Batch
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Hey Dana, The Adult 50+ Mature Multi contains most of the vitamin D3 cofewactors/conutrients. It just doesn't have enough magnesium or any vitamin K2. There are additional supplements that can be added if there's no response to the above supplements. They include vitamin C as the human genome and that of all primates lost the gene for the enzyme needed to synthesize vitamin C from carbohydrates. None of the other animals that synthesize their own vitamin C have cardiovascular disease... That's a thinker... Accordingly, 4 to 6 grams/day vitamin C is a good dose. The other supplements frequently added by CHers are CoQ10 and Turmeric (Curcumin). Take care and please keep us posted with your response to this regimen. V/R, Batch
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Hey Mark, Any 25(OH)D serum concentration above 100 ng/mL will be assessed as "High". Please don't let that bother you. The technoids (not real vitamin D3 experts) who set the upper limit for the 25(OH)D normal reference range knew that 200 ng/mL was likely safe, but where a few people start experiencing hypercalcemia (too much serum calcium) so they wanted to be uber safe and conservative so set the upper limit at 100 ng/mL. If you're still getting hit with CH with your 25(OH)D at 120 ng/mL, you may need a higher vitamin D3 dose and a 25(OH)D serum concentration up around 140 ng/mL to achieve a favorable response. For reference, over the last three years I've kept my 25(OH)D serum concentration between 130 ng/mL and 188 ng/mL taking between 20,000 IU/day and 40,000 IU/day vitamin D3 to stay CH pain free depending on the pollen and mold spore count. My PCP has no problem with my 25(OH)D serum concentration this high as long as my serum calcium concentration remains within its normal reference range... and it has. Be sure to ask for serum calcium and PTH when you go back in for lab tests at the next VA facility. Take care and please keep us posted. V/R, Batch.
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JH, On a related note, they discovered I had an autoimmune eye disorder called uveitis when I had the detached retina. As a result of this diagnosis, I took part in a clinical trial of a monoclonal antibody called daclizumab at the National Eye Institute, NIH, Bethesda, MD. The informed consent document for this clinical trial of daclizumab was filled with a long list of frightening adverse side effects, but the thought of my retina rejecting me and going blind was a bigger fear so I signed the consent form. Long story made short, the daclizumab worked, but it destroyed my immune system in the process and I was plagued with all the listed adverse side effects until I started the anti-inflammatory regimen in October of 2010. I've passed annual ophthalmology eye exams ever since. It's clear to me and my ophthalmologist, the vitamin D3 has kept my eyes healthy and rebuilt my immune system. Take care and please keep us posted. V/R, Batch
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Hey JH, Floaters happen with age. They occur when the eyeball starts to elongate from a spherical shape to a grape shaped structure. This elongation causes the vitreous humor, the clear jello inside the eye, to put stress/tension on the retina causing microbleeds... the floaters you're seeing. Floaters happen to people without CH. See your PCP for an ophthalmology consult. You need a thorough eye exam... The incidence of spontaneous retinal detachment also goes up as we age... Been there, done it, had a detached retina and posterior vitrectomy to prove it. Take care, V/R, Batch
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Hey Clusterwife06 and Maddie3, Take a look at the link titled "D3 Regimen for CH' in the Theory and Implementation section. It has everything you'll need to take control of CH. You can also click on the following link, it will pull up this same post. Take care and please keep us posted. V/R, Batch https://clusterbusters.org/forums/topic/6194-d3-regimen-for-ch/
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Sorry to sound like a stuck record... (Hmmm I guess that phrase dates me...) but starting the anti-inflammatory regimen with the 12-Day accelerated vitamin D3 loading schedule at 50,000 IU/day vitamin D3 for 12 days followed a maintenance dose of 10,000 IU/day of vitamin D3 and the rest of this regimen has a high probability of ending your angst by preventing your CH. The following chart illustrates the favorable response rate by day after starting the anti-inflammatory regimen for 80% of CHers who start this regimen. This figure improves the longer CHers stay on this regimen. That said, I frequently forget that trying to convince some CHers running from pillar to post, in and out of the frying pan and fire trying to dodge the next CH, that this is a very safe and effective method of controlling CH is like trying to herd cats. Then I remember that logic has little meaning when the CH beast is jumping ugly every hour... Please forgive me. I'll be here if you need help. V/R, Batch
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BenClusterBuster reacted to a reply to a status update:
Hey Batch, I've been browsing the forms for sometime, and usually after every attack.
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Hey Batch,
I've been browsing the forms for sometime, and usually after every attack. I'm currently 21 and I am on a cycle that I feel will never end.
