Sue mcdonald

I rly didnt smoke. Nor do i. But my parents sure did! And they had "cocktail parties' where everyone smoked n the rooms were full of smoke. Ive had them for decades only recent dx. Also get migraines, tension has, tmj has, normal has, has w no pain, cha w no pain. So i tend to think along lines of - headaches... w.out labeling... i was originally excited to find the label. Dont ever give up hope, as a child? I fell off horse, ruptured spleen n it healed naturally in s.a. written up in journal n changed face of ppl medicine. I also had a 2 yr old colt who got a navicular bone infection. Top vet in u.s. (wrote lameness text bks for colleges) told me he cldnt be saved. I brot him home n said f* that- im saving him. Point is? I did figure out how to cure that. Doc told me to tell him exactly what id done, that he had ppl who'd pay a million dollars just to save their horse's life (not even sound, just alive). He helped me by drawing diagrams, so i explained. It was written up n now they r a million miles past that. Done some other exciting stuff.. but don't give up hope. Kinda also ascribe to the body being a vat of basically water w chemical rxns all over, all the time. So sonetimes changing the chemicals can change the end result? Like adding in a cigarrette. Ive also seen correlations to hazel eyes, parent being engineer in paper industry. Etc. Neurologist told me, tho, ha's wld change over time. Another doc said thell often resolve w aging. Mine are slowly (oh so slowly) decreasing in both pain & intensity. How do u deal w the pain? Has anyone tried chemically cauterizing cranial nerves? Wld that help? I suppose that wld presuppose nerves r basic problem, mmm?

Have a nice vacation juss. Double??? Vision - dont think so...

Cant get other pic dwlosded. It shows more swelling of R nostril, eye, face.

And id swear... my head has changed shape. It looks like normal on bottom, but top is expanded in like a more swuare shape, bigger than on the bottom - like bones enlarged due to ... swelling abovesome days my bags are in my eyes and some days my bangs look way too short and like they want to bounce out away from the top of my head. If i cld figure out how to put pics on here, i will.

Inner corners of eyes.... During & after CHAs. Hone after msybe 60, 90 minutes n eyes r white then.

Ive used msm last 20 years for asthma along w inhalers. Rly cuts down on inhaler need. Its supposed to be potent anti.inflamatory. i can take as much as i need, whenever i need it. U have to titrate it up sliwly to get bld levels cant start out taking too much. I also use flex free ( i use horse supps) which has manganese n other stuff. Started using manganese back in begin 70s for shin splints. Kinda knew then my body was different, was using hi prot by then too. Started w horse supps because i had it. Had mare w thin soles did lotta injections nav bursas, coffin bones, pastern jnts, hocks.hocks.hocks. sigh.. so expensive n i was so broke then... so tried supps n msm was magic cure for daughter's mare. So i just had it. Ive seen it said if ure dulfa senditive? Dont use it& ive seen it said if sulfa problematic? U can use it anyways... Using too much? (Doesnt seem to exist for me can cause ha's and gi upsets.

I stay happy by remembering to believe in myself. In chile? Its a heck of a great story... crux of it was in hospital i ran into a man who hid out in my h room. He whispered in my ear? I understand. I like horses. I like to ride, too. I was completely out of it but i heard him. I believe i had dissociated due to pain, took days to get to hosp, plane ride thru storm, i was supposed to die. Lips n hands had turned blue. That man i later ended up finding him, he had gone there to explore native plants & cures. Like datura- which i actually saw in back of an ox cart, and the seeds of the bola tree (boaa tree?) Hallucinogens. Beginning of looking into that stuff by u.s. Its kinda funny that this many yrs later? Here i am. But see? Thats how my mind works - im often at the answer waaay before im even aware the question is coming.;) Thats 1 solid way i stay happy. I believe in myself. I meditate. Ride horses, train my dogs. Read books, travel n learn. Hot mineral springs. Learn. Help others(was 4h leader horses dogs for 10 yrs here). "Nothing forced, or misunderstood, can ever be beautiful."

