Much of our research and collaboration efforts have been completed and published, which can be viewed in the Past Research section. The mission of Clusterbusters continues to focus on research heavily and has branched out since its inception to include advocacy and education. With the help of Dr. Larry Schor at the University of West Georgia, we were able to complete the largest survey ever conducted to establish the severity and burden of cluster headaches.
We have many projects with ongoing research that are broken into sections for open and closed trials and surveys. These areas of study are essential to cluster headaches for countless reasons, mainly because the medical community largely ignored this disease for decades. Clusterbusters and cluster headache patient advocates have helped move this condition to the forefront of headache research, giving hope to those who don’t respond to current treatment options for future pain relief.
Patients are an essential part of the equation when it comes to research. Clusterbuster’s primary focus has been to ensure our voices are heard, and that valid treatments are not ignored but studied thoroughly. Learn more about our partnerships and affiliations with educational institutions and nonprofit organizations.
How to Get Involved with Cluster Headache Research
If you are an episodic or chronic cluster headache patient and wish to get involved with ongoing research, we encourage you to sign up on our Patient Registry. The patient registry allows us to connect patients with current research and trials in your area, and that includes worldwide study. We’ve had great success filling spots for clinical trials in the past, including the CGRP antibody trials that led to the FDA-approval for Emgality®. Emgality® is the first-ever medication explicitly approved for episodic cluster headaches. ClinicalTrials.Gov is an excellent resource that allows you to search for recruiting studies specifically for your condition and has information on how to contact those in charge of the research. Another way to get involved with research into this debilitating condition is to donate directly to research through Clusterbusters.