I take Verapamil (I swear does nothing) and I tried prednisone (which usually works, but this time its so bad I get dizzy and cry, and from guy to guy, we hate crying)I feel like there is no end.. anyway, I saw your d3 regime and I really want to give it a shot, but for the life of me, I cant seem to grasp what to do, and reading that pdf makes my head spin!
I would sincerely appreciate the help, and will do anything to have a really simple guide or maybe amazon links to stuff you use or something.
If we could skype that would also be amazing, I've never actually talked to someone who goes through the same thing.. I swear no one understands.Sorry for lengthy message.
Thank you! P.s hoping someone at-least sees this, batch cannot receive PMs.
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Hey BCB,
I get PMs just fine. Pick up the supplements shown in the photo below with the exception of the Nature's Bounty D3 5,000 IU vitamin D3 soft gels.
Replace the Nature's Bounty D3 5,000 IU soft gels with the Bio-Tech D3-50 water soluble 50,000 IU capsules shown in the Amazon photo below. You can pick up the Nature Made high potency 400 mg Magnesium, Nature Made 1200 mg Omega-3 Fish Oil and Adult 50+ Mature multi at Costco, Sam's, Wallyworld, and most super markets.
Add the Super K with advanced K2 Complex to your amazon order for the Bio-Tech D3-50. While you're waiting for the deliveries from amazon, see your PCP/GP for lab tests of your serum 25(OH)D, calcium and PTH. If you're in a pinch, the lab for 25(OH)D will do.
Start this regimen with the 12-Day Accelerated Vitamin D3 Loading Schedule taking 50,000 IU/day vitamin D3 for 12 days (Take one [1] of the Bio-Tech D3s-50 capsules daily for 12 days) then drop the vitamin D3 dose to one (1) Bio-Tech D3-50 capsule every five (5) days for an average of 10,000 IU/day vitamin D3. During this accelerated vitamin D3 loading schedule double the magnesium dose to 800 mg/day split 400 mg with breakfast and the other 400 mg with the evening meal. Take the rest of the supplements as shown by capsule count in the first photo daily.
If you've not experienced a favorable change in your CH patterns by the end of the first week on the vitamin D3 loading schedule, start a week to 10 day course of Benadryl (Diphenhydramine HCL) at 25 mg every four hours throughout the day and at bedtime. If that doesn't help, you have questions or problems, shoot me an email at pete.batcheller@verizon.net as there are other steps that have worked for others with this problem.
Be careful and not drive while taking the Benadryl as this much Diphenhydramine will make you drowsy. If you need to drive during the day, wait until you're home for the day then take 50 mg of Benadryl (Diphenhydramine HCL) as you walk through the door and another 50 mg at bedtime.
30 days after the start of this regimen, see your PCP/GP for labs of your serum 25(OH)D, calcium and PTH. Please let me know when you get the results. Your 25(OH)D serum concentration should be up around 80 ng/mL, your serum calcium within its normal reference range, and your PTH in the lower third of its normal reference range.
Once you have the lab data in hand, please take the online survey of CHers taking this regimen to prevent their CH. To start this survey, click on the following link:
http://www.esurveyspro.com/Survey.aspx?id=fb8a2415-629f-4ebc-907c-c5ce971022f6Take care and please keep me posted. I'm here to help.
V/R, Batch
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BenClusterBuster reacted to this
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Beat me to the punch Batch. Sent instructions to the link.
