BoscoPiko

Trying to post the link again... I know just talking to at the moment but sometimes I work things out that way:) http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1247229527

Now this most likely wouldn't do much for the men out there with CH as I don't think it's possible to trick a male body into thinking its prego but...IDK. I did see a different site where a gal with CCH had started using it and had some pretty good results. I wanted to post the link here but it seems like when I try and post a link or even an emoji I get a message saying I am posing an invalid value? Anyhoo....

Oh I see. And no I don't think I could do the needle up the nose.. That sounds awful!

Just curious if anyone has had any experience with this hormone and if it has helped them or not? I seen some posts on here about how some women become CH free when prego and it made me wonder about this old fad diet hormone people used to take? If I recall correctly it tricks ones body into thinking its prego? Just wondering?

Hi Ganuchi, Are you sure about the up the nose thing? I looked it up and this is what I found: The guidelines recommend Botox is given as a series of between 31 and 39 small injections. These are given under the skin or into the muscles in and around the head of the forehead, above the ears, and into the neck. The person doing your treatment will have been trained to provide Botox for chronic migraine. (Now mind you this was a not an in depth search just a quick google). I too am super scared of needles so I don't know that I could last through the series of pokes but I do tell myself that I've made it through a 6/hr. CH so maybe I could but could I survive all that spider poison ? IDK...

Wow ok then.. I did not know that...And that's a bit of a game changer.. I think that changes things from a maybe to a hard no.....

Uff.. I know this is old but I was just set to try this out on the 28th not the actual just a consult.. Just because.. Well because I'm a chick in her 40's and I thought well maybe??? Plus if a few diapering wrinkles resulted too.. uh ok cool.. Don't care enough about the wrinkles as I hate needles so if its a no go.. its a no go but you did mention different folks different folks? So maybe?

That's ok too! Tell me I have to go to the dentist and watch the crocodile tears flow:)

About the coffee needing to be black to be coffee!

Agreed!

Dident

That's strange... I responded to this but I don't see it here now.. Any how Thank you Spiny for the response. I know

Hi there, Yes that has always been the case for me as well. This time is a bit different with the fact that August is my normal worst month for CH. Normally I start getting random spikes a few weeks prior and sometime I can ramp up on a few preventatives and hold the killer at bay for a bit (just a bit) they always find a way to come out. Since the start of the D3 which I did not load properly, I just keep spiking so I suppose that's positive....I am going to start over (to a certain degree) and see if that helps.. Thank you for the response! 8-15-21 11:30 AM 1-Spike Mild No Medication 8-17-21 12:00 PM 1-Spike Mild No Medication 8-19-21 10:30 AM 4-Spikes Medium-Nasal Medication Yeah Day! Yeah Day Yeah Day! Yeah Day 8-24-21 11:30 AM 1-Spike Mild No Medication 8-25-21 9:44 AM 1-Spike Mild No Medication 8-26-21 6:00 PM 1-Spike Mild No Medication 8-27-21 8:30 AM & 12:30 PM 2-Spikes Mild No Medication Yeah Day Yeah Day Yeah Day 8-31-21 12:30 PM & 1:28pm 2-Spiks Med No Medication

Well I did talk with the D3 super nicest guy in the world and turns out I did sorta botch it a bit... Not entirely.. But I certainly did not get it correct...

Thank you both for the responses. The spikes are the same as what I get when I get a full blown CH but just not in succession and intensity if that makes sense. I do log them (time, and intensity If its just spikes and not a full blown CH). IDK maybe I am getting the benefit of the D3 and the spikes are as good as it gets for now? I just had an MRI on March 17th so I don't think all that much could have changed from then? I just sent my blood work in yesterday so I should have that back here soon. Maybe I will just take a few hits of 02 and try not to miss my boxing lesson as I always feel like such a looser for not working out... Again thank you both!

