Alx

Hi. I also have clusters for 15 years. The first twelve years i kept working (mailman) but as the years went by the CH got more intense with attacks during the daytime so i crashed from not sleeping for months and went on sickleave. but now i am in the WIA( disability income insurance) And i do not have to work anymore. besides cluster i also have complex pain syndrome. Tinnitus and i have ASD. these things together got me a disability income. but i live in Europe. I guess you are living in US so it will be more difficult or impossible to stop working and get money from your insurance. goodluck with finding a solution for your problem

Microdosing is not really something that does anything for us I think. You need to take more and leave 4 days in between or take it every fifth day. BUT I took a full trip in December 24 and it started a very atypical cluster for me. but you never know what started it. And in the past when I was on verapmil. MY cluster also never stopped. It stopped when I quit the verap. And went through the usual cluster cycle. I never took verapamil again. My unusual cycle last December was on the wrong side of my head and it stopped free I took one mushroom bonbon. And my current cluster started 14 April.and went on till two days ago. I hope. good luck!

It is almost spooky. I had the same attack sequence in the nights. I am also getting a sleep tracker. Very interesting

It is ROLAND SYSTEM 500 and at the time a Moog voyager oldschool plus vx and cp breakoutboxes It can make sounds that scare beasts away but not ‘“the beast”

At the time I was reading about this I looked like my avatar picture. So it was like “whaaaaat?” And my zodiac sign is lion. And I am 1.86cm in height. That is probably 6feet in American?

And further back it was probably the witch trials. My greatgrandmother died in an asylum nobody knows why or what. But I think I got an idea why it happened . I am so glad I was born in 1974. Today we got O2 and bustingagents.

I also read sometime that we(ch-heads) have a leathery skin and lion manes. i thought that was very funny and it fits like a glove. Just like the above personality traits. I am diagnosed on the autism spectrum the OCPD is just like a description of autistic behavior. And the schizoid thing is just the consequence of having a cluster. And I also have a monobrow. And everyone knows what that means

My ramp up in intensity and frequency was from the 11 th of May, so I peaked a little early .

Same here. No real changes in frequency or intensity. Stijn ,Can you tell us what you expected to happen?

I’m in the fifth week of this cluster and last weeks have been hell. if it gets even worse today or tomorrow I will report.(I hope not

Over here as well. 6 attacks per day but I am just two weeks in this cluster usually the buildup is much slower. O2 isn’t helping much. Maybe once in 4 tries o2 worked als most every time until this cycle. I have to sit them out.in the hot shower again. and the L I took last Saturday was too old ? Friday is. My next busterday. I hope for the best. For all of us

having the O2 tank next to my bed and the portable tank. this takes away a lot of fear for me, I still don’t go out much when in cluster . I stopped drinking alcohol in and outside of the cluster. Regular time for waking up and going to bed. Avoid gas stations ,parfums stores. I try not to make big jumps in temperature.(warm weather //airco shop) Once 1 or 2 month a MM or L dose don’t get to relaxed and when I wake up(no matter what time) I have to get out of bed. It seems to work a little. I have been painfree for the last 2 years. but yesterday a few hours after MM. It is back… but on the wrong side,this only happend to me once.

+1 on I am on fluoxetine(Prozac) and mushrooms worked like they should. i only did the combi while out of a cluster , for maintenance.

+1 for hot shower. Before the diagnose and. Before O2 it was the only relief.

Ah at last the cure..;)