Jump to content

FunTimes

Advanced Members
  • Content Count

    638
  • Joined

  • Last visited

  • Days Won

    65

Everything posted by FunTimes

  1. Signals I pay for my 02 out of pocket, it was cheaper for me in the long run. My insurance company has a set price on how much a tank is but when I asked about paying for it on my own the price dropped about $250 bucks. I have a company that I found just outside of Philadelphia that I get tanks dropped off at my house the day after I call in my order. They started me off with 2 M60 and i think 4 E tanks, due to the lack of record keeping and the delivery driver being understanding/not caring I have a good stock pile of tanks now. Be ready for a fight, it took me more then a few months of
  2. Dilons20 I don't know how they will set you up but with my 02 company I do not own or pay a rental fee for my tanks. I have a deal that was originally set up for 2 m60 tanks and 4 E tanks to be refilled or (swapped out is more like it). I have ended up getting a few extra tanks over the last few years and kind of stock piled them. My 02 company does not know how many tanks I have and I am chronic so I have no plans on giving anything back to them. I would hold on to your tanks when you are out of cycle because it is hard enough to get what you need to start up why do that all over again o
  3. the pain will vary from one to another we all tolerate pain different so the fact that you do not think yours are as bad does not mean they are not clusters. Just hope that they never get that bad. After I started busting and got on the D3 my pain levels dropped and the length they last is shorter but they are still clusters and still fun to deal with.
  4. Batch

    It was nice to meet you in Dallas, My brother in law also enjoyed talking with you. 

    I have a quick question, I have moved to the Bio Tech D3 at 50,000. If you are taking that every other day do you still take the other co-factors the days you do not take the vitamin D? 

    Thanks 

    Don

    1. xxx

      xxx

      Don,

      Good question.  I've tapered the Bio-Tech D3-50 50,000 IU water soluble vitamin D3 dose down to one capsule a week, an average vitamin D3 dose of 7,000 IU/day.  I take the rest of the cofactors daily.  I've found the Bio-Tech D3-50 water soluble vitamin D3 to be faster acting with a higher bioequivalence than the same dose of oil-based liquid softgel vitamin D3 formulations in terms of elevating serum 25(OH)D3.

      In simple terms, one Bio-Tech D3-50 a week has kept my 25(OH)D3 serum concentration steady at 150 ±4 ng/mL for the last 9 months measured with lab tests for 25(OH)D3 every 3 months.

      Hope this helps.

      Take care and please keep me posted.

      V/R, Batch

  5. Getting the head scans and tested is a good start to rule out anything else. Next doctors visit you have try to get a prescription for oxygen. You will need to use a non rebreather mask and a flow rate of up around 25lpm. You can search oxygen on this site and find a tun of information on it. I will also down a 5hr energy drink on my way to the oxygen to help abort the attack faster, some will use coffee or other energy drinks. The Vitamin D3 is another good thing that will not hurt starting today and will help with more then just cluster headaches. Read up on this site and ask a lot of quest
  6. FunTimes