So I'm sure this is going to be all over the place but I'm going to try and do my best to stay focused here.. I call what I feel when I am having a CH "spikes" because they feel like someone is spiking me with something in my rt. temple with something. August has always, (since I have been diagnosed, and tracking) been a doozy for me. This time around is different. Normally, a single spike here and there would indicate that a full blown banger was coming soon usually within a week or two. I started the D3 reg of which I am sure I managed to F up even though I taped the destructions to the fridge... Something must have been working as I just kept getting spikes most days just one or two and the intensity level was minor in comparison to what I am used to (not sure you ever really get used to it). Anyhow, my questions that I am hopeful someone will answer are … (Also I am grateful to just be having rando spikes so don't get me wrong please). 1. Do any of you get random spikes/shocks/you know picks to the noggin? 2. If you only get one in the day do you go on about the day like you don't need to be careful that something you do will bring one on? Like do you still workout? Go do something that makes your blood pump? 3. Is it normal to have just a random spike here and there nearly every day for over a month an a half? (Tell me I am still episodic)? 4. Does anyone use oxygen as a preventative verses an abortive? 5. I have been getting random minor spikes in the left temple, is it common to switch hell sides and could this indicate that I could be switching sides? I know this is a big ask I'm just a bit overwhelmed with this because I feel like if I'm not having a headache (hate calling it that) that I worrying about when I will. On the upside I did get my blood test (home test kit) mailed back in today so at least I'll know how much I messed up the loading. Seems cut and dry but leave me .... Any way I would really like to see what you folks have to say. Major thanks and may your brain stay off the fritz!

Wow. Cool who knew .. Thank you for the response to y mini melt. I love her! Although I am a Golden girls fan when I am in cycle (don't ask me why) ..?? Anyhow. I'm not brave enough to be a buster yet and am trying different ways of manhandling my mask.. Thank you for taking the time to poop.. lol joking pop on here and respond to me:)

Well, I suppose there will be no removing the Hypo then… Joking… And yes, I did find a new Doc after she asked me if I could tell the difference between the types of headaches I was having (I’ve only ever described one). I do have a decent Neuro now, but I sure do wish I could find one that actually suffered from CH themselves… That I think would really be something…

I keep trying to reply to this and I'm getting an error msg.

Thanks for the info! No labs as of yet. I ordered a home finger prick test kit that was suggested to me by the D3 hero on here because my handy dandy insurance provider wants me to go through a bunch of Covid hoops to enter the lab and I'm just not down for that junk. I should have the kit sometime next week then be able to mail it and get the results in another week or so. Thanks for the response to my scattered rant and 7lbs ouch!

I suppose I'm just confused, but I assume like many others that are experiencing pain of this magnitude, you research and try to learn as much as you can? One thing I keep coming across is biological clock. I get that sleep is a factor and I cant sleep when my brain is on the fritz but I always thought I slept ok prior? My husband did tell me I had a bad habit of cursing in my sleep which I thought to be a bit funny but what do they really mean? I'm lost on the biological? He also said I am a teeth grinder. No I don't have a tooth ache. I remember the day this came on and I was just sitting there minding my own, got up to let the dog in and said F! what was that! I thought I had a brain freeze without Ice then one by one they pilled on in consecutive order and started to kill my brain. Bottles of NISADS started to pile up as did the desperate calls to the my health care provider. They told me I had migraine and to go lay down in a dark room with a cold towel? What? I don't think you understood? This just jumped my brain? Attacked me from the inside out? No dark room, no cold towel no way can I lay down? Did you hear me? My head is trying to kill me with an ice pick every three seconds? You get that? Quickly I started to hate her as she started me on a propanol and gave me a script for 25mg of some triptan. None of this helped. I later learned that she gave me a triptan dosage of what would have been given to an infant with migraine.?? Then one day she asked me if I could the difference between my headaches? I hung up. Had no clue what I was going to do... Just knew she wasn't going to help me.. I don't know why I'm writing this I really don't.. I suppose I just am .. I'm not brave enough to bust.. But I have a mouth on me sorry! I keep thinking I'm out of this cycle and then spike to the brain and I get mad! But its really been better since the D3 REG so this is a vent! That's all (I haven't even had a spike today its the depression) it will pass.

Good luck! I only wish you the best!!

Uff.. This one made my eyes sweat a bit. Just sweat mind you! I have managed to drop down to 480 on the verap after starting the D3 reg introduced to me by some saint on here. (I had started having heart palpitations at 600) so I was happy to decrease and hasn't happened since. I just got done with a quick load D3 and things are a bit odd as I'm having spikes every day but they are so much more manageable (like you can ignore them and not rush for meds). I am now on the taper down and have a blood test kit coming to get labs to see if I reached the correct initial dosing. I only had 2 spikes today so (good day so far) trying to take things in stride and learn from folks that have not offed themselves having this much longer than me. We have a huge fire here in Unicorn land (CA) That is now only idk 7 or 8% contained and smells like I'm having a bonfire in the back yard I am assuming something is going rt with the D3 as I've only woke up screaming once this month (my worst month as far as I know)..

First laugh of the day! and thank you for the info

I want to but I'm too scared. I don't think my mind could handle it. I used to have such bad anxiety that I would pass out (prior to cluster) 10 years ago.. My mom had bad mental disorder offed herself in-front of a car. I don't trust my brain to bust. IDK