Get Support
Support Groups
Meeting someone else with cluster headaches for the first time is an incredible experience. You’ve spent years, maybe even decades, fighting to get the right diagnosis and treatment. Many clusterheads struggle to get anyone in their lives to understand the severity of the pain and how it impacts every part of your day-to-day life. Support group meetings and the annual Clusterbusters conference are often life-changing for those meeting other clusterheads because, for the first time, you don’t have to explain yourself to anyone. We get it. Our support groups meet virtually, and we also offer one-on-one support opportunities. If you are a cluster patient, sign up for one of the patient support groups and if you are a caregiver to a cluster patient sign up for the caregiver support group.
Clusterbusters Virtual Support Groups
Patient Support Group
Patient Support Group
Patient Support Group
Caregivers Support Group
Monthly 1st Monday
Monthly 1st and 3rd Wednesday
Location: Virtual
Facilitator: Anna Williams
1st Wed @ 1:00 PM ET: Register Now
Facilitator: Anna Williams
3rd Wed @ 1:00 PM ET: Register Now
Contact: Anna
Monthly 2nd and 4th Wednesday
Location: Virtual
Facilitator: Joe Stone
2nd Wed @ 8:00 PM ET: Register Now
Facilitator: Joe Stone
4th Wed @ 8:00 PM ET: Register Now
Contact: Anna
Monthly 1st Monday
Location: Virtual
Facilitator: Michelle Borders
10:00 AM ET and also at 7:00 PM ET (Link is good for both times): Register Now
Contact: Anna
One-On-One Support
If you would like one-on-one support, reach out to us via email to request a phone call or email. Get connected with a person who can help you answer your questions, offer resources and an ear.
UK/EU Support
Contact:
Care Partner Support
Contact:
Caregivers and Supporters of Cluster Survivors: Facebook Group
Caregivers and Supporters are an important part of our community. A fellow Caregiver/Supporter has volunteered to create a space to support your unique needs. The Facebook group can be found here. It is private, so make sure you answer the membership questions for admission.
Peer-to-Peer Program
The ClusterBuddies peer-to-peer program connects you with a supportive, empathetic, knowledgeable, and experienced volunteer who understands life with cluster headache and can say, “I’ve been there too.”
Support-Seeker
If you are a support-seeker and would like to be paired with a support-giver ClusterBuddy, please complete the application form.
Experienced Clusterhead
If you are an experienced clusterhead interested in being a support-giver and helping a support-seeker as part of the ClusterBuddy program, please complete the application form.