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    Clusterbusters has partnered with the Patient Advocacy Group to provide tools to help you access proper care for cluster headaches. As this condition is relatively rare compared to other headache disorders, many patients have trouble getting insurance coverage for treatments. Finding a doctor who knows how to diagnose and treat episodic and chronic cluster headaches is another challenge, along with coming up with an effective treatment plan. Use these tools to improve the care you receive and fight for insurance coverage for medications, oxygen, and other options.

    Help Dealing with Insurance Providers

    Insurance companies can be a nightmare, especially when you’re already dealing with several cluster headache attacks every day. Whether you need help establishing insurance coverage or appealing a decision to deny coverage for a specific medication or treatment, there are steps you can take to make sure you have access to care. Use this tool for help.

    If you’re having trouble with social security disability benefits, check out this guest article by Deanna Power, the Director of Community Outreach at Social Security Disability Help on Social Security Disability and Cluster Headaches.

    Building a Treatment Plan for Cluster Headaches

    There are abortive, preventive, and transitional treatments for cluster headaches. The medications, devices, or therapies used to treat your attacks may depend on if you are episodic or chronic. It’s critical to have a thorough treatment plan for your cluster headaches. What works to abort or prevent attacks right now may not work during your next cycle or a year from now, so having options and back-up plans will help. Some clusterheads strictly follow the pharmaceutical route while others find more relief through alternative options such as psilocybin mushrooms, LSD, or the Vitamin D3 Regimen. The conventional abortive treatments are high-flow oxygen, sumatriptan injections, and Zomig nasal spray. Transitional and preventive options may involve Emgality®, prednisone, melatonin, Topamax, verapamil, Depakote, and others. The gammaCore® device is a preventive option for episodic cluster headaches. Your cluster headache treatment plan should include an abortive and preventive as well as back-up options in case those medications stop working for you.

    Find a Doctor Who Treats Cluster Headaches Near You

    Finding a doctor in your area who knows how to treat cluster headaches is similar to finding a needle in a haystack. Use this list to find a doctor in your area who may be able to help you treat your cluster headaches. Clusterbusters is developing a tool to help you better find a doctor with knowledge about this disease. Check back for updates soon.

    Diagnostic Tool

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