    CBD

    A few people have used this in the past. If you search CBD in the upper right corner you will find the post with all the info they had to offer, no harm in reactivating a older post with new questions.
  7. I am chronic so I do not have normal cycles but I do have changes in my attacks. Last week I was doing great with only one cluster a day, Saturday hit and they started climbing and by Tuesday I was up to 5. The pain and length of each got worse each time. This is normal for me when the seasons start to change and yes it does suck but mine will hopefully settle down a bit. I take all of the D3 regimen and I add Benadryl 3 times a day when the seasons start to change and things ramp up for me. Not that this will help you feel any better but you are not alone. As far as your clusters changing si
  8. Sorry,this is no longer available. Maybe someone else will see this post and will have something they can send you. If I come across another I will let you know.
  9. Welcome to the site! You will want to see a neurologist and or a headache specialist to have a few scans of your head done just to rule out anything major going on. Once you are declared a cluster head and given that id card you will have all the benefits of denied help from most of the doctors you will see. You are one of the lucky ones.. on a more serious note, click on the banner on the top of this page and read as much as you can on this site. Do not be afraid of asking a million questions! Oxygen is what you will want to get your hands on to abort your cluster attacks, this is
  10. A few things about the boost oxygen that stick out to me are it is 95% oxygen and that is lower then the medical grade witch may not be that big of a deal and only take longer to abort the attack. The bigger issue I see is that even the largest canister they have is only 10 liters of oxygen, I use E size tanks very often and even when my hits are not that bad I average about 4 aborts per tanks. A E tanks holds about 680 liters of oxygen so I use about 170 liters per attack. I did not see the pressure the boost can is at so I have no idea if the flow rate would be fast enough to support your br
  11. This is still available. If you or anyone you know needs the smaller size cluster oxygen mask please let me know and I will send it to them. this is the mask with the yellow edges around the mask and it is brand new, never used.
  12. That is good that you now have a company that will supply you with oxygen. Now it is time to start playing the game with them to get more then the one tank. I have found that the person who delivers the tank it more sympathetic and will most likely hand you a extra tank from time to time. Start out trying to collect e tanks, they are smaller amd nice to keep in the car with you. You will want more then one tank so they do not need to come to your house as often for delivers. With only one tank you will need to plan well so you do not run out over a weekend and be stuck with no o2. As far as
  13. I have a child size oxygen mask kit that needs a good home. If you are or know of someone who is in need of a brand new o2 mask kit for a child please let me know and I will send it to you. This is the opti mask kit that attaches to your regulator.
  14. I would highly recommend getting oxygen to abort your attacks. No rebounds or side effects
  15. kat Have you had your bloodwork done yet to see what your levels are? Everyone is a little different and you may need to tweak a few things to get better results. I add benadryl the rest of the D3 vitamins in the spring and fall if I think some underlying allergy is messing with my head. I have never had allergy in the past but you may have a underlying symptom that you are not aware of that has no other symptom other then making clusters worse. If your D level is still low after the loading dose you may need to load again. you can always send batch a pm with the results of your
  16. I take 120 once a day and just had a hip replacement. They did not ask me to stop taking it. I took it 2 hours prior to the operation. Good luck to you. I broke my collarbone in high school and all they did for me was reset it and put me in a brace.
  17. If melatonin is causing you other issues then yes I would stop taking it. if all you are dealing with at night without taking it is the cluster then at least you know what your dealing with. Mix in anxiety, nausea and vomiting with clusters and that sounds like a real party...
  18. you can split your injections to extend them, you can find information here and on youtube on how to do that. You will also want to look into getting oxygen at a flow rate of 25lpm and a non rebreather mast, you can also find info on how to get that setup on this site as well. A member on this site has developed the D3 regimen that has helped countless cluster heads. Poke around this site, start bu clicking the blue link at the top of the page for new members. read as much as you can and ask questions and you will get answers. Busting is a big topic that has helped most bring clusters under co
  19. MASH! HAHA the 4077 got me through a lot of busting nights.. Love that show
  20. Being negative is all part of the game, it happens to me all the time. I am chronic so I do not have cycles but deal with this every day every year. I try to take a look at myself from the outside and find it kind of funny that I was chosen to deal with this and was chosen because I can deal with this. I am a big fan of the 5hr energy drinks or anything similar off brand type drinks like this with the caffeine and taurine. Walmart and dollar general both sell drinks like this. For some push ups, jumping jacks or some other vigorous activity can also help lessen the pain at the start of the att
  21. I am a big fan of clinical trials, I have taken part in 2 of them for clusters since I was lucky enough to be diagnosed including the Yale psilocybiin study. I do not do it for a cure for me but to help find a way to get one step closer to cure the future. I would like to be part of finding a cure for my children if they ever have to experience this shit storm of a life we all live.
  22. Oxygen is the best option for aborting. you will most likely need to order your own regulators for the flow rate of up to 25lpm you can get them from amazon. You will want at least a few E tanks and 1 M or M60 tank This regulator will work on E tanks https://www.amazon.com/EverOne-Oxygen-Regulator-Liters-Connection/dp/B07L9P7V55/ref=sr_1_fkmrnull_1_sspa?keywords=25plm+oxygen+regulator&qid=1554376658&s=gateway&sr=8-1-fkmrnull-spons&psc=1 This one will work on the M and M60 tanks https://www.amazon.com/Oxygen-Regulator-Standard-Body-CGA540-pro
  23. I would not think your cycle is ending I think the Verapamil may be kicking in. It can take up to a week for you to start feeling the effects from that. Most times your doctor will give you a Prednisone taper to hold you over until the Verap starts to work. You are better off without the prednisone, that can do some harm to your joints.. MRI is good to rule out any other things that may be going on and like Freud said you will want to look into getting oxygen to abort your attacks. I also will down a 5hr energy drink at the start of a cluster to help the oxygen kick in faster for a quick
  24. I have taken Benadryl with the D3 and busted at the same time and never thought it blocked anything. I am chronic so I don't get a bunch of pain free days between bust, I did not notice any less relief with busting and taking benadryl and when I am not taking benadryl.
  25. I take both Verapamil and the d3 regimen. Verapamil around 6am and d3 between 12 and 1pm. I took prednisone about 3 or 4 years ago and just got my brand new hip! The only thing that the doc could think to pin the hip replacement on was the prednisone. I'm 43 years old. Be careful with that stuff. Dont over do it. It will keep most of the clusters away only when your taking it. Stop taking it and the clusters return. Just my experience.
×
×
  • Create New...