I think theres a lot that cannot be qualified, much less quantified by our medical experts. We think of our docs as gods - until u run up against something they dont understand - then they throw u away onto the crazy pile. I dont have much respect for psych field. A few r great... many not, cant go into all that now. But? If u were severly hypothyroid, hurt bad in a car accident, other injuries, had fms, went thru divorce from hell? Fought in court *9 years* after divorce? Hi stress job alone, gained 60 lbs.... u think u might not have some strange sx? Then ud be the stupid one.... i am completely okay with my mental state. I can live w what ive done and whats inside my head. I dont dissociate or get depressed rly, altho some ppl thot itd be real easy to push me into that... if u chose to think im crazy? Then id have to kinda pity u as someone who doesnt have much sympathy or kindness in you for soneone who has bern and us suffering greatly eith the same thing as u. I had my r lier tooth pulled it erupted 4 times. Right where trig nerve curves up. Dentist? No idea cha but shit to numb jaws? Helped cha... i used to follow up n ask others w migraines if it felt like their forehead was sliding dwn into their eyes when they got a migraine. No one said yes. Been hunting the chas for long time. If u chose to slsp the crazy label on me n dismiss my pain n suffering? I have to just turn my back on u n assume u r the one mirroring ur own psych issues- Thanks i need to read now.

Becsuse if dobes input? I tend to weight the inflamation histamine deal more strongly. BAD is supposed to be way to tx that. And yes i coincidentaly found benedryl to be drug of choice to take a lot of. I seem to be able to exit drugs easily (have zero idea why) but psin i cant and its led me into loraz, robax, t3, and fior to help. 72 hours of continuous pain? I cant even begin to tell u how bad that can be. Ive found 3 other women within 20 mile radius who also have these. Im thinking its way more common than is known. 1 lady told me she had very good insur n they did dna testing so she takes trazadone..to sleep at 10 pm out by 11 pm every nite. She works as waitress fly j in big springs, ne. Ive had so many drugs thrown at me.. its dizzying, usually make insomnia worse or pain worse, some make both worse:( Up white sulphur hot springs, mt lady told me i was prolly reacting to inert ingredients - maybe so. Another lady at saratoga wy hit springs told me itd take the death of 1 of 3 ppl to make this stop for me... obviously moi. Dunno kno exactly who other 2 are. Its just not good whats happening. Theres a lot of cluster migraines out here. Reading...

Not quite the answer i wss looking for? But thank you. Theres a lot of info in here that i am going to read and assimilate. Going into that mode now.. itll shut me up for a bit. But that's okay. They just tried to block me seeing any doctors = no pain meds. Soent col weeks bashing my head I hated to even admit that part to people... i live very rural, was very klan, last 5-10 yrs have huge new inflow of mormons... very problematic area to live in.... our county? We have 1 doctor, 1 lawyer. Its just tough. Gossip rules (lies r fun tho just strange here.... so getting doc is problematic. The man who sat w my ex while he got drunk n planned out my murder in 1984...? His old cop partner? Was w him when he tried to murder me? Was put in charge of mj stores, whi gets em who doesnt. They put a mj store in my teeny town - gave em access to me, too. Just crazy long story. Dont like to ho far into it cause its do hard for some normal ppl to understand.but i keft work on stress dis - they were basically confounded by my sx. Really. 1 doc said ptsd, 4 others disagreed strongly n got together n wrote letter to refute ptsd dx. I was hypothyroid n they didnt check that. And had fibromyalgia and thst simply didnt exist then. Sometimes u just have to ket go of past and just walk forward. Ive had migraines n cha since i was 15 (53 yrs). So cha as a dx was so far off their charts? Look, i went to my doc to ask to switch from t4 to armour thy in 2000? And he simply did not know what armour thy was... fell off horse in chile (n u think my story lately sounds crazy? Chile?+ me? = really crazier but there u either lived or died. In hosp long time, then hotel w priv nurse... my mom took me m xrays n doc notes to u if m teach hosp to make sure id be okay to ice skate? Doc wrote it up 64 it waspublished and helped change face of medicine in u.s. now if kids get lacerated spleen in accident, say? They dont immediately remove it... i cant begin to tell how many docs refused to believe me cause they were taught ud die if spleen ruptured. I didnt? I kinda have a history of doing things like that thus why i thot med school might be good avenue but i cldnt do it. Took me until 2018 to get cha dx. 45 yrs- i still run into docs who just dont get it. Its awful hard. I hate e.r s.. but theyve got o2. I may be able to get o2 from welder, his daughter had an odd disease. He may be sympathetic. Im going into reading mode for now.... Thank you.

Does anyone else ever get a large blue vein that runs diwn from scalp? Dwn middle of forehead when u have cha? I got this prolly back 2015. And last cpl years? Theres a 2nd one next to first, slightly thinner. Along w stretch marks on big muscle groups above eyebrows? I hate that this has cost me some of my beauty...

