the possible fibrosis issue. I have an appointment tomorrow (Thursday 6/1) to see a neurologist. Two things I'm hoping for. A drug that out there to prevent them or (the best scenario) is the CH pack-up again & go away. As I get older my constitution isn't as strong as it was 20 years ago & it effects me even more now. Has anyone else had a serious hiatus (years) from CH & they came back? Thanks for listening everyone! Alex Quote Link to comment Share on other sites More sharing options...
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