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BenClusterBuster reacted to this
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Just need a little support to get me through
Batch replied to Brain on fire's topic in General Board
A woman goes into the Bass Pro Shop to buy a rod and reel for her grandson's birthday. She doesn't know which one to get so she just grabs one and goes over to the counter. A Bass Pro Shop associate is standing there wearing dark shades. She says, "Excuse me, sir. Can you tell me anything about this rod and reel?" He says, "Ma'am, I'm completely blind; but if you'll drop it on the counter, I can tell you everything from the sound it makes." She doesn't believe him but drops it on the counter anyway. He says, "That's a six-foot Shakespeare graphite rod with a Zebco 404 reel and 10-LB. test line. It's a good all-around combination and it's on sale this week for only $20.00." She says, "It's amazing that you can tell all that just by the sound of it dropping on the counter. I'll take it!" As she opens her purse, her credit card drops on the floor. “Oh, that sounds like a Master Card,” he says. As she bends down to pick it up and accidentally farts. At first she is really embarrassed, but then realizes there is no way the blind clerk could tell it was she who tooted. Being blind, he wouldn't know that she was the only person around. The man rings up the sale and says, "That'll be $34.50 please." The woman is totally confused by this and asks, "Didn't you tell me the rod and reel was on sale for $20.00? How did you get $34.50?" He replies, “Yes, Ma'am. The rod and reel is $20.00, but the Duck Call is $11.00 and the Bear Repellent is $3.50.” She didn't say a thing.....just paid the bill !!! -
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Excuse for having a doctor arrange a vitamin D blood test
Batch replied to Dana129's topic in General Board
Hey Brain on Fire, Good on you... That much exposure to the UVB in direct sunlight puts you in the same category as SoCal life guards.. Their mean 25(OH)D serum concentration is around 50 ng/mL with a few up to 80 ng/mL. That said, if the CH beast is still jumping ugly... that's not high enough. Hope to see you in Dallas. I'll be waiting at the bar. Take care, V/R, Batch -
Excuse for having a doctor arrange a vitamin D blood test
Batch replied to Dana129's topic in General Board
G'Day Dana, ZipLock bags work great! That is unless you've a mob of Roos going through your goodies... The accelerated vitamin D3 loading schedule works best if taken daily. Some Vitamin D3 loading schedules call for a single oral dose of 600,000 IU of vitamin D3... The problem you run into is you also need a constant supply of magnesium. Taking more than 1000 mg/day is a sure fire way for osmotic diarrhea. Take care, V/R, Batch -
Excuse for having a doctor arrange a vitamin D blood test
Batch replied to Dana129's topic in General Board
OK, Brain on Fire, Do you spend 20 to 30 minutes 5 days a week in the mid-day sun clad in speedos with no sun block? Arms, legs and neck don't amount to much cutaneous vitamin D3 as measured by a lab test for 25(OH)D above 30 ng/mL even in SoCal and FL. As CHers we need our serum 25(OH)D up around 80 ng/mL for a favorable response with a significant reduction in the frequency of our CH. Many of us need an even higher 25(OH)D serum concentration between 80 and 120 ng/mL at times even higher for a complete cessation of CH. You can always get the lab test for 25(OH)D and prove me wrong... The standing bet is a beer and a shooter at the next Clusterbusters Conference in Dallas. Have I got a taker? Take care and please keep us posted. V/R, Batch -
Excuse for having a doctor arrange a vitamin D blood test
Batch replied to Dana129's topic in General Board
Hey Dana, Just tell your PCP you've been taking 50,000 IU/day vitamin D3 and need to check for toxicity... He'll freak out and order the labs for 25(OH)D, calcium and PTH ASAP! In reality, you could probably take that much vitamin D3 for a couple months and still not push your serum calcium above its normal reference range... That's called hypercalcemia a.k.a., vitamin D3 intoxication/toxicity... but you don't need to tell your PCP that... Take care, V/R, Batch -
Hey Batch,
I’m finally starting the D3 and the regimen but I’ve been told I have to be careful bc I take verapamil 800mg a day divided into 5 doses. So I pretty much take it every 4 hrs when I remember. I recently weaned down bc I thought it wasn’t doing anything and I started to get hit at night so I went back up... your input is appreciated!
Brian
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do you take any benadryl along with the other vitamins? I also added Melatonin at night that helped me with the overnight hits, I started at 5mg and worked my way up to 20.
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You only need the Benadryl (Diphenhydramine HCL) if you haven't experienced a favorable change in CH patterns by the end of the first week of the accelerated vitamin D3 loading schedule or... if you think you're experiencing an allergic reaction like allergic rhinitis. Nothing wrong taking melatonin with this regimen.
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Excuse for having a doctor arrange a vitamin D blood test
Batch replied to Dana129's topic in General Board
Hey Dana, Climate is one factor when it comes to a geographic prevalence for CH, but latitude is the biggie. The farther North, the higher the prevalence. Skin type and more specifically the amount of dark pigmentation is also a significant factor. That said, there are also demographic cohorts near the equator where obtaining direct sunlight is not an issue yet some of these people also have a higher prevalence for CH. The reason for this is air conditioning. For example, there's a greater prevalence for CH and migraine in Finland per 100,000 than just about any other country in the world. Here we are talking about a country that crosses the Arctic Circle where the incidence of direct sunlight is lowest and a national genome with the least amount of skin pigmentation. i.e., very pale skin. The thinking here is as humans migrated North from equatorial regions they tended to give birth to children over many generations with less pigmentation. People who did not evolve with less pigmentation during the migration north were unable to produce sufficient cutaneous vitamin D3 so did not have sufficient bone mineralization. This resulted in a smaller pelvic girdle and women with this condition tended to die in child birth removing them from the evolving genome. Hence, survival of the fittest. Take care, V/R, Batch -
Hey Voc Teacher. Howz the head? Vitamin D3 loading typically needs to be a minimum of 5 to 7 days at 50,000 IU/day when at higher 25(OH)D serum concentrations around 80 ng/mL to have a significant effect on CH frequency. Take care, V/R, Batch
