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Hello, Anita Your testimony brought me to tears cause I am also a spouse of a terrific guy that suffers from CH, so really girl, I get you... I can identify with your need to help and doing something about it. My heart truly breaks everytime I see him go through a crisis. What I have done, and that it isnt really different from what you suggest, is being there with him and backing up his decisions. For example; he decided that he wanted to try out mushrooms after a long medical treatment that didnt worked for him, so I stand by him in every decision that he has made. If he decides that he wants to go back to regular meds I will also be by his side. I believe most importantly is to trust that he knows his dissease and his body and he will make the right choices for him. You can do, as I do: read about new treatments, contact the best doctors and make this information available to him but ultimatly he is going to choose. So we can only accept and reséct that. Sometime I feel the desire of doing something more...Maybe here in México ( were I live) a support group, a non profit organization, a fund raise so more people can be aware of this dissease... So lets see if that happens in the near future. Maybe you, and other spouses/ fathers/ sisters/mothers can joy in. Lots of love and support for you...

I was wondering , if you could figure out what caused the first headache. Sometimes it may just be bad tension headache or intense migraine. New food? Did you change anything in your house? Any new product? New re-freshener,new dish soap, new spices, new brand of milk? new water filter ? even new pair of shoes. Anything stress related? Dentist visit? I would think very hard , as you may still be able to figure out the trigger for this first headache. If you didnt change anything at, least you know at has nothing to do with anything external. This is one of the most important things you can do now. Other is ,get a new PCP , convince him/her that you have CH a get oxygen . Most insurances pay for it. If you have high deductible. You end up paying probably around $100/month. Oxygen comes in bottle for portable use and concentrator for home use. Portable oxygen has a regulator up to 15L/m Home concentrator has ussually flow up tp 10L/m Your script will be probably 12-15L/m You medical supply will bring you 2 concentrators as required by your script to get 10L + 2L from the second one and charge you for 2 concentrators. They will also bring you portable oxygen free of charge . Insead of paying for 2 concentrators , what you can do is get 1 concentrator and use 2L/m from a bottle with a splitter. But every medical supply company is diferent. This was just my case.You will need to find out about their billing practises first. But if you find out that they want to send you 2 oncentrators and charge you double , you can get a new script for 10L/m and just use 2L from portable. good luck.