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Showing content with the highest reputation on 05/17/2016 in all areas

  1. Kelly, I don't think your symptoms rule out migraines. The women thing is, I think,being altered as more women are accurately diagnosed with CH, so that's not a big factor for me arguing that maybe you don't have CH. Aura is somewhat rare with CH -- studies have put it between 2% and about 20% (a big range, I know; I don't really trust the 20% figure, but 2% seems low). Stuffy nose is pretty common with migraine, and so is eye pain. An hour to an hour and a half once would have been considered pretty long duration for CH, but we've definitely seen lots and lots of attacks that long and longer. One distinctive characteristic of CH as opposed to migraine is that people having CH attacks can almost never sit or lay still. Since I'm not a doctor, I'll stop there. You can look up the list of CH symptoms using google, of course. The oxygen might be a good test, since it usually does not help people with migraines much, or at all. The sumatriptan helps both -- most CH meds are hand-me-down migraine meds, but not oxygen. I don't know about the additional tests you mention, but they sound reasonable. A couple of folks have indeed found pituitary growths that could be managed.
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  2. Thanks everyone for your advice & replies. And welcome to you Kelly. I put the chiro and the acupuncture on hold for now. My first priority now is finding a good neurologist, getting the oxygen & maybe Verapamil so I can quit the Sumatriptan. I'll also look into the vit. D and Buster files. I got some material from a friend who works in a hospital and Sunday I last night managed to split two injections into five, of 0,2 ml each. Administering the injection wasn't as scary as I thought it would be and the smaller dose was just as effective. The best part is that didn't have an attack last night so I'm keeping my fingers crossed that the end of this cluster is in sight. Thanks y'all for being here. Namaste
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