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Showing content with the highest reputation on 06/08/2021 in Posts

  1. Hello everybody! Well, it's been a few years since I've been in here, but there is one guaranteed thing in my life: The BEAST! 37-plus years of this torturous dance and counting. Been learning more about my past and have a theory. I was severely and repeatedly abused and traumatized when I was very young, and highly suspect that the raised cortisol levels had either shrunk or deformed my hypothalamus. The silver lining is that I have a hunger for knowledge to finally join the fight in better figuring out the beast, so all other cluster headaches sufferers (survivors) live a 100% pain-free life. Joining this group 10 years ago was absolutely life changing for me, and I will always value that highly.
    2 points
  2. Understand your sentiment @Brad! Finding this place 12 years ago in Oct definitely changed (if not saved) my life!! It's been one helluva ride! Dallas Denny
    1 point
  3. NC. Mountains!!! West. But hey, I was in Hickory when Charleston sent us a hurricane over a decade ago!!!! Had two tornadoes go past my house - one on each side. Good ole Hugo!! My house was the only one with all trees still standing.
    1 point
  4. Many people get good relief from the nasal spray. If you get the injectable, you can divide it into two or three doses. https://clusterbusters.org/forums/topic/2446-extending-imitrex/
    1 point
  5. For every success story there is a counter balance, like mine. After consulting Batch I started the D3 last year March as I was looking for a solution to decrease my intake of verapamil before my next cycle would start. After 1,5 month my blood serums were at par and removed one 120mg verapamil to 600mg daily dose (plus naratriptan, sandomigran), hoping the D3 would keep the beast at bay. What happened was not what I expected, my cycle started and ramped up to sometimes 12 attacks a day. Did the Emgality, GON injection, prednisone but all to no avail. On a certain month I had >240 attacks (pic below). Also my normal cycle was extended from 5 months to a full year now and in between I had to up my verapamil to 720 again. Still I am in the aftermath of my cycle, and actually scared this will roll over into a new one which normally happens around May/June. Alex
    0 points
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