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Showing content with the highest reputation on 04/13/2023 in Posts

  1. Red Bull free today was suckishhhh Feeling good now though!
    3 points
  2. I still have a soft spot for "Musk" my grandmas favorite.
    1 point
  3. I have 2 cup of coffee and a small can of red bull every day. Without the constant flow the pain is so bad that my brain feels like it is jiggling with every small step. So weird.
    1 point
  4. Rite there with ya Spiny! Some time back when my husband got COVID he had no craving for coffee so he stopped drinking it. Weeks after getting over it, we couldn't figure out why he was having bad headaches daily until it dawned on us he was having caffeine withdrawals... I tell ya what, that man turns into a manchild when feeling ANY ailment so coffee it was!
    1 point
  5. Hey everyone. I posted earlier but I don’t think it went through. So I have been posting for years in this chat now about my fear of flying (in our out of cluster season). And I finally flew. It was a short flight, so I cannot comment further on length affecting a cluster. My flight there I had zero shadows or headaches during ascent or descent. I had almost a gallon of water leading up to the flight (the day before and that morning). I upped my verapamil dose by 80 mg and I loaded on the d3 regimen a week prior. I had a Red Bull at the ready, just in case. Also 2 500 mg Tylenol before take off and landing, and a ginger capsule. coming home: I went on no sleep the night before because my flight was at 5 am. This was dumb but I didn’t really have a choice. I was SURE this would trigger me, also it was daylight savings time. I drank about the same amount of water the day before and leading up to the flight. I bought a Red Bull, and I also prepped by taking 2 500 mg Tylenol. During ascent I started to feel tight pressure on my cluster side, no pain, just pressure. I chugged my Red Bull, and it went away instantly. I stayed hydrated the rest of the flight, and felt no further pressure during descent. I did not need to use any suma injection or steroid taper. I am not currently IN cycle, but I find with my clusters If I hit one of my triggers I will get an attack regardless. I am very VERY excited over this. My fear of travel has been depressing for the last few years. I hope this info helps everyone
    1 point
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