BoscoPiko

I'm just curious if any other CH folks have ever had a continuous eye twitch on the cluster side after a cycle? For myself this started about 3 years ago after my first cycle. The constant movement of my upper eyelid is obnoxious. I can see it hopping all aroud in the mirror and it makes me a bit self conscious as I'm sure if I can see it dancing all around others can 2.. just wondering if it's just me?

Wow .. I didn't think anyone else knew about her!

Not at all... I don't claim to know even half of the info you've posted..I do believe you misread my post. Was just a simple question as I was curious due to the amount of info you seem to know about the disorder also I've never attempted busting to scared to try...

Just curious Juss, with all this research you have done have you ever reached CH painless? There is so much information that you have posted I'm just curious if you have ever reached cessation of CH? I do believe that most cluster heads have done a shit ton of research in an effort to become and or rid ourselves of excruciating pain.. Your research seems to be on a diffrent level but still I wonder if you have managed to stop the thunder?

Hi Ta, There is a plethora of info on this site specific to the D3 regimen. In the top search bar of the forum just type in D3 and be sure to follow the instructions from a user named Batch (handle XXX) there is more to making the D3 be effective than just taking the D3 (you need to take the co-factors). You never mentioned oxygen so I am unsure if you have a scrip or have tried it or not but many on here swear by it to abort. It works for me from time to time. There is a video on here that goes over the breathing techniques that seem to be effective with a non rebreather mask. I was able to get the intensity of attacks to be manageable without the triptans on the D3 reg. I so understand the frustration with folks mentioning migraine etc. I think a majority of us have gotten that response a time or 2..

Hi Tamari, I am also episodic and truley understand the feeling of constant lurking shadows. I have had them since my first attack. At the advise of some pretty awsome people on here I started using ginger, first tried ginger tea but didn't like the taste so I started taking 1,000 mg organic ginger capsules and I have had several clear/no shadow days. Maybe give it a go. Hope you feel better soon.

LOL Jon this post made me chuckle I have loved this group since the 8th grade as did my Dad.

Always thought that Christine was better than Stevie but that's just me

Love this gal. Such pipes!

Another genera but these guys are cool ..Also shout out to @xBoss for this fun thread!

Diffrent ghenra of music that I appreciate. Dan is just good and is also a part of Alison Krauss's band Station.. https://music.youtube.com/watch?v=K3RjWJMOuSQ&feature=share

Sorry your dealing with a high cycle at the moment. Thank you for the info.

Thank you for that explanation. I guess I've been confused about episodic vs chronic

Is that because you get hit daily? If so I really don't get consolation from that fact.. I wish I could be stronger but I feel maxed with the 3 month cycles I already have every year. Idk. maybe I would adjust like you have I just don't feel that strong.

I sure hope to never go chronic...

I'm not as old as this artists time of fame but my Dad introduced me to his era of music when I was a kid and it just stuck

One of my favs

Oh boy.. The nose blowing had me dying!!! Half expected to see a big booger come flying out

Just curious if you have tried the rapid release or the ER (extended release)? I am on the ER and many people say that it doesn't help them but the rapid release has been mentioned on the site with pretty good success (not complete cessation but cutting duration and what not). I would definitely start the D3 as it really has positive responses from many on here.

Here is a free app you can check out. It is rated well but I have not tried it myself. https://apps.apple.com/us/app/my-pollen-forecast-allergies/id1244428929

This sounds awful! I'm so sorry you are dealing with this.. oxygen dosent work for you? Do you have access to it? Have you see a neurologist or headache specialist? You sound like a veteran at this? I'm not only 3 years in and um I hate it. Not a helpful response but any respons helps get more attention..

I just had this happen to me as well. My eye on my cluster side was tender to the touch and it hurt when I blinked and the outside corner was red. I believe it may have been an internal sty as it never showed up on my upper or lower lid and went away in about a week.