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hello all,my storey is 2 yrs ago i started getting a pain in my right eye and the side of my face after drinking alcohol and only when i had a drink this would happen didnt know what was happening to me went to docs and he said i had a sinus infection and put me on antiboitics which didnt help.then i started getting the pain more and more with out drinking alcohol i was getting 3 attacks a day all at the same time,so went to docs again who booked me in for mri scan and to see a neurology team,where i was told i had cluster head aches.i am allso a recovering addict and was on methodone for this and allso was on anti depressents citalipan i was told that these head aches was maybe caused by long term methodone use and maybe its a good idea to get off the methodone,i was perscribed verpmil 80 mg twice a day and sumartripan in jections,the verpmil seemed to clear them for about 2 weeks then i was back to having 3 a day again so i started using sumartipan injections what used to work but the pain used get worse,i would take the injection and have 15 mins of screaming pain and the pain would suddenly stop,but i would have a horrible migran after a hr of having the injection and because you can only have 2 injections in 24 hrs i was having to ride 1 of my clusters allso the injections gave me horrible side affects after a year of having these attacks and using the sumartripan injections and having these clusters everyday and allso trying to detox on the methodone,i was in despair and became very depressed i ended up using drugs again relasping but the herion didnt seem to help after a while,so i got back on methodne and the clusters got worse i was having 6 attacks a day,i wanted to end my days on this planet i was on the floor with these attacks started in my right eye and then it was like someone was hitting with a hammer on my head i was in tears with these,this went on for a 18 months i had 3 five day breaks in 18 months they had got worse and worse.anyway a friend of mine was looking on the internet and sent me a link about using majic mushrooms for clusterhead aches,thats where i found clusterbusters and found the info on the majic mushrooms,i have used lsd and majic mushrooms before when i was younger so new a bit about them and where to find them,so in october i found a feild full of them and picked a load i was still on a low dose of methodone and was still using ssi antidepressants and new that these drugs didnt play well together so i kept the mushrooms untill i detoxed,this took me up to april 2016 i had come off the ssi and was on a very low dose of methdone but i was still gettin attacks everyday and went back to the neurology team where they put me on steriods and gave me oxygen the oxygen used to work a bit but not well,but the steriods seemed to work for 3 weeks the head became less and not as painfull,so in this time i decided to come off the methodone and stop using the sumartripan,so i could use the mm and try the busting,after 3 weeks of total detox i noticed the head aches where not as bad and the oxygen seemed to work better the headaches seemed to ease,so i decided to take the first dose of mushrooms which was six weeks ago i took 1.5 grams for which i did trip i think the mushrooms in england are stronger than in the states because i was off me head,but i noticed a tingling feeling where my clusters were while on mm,the next few days after they head aches had eased and were not as painfull,so 5 days later i took another dose of half a gram which i didnt trip and after that dose they eased even more,then in five days again i took another dose and they are much much better i havent had to use the oxygen as i just every now and then i get a slight pain in the right eye but it go,s,some times i get a slight head ache but it is handleble allso ive noticed my depression has eased from when i took mushrooms,i am now totally clean from all drugs for the first time in 20 yrs and cluster free.all those migrane drugs they had me on i think made them worse.i just want to say thank you to this site you have saved my life.thanks bob.it wasnt the docs that helped me it was clusterbusters.

I don't have MS but I have done some research on it for a couple friends of mine. (I'll also note that in all my experiences with CH and CH sufferers over the years, I can't remember meeting anyone that had both MS and Clusters. Obviously it happens, but to me it does not seem like a very common occurrence.) Much of my research with Clusters has centered around an inflammatory substance called Tumor Necrosis Factor (TNF). This is one of many substances produced by the immune system. When you need it, it's great--it eats away tumors. When you don't need it, it can cause a huge inflammation problem and has been implicated in all sorts of disorders. High TNF levels have never been proven in Cluster Headache but I can't find one study that has explored the idea. I suspect that cluster sufferers have high amounts. The reason that I bring this up is that the psychedelic therapy is very good at lowering TNF levels, to the point that all hallucinogens that hit the 5ht2a receptor (the receptor that LSD and Psilocybin hit) are considered "super potent inhibitors" of TNF. I think even if it is just one part of the equation this reduction in inflammation helps tame down the clusters. With MS, high levels of TNF have also been found. The problem is, that when TNF has been lowered in these people sometimes MS seemed to get worse. There are some cases (mostly with rheumatoid arthritis) where people went on TNF lowering drugs and somehow ended up triggering an onset of MS that was not there before. Admittedly, the way the hallucinogens work to lower TNF levels is a very different way then the way prescription TNF inhibitors work, but whether or not it could produce the same symptoms is anybody's guess until we do more research. Searching the internet you don't find a lot of reports of people with MS taking psychedelics. When I looked (not super hard or for a long time) I found 2 cases. One was about a woman in the 1960's who had received legal LSD to treat her MS. Supposedly it did not work, but there was no mention of her actually getting worse. The other report was from a guy claiming his girlfriend with MS had taken 1 gram of mushrooms and thought that it had made her MS flare up. On the other hand, here is a person talking about clinics in Mexico that treat MS with Ibogaine, another hallucinogen somewhat related to the ones we use for busting. http://www.thisisms.com/forum/natural-approach-f27/topic24133.html I wish I could tell you that the psychedelics are good or bad for MS, but unfortunately I don't think anybody knows that for sure at this point. I do know that stimulating certain muscarinic receptors have been shown to be helpful for MS and some of the substances that I have found helpful for clusters as well. These are substances that you need to be pretty careful with, like Mandrake and Datura. Let me know if you are interested and I will share whatever info I have on it. Good luck, Ricardo

Hi, I am new to this board but I thought it might be worthwhile to discuss whats we can do to manage CH beyond Meds. I have been a CH suffer since I was 6, I am now 34 and have a myriad of social and depressive issues with regards to CH. To begin, CH is rated as one of the most painful medical condition you can get my specialist told me that CH is considered a 10 on the pain scale while medication and management for the pain exists it's not without its side effects and issues. Depression is common, I have been managing this with regular exercise, I was offered "happy" meds by my doctor which I declined and chose a more proven route of combating depression which is 4 times a week at a local gym, exercise has show to be fantastic as counteracting depression as are hobbies/sports. Social Isolation, CH hurts we care about others and dont want to hurt them by seeing us hurt so we hide, Isolation has recently even been recognised as a symptom of CH as its mostly universal, I dont have a good strategy for this, I have recently been spending time in my local library to get used to people again. Employment: Big issue, CH is misunderstood and scorned (well in NZ currently) I have been told to "just take a few panadol" which may as well be tic tacs (a candy here) currently I am being paid to "Blog" write stories for company's websites from home. Right now I am having an issue with Heightened pain tolerance, which is both good and bad.. its good because it hurts less, it's bad because I can accidentally hurt myself and not notice, would love to hear other's issues and what they have found or need help with finding solutions for. We all suffer but we can suffer together.