BoscoPiko

Wow! This was intense. Sounds like you really went through the roughest time EVER! I am so glad that you are doing better.

I've never tried the candy. Maybe it would taste better as a candy.. I'll have to give it a try.

Me too.. yuck but worth it if it helps..

Wow cool to know. I heard about the ginger just never knew you could get it in capsules..

Hello all, I'm not sure if I'm out of this everlasting gobstopper of a cycle (been getting one week off only) in between bangs. I am just curious if anyone else is constantly shadowing? I feel like I have constant pain on my rt temple (pressure, bulging veins, noticeable discomfort) even when I've had a 6 month break? Just wondering if anyone else deals with this?

You are spot on. I do best when in a tad bit of remission but am inspired by pain...

I love how you are able to relate most back to music cool skill. What you just posted on here is something I've (believe it or not) listened to with my pop. He is an old hippy with a mind like nothing else. He made me listen to Simon and Garfunkel, Dr. Hook, Fleetwood, Floyd, Darryl Hall and Oats, Mr. mercury and the list could go on for days. Yes I'll take all smiles. Your singing voice included...

Thank you so much! I tend to get sad when I can't seem to break away so I write. Would love to hear you sing!

Brain for sale Just slightly used Cash or best offer Trade-ins welcome too My cranium seems to hate me But it may like you? A Few malfunctions That must be disclosed It thunders and lightnings Loves to impose This brain that I have Is a drain It’s a drag It keeps me from sleeping Or enjoying life too But hey, who knows it might just like you?

This was a very good bit of information. I've been trying to wrap my head around the "circadian" "diurnal" meaning as associated with CH. Uff you smart people.. I am still so confused! I get the basics but??

Ok that was flippin funny.. I've been spiking all day and depressed because I thought I was done, (out of cycle) and that just made me laugh HARD..

I don't think it's odd anymore. I couldn't see from your profile where you are located but I am in (don't dis me) CA. I have had ash reining on my truck for months from the Caldor fire and have been stuck in cycle for 2 and a half months with one week off only in between attacks. I am newly diagnosed with CH and have only been surviving them for a bit over 2 + years now but this is the longest I've ever been stuck in a cycle (I usually get around 4 months off) longest duration off was almost 6 months. I've got 4 air purifiers running day and night and again today I'm spiking out.. Exactly one week off and the smoke blew into the valley today. I can say though that the D3 has made them manageable enough that I've been able to not use any abortive medicine. To start a cycle on the exact same day of the month is somewhat interesting however...

Odd.... I seriously had this song in my mind seconds after my post!

Love the term "anger sponge". I seriously need a stash of those!! I must admit that I have often thought of CH as some sort of cruel punishment for something I did wrong.. So I suppose the thought of possession is not far from that...Maybe our minds just want so badly to believe that somehow, someway it's something other than a neurological un-curable issue. I find that I prefer the worm in the nose theory I read on here while poking around...Who knows, maybe one day a cure will be just a shot away...

I sure act like I'm possessed during an attack sometimes LOL..Curse words randomly flying out of my mouth, odd leg jerks etc. However, I'm fully aware of what's going on so I would have to say no. Wish I was then it would be simple, we could all go get an exorcism and call it good;)

Yep spell check has no idea...LOL

So a quick search on the term you used for your type of attack is more of a symptom of a type of terrible migraine (wouldent wish it on anyone)! Partial paralization on one side of the body or the other accompanied by pins and lovely needles.. ouch!!!! Again I'm not of much help but holy hell don't want you to think you are alone that's for sure! You can message me any time you like. I'm pretty good about checking in on here of late. (I kinda like it here).

Ice cube on the roof of the mouth while breathing freezing air. Added to the the tool box!

Hi Gemma, I have cluster as well and yes, it's no bueno. I have never had one in the way you described. I suppose it could be quite possible to feel as if you can't move (maybe pain sensory over load)? I've only been dealing with cluster for a few years so I do not know as much about medicine as others on here but I have received some really good advise from asking.. I do know all about the lonely feeling that can accompany a cycle. As long as you have found this site (and you have) you are not alone. You can do searches in the forums and just poke around, lots of great info on here! Try and keep your chin up!

I'm supper sorry you are going through this.. Spiny just gave you the Bible. Can you give us some background? We all tell eachother what meds. Etc. But if you are the private type I get that as well.

One day down. (Off the toprimax). feel like I should be on a program for whatever abusers.. no nothing new to report. I'm happy swam in the pool and and got the 500.mg. quercertin today.. never know if I spell that correctly.. anyhow I'm trying..you folks are the best..!

I understand the frustration and do not blame you for it one bit! Neat that you have the knowledge to go out into the forest to find some of what you may need for yourself. The cost of supplements is outrageous!

Love it!

Hey Spiny Yes! Mr. Bosco is indeed an Abby. He says thank you for the compliment You are so correct (again) I already know that the Topamax is not helping so I just need to stop it already. Just caught on to why you were spelling it that way LOL. Thank you for once again being awesome! (Sorry about your kitty passing)! 20 Wow!

Yes indeed, I have received so much helpful advice and information on here. I feel bad for any cluster head that has not found this site...Thank you all for putting up with me