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The two neurologists we saw in DC both misdiagnosed my daughter's CH, and when it was diagnosed (by us), the second one mistreated it. So no advice, really. People generally recommend that a headache center is going to be your best bet, and I'm sure Georgetown and Johns Hopkins (and maybe GW) have them. There are some things that sound like you might have a hemicrania. Oxygen and triptans not working, for example (though I can't say about actually making things worse), and the constant pain. So it's worth checking out, but typically hemicrania is a CH lookalike, and you don't have typical CH symptoms. Indomethacin is the only diagnostic for hemicrania. If it works, you have it; if it doesn't you don't. BUT be sure you get a proper course of indo -- you seem good at googling (or AI-ing), so look up something like "What is the correct initial dosage of Indomethacin for hemicrania?" ChatGPT gives the answer below, which I think is correct, but I would look around to make sure -- and not trust a neurologist to get it right (even though s/he has a book or an online resource that will tell him/her what's right). "25 mg by mouth three times daily, taken with food. That gives a starting total of 75 mg/day. If symptoms do not improve clearly within a few days (sometimes even within 24–48 hours), the prescribing clinician often increases the dose—commonly to 50 mg three times daily, and sometimes higher (75 mg x 3) for a short diagnostic trial." Busting and hemicrania. From what I have seen here, it typically helps for a day or two or maybe a iittle longer, but then wears off, so people with hemicranias have to do a lot of busting to keep it at bay. But maybe I'm just not remembering other situations in which the results from a more standard protocol were good, as Denny described. That doggone D3 regimen sure seems to help a lot of "headache" conditions. I'd definitely keep doing that.

@standardized17493 I'm not positive about the hemicranias but with clusters the autonomic symptoms can vary from patient to patient....some folks get a stuffy nose while others have a runny nose....some experience a weepy eye while others don't!! FWIW, I do personally know a young lady with hemicrania continua who has had great success utilizing the "clusterbusters protocol" with Vitamin M as her busting substance!