Started ha's in h.s. then used drugs (hippy era we all used em) for abt 18 months. Ha's went away '69 to '80 when i hurt lo back & migraines started. I never connected any of this before. Robaxin, tyl3 lorazpm slp, got great p t. Went from northeastern junior college prenursing to ucdenver premed (w murder att in between - long story, my ex's friends w some bad guys). Thats when migraines went L on me. Upon awakening like lite switch? Bad pain-->cod sulfate. Migraine w no pain, etc... end school. It was during like 2004,5 i started using thy t3? 1/4 tab + 1/4 lorazpm together because i was starting to go hyper. Rpeat as needed... what was happening? But i didnt realise it? Was i was starting w insane cha n didnt kno it. But the thy t3 stabilized bld sgr levels and the loraz now i kno its seen as system stabilizer. For ten yrs it worked until it didnt. It was simply what i had n i tried it was super interested to see cgrp protocol as it hooked into thyroid n thats implicated in cha. My view? Is start of it? Is when bld sgr levels tank, thy levels tank, whole endocrine system tanks... thyroid does quick work of stabilising whole endocrine system. Loraz? = System wide stabilizer.... stopped my cha dd for 10 yrs. Cldnt stay at farm, lost h trailer. Moved 8 m N got pushed out moved 200 m N, got pushed out. Lost horse moved back here.. then traveled, turned into lemonaid, mich u.p. oregon, wash, calif, nevada, arizona, canada, minn, wisc, wyo, and Mt learned a LOT. 2016 got into f.hse. left for mt, came back Nov '16 n to stay. Chas got real bad when i moved 8 m N. Had to stop all opioids, no codeine, 200 2 mgs lorazpm every 3 wks - super bad vis aura? BP 200/100 for a year solid (norm for me was 116/72). Cafeine added + inhaler beclamethasone + wildcherrypepsi (or dr pepper). Caff screwed up electrolyte levels w vomit. Found fioricet 2013. Great help, decreased loraz still on robaxin as it works on smooth muscle on arteries. That seems to be my regimen now? What worked since 2013 fioricet, robaxin, lorazpm, tiny amts of tramadol slows or stops tinnitis, which i didnt even kno i had. As cha r resolving last few months? Im using much lower doses rx. Pain is.. slowing so phase of hit head? Is extending.... but acute long (72 hrs) pain? Cha where u wake n cant even move, only groan? Not there now. Used to keep emerg pain max dosage rite by bed w pop so i cld reach n take it w.out moving. Used to keep emerg dose in spec pill bottle so i had it ready if bad pain hit, open mouth? Pour in n swallow w wcp. Back now to using t3 + loraz n it usually stops it, or slows it dwn substantially. Not a doc, cannot prescribe or dx or give med advise or tx plan. But if my own info helps someone? Good.

Taurine was discovered like mid 70's as becessary for cats to live. Its in raw meat and cats were veing fed dry cat food and dying young. They studied it n figured it out. Added taurine and cats live longer. Cat food is also hi protein. The john hopkins ketogenic diet is strictly controlled hi protein, hi fats, and very lo fluid intake. It works to slow stop intractable seizures. So if taurine helps your cha? U mite want to consider adding hi protein... there seems to be a link somehow w cha and seizures. If taurine helps u? Seizure meds might maybe help u also... cat food is uaed to slo stop seizures in - dogs. I had a doberman, jill, who used to fet running seizures. A friend told me abt cat fd? I thot she was nutz. I remeber staring at her. She thot i didnt believe her, it was just so extraneous i cldnt take it in. She went n got dome cat foid n said, here. Feed it to her. I pried open her mouth. Pushed a few down her throat. Did it few times, she was going into deep seizure w locked jaws. Then she began eating the cat food. Dogs will eat as much as they need to? To stop the seizure and then dogs just stop eating it and seizure is gone. Just info.... for u to think on... from an ex ucdenver med school student. In my house? I always keep a bowl of cat foid as well as bowl dog fd and water.

There was a couple of pists on old web site about scuba divingvand using oxygen tanks. I wld get my cha? (Started when i was premed at ucdenver) and often wld go N and E to mountains at higher altitude. I could not get O2, had rx for it but o2 comoany bever got it in for me, i was told to go home n wait for it. It never came. Instead i got 180 fioricets, 100 tramadol, 90 lorazpm, 90 baclofens, 535 robaxins& 30 temazepms/ all each and every month. App the goal was to et me severly addicted to drugs? Then do the injections w botox that singed cranial nerves? To see if i cld go iff the drugs? Wld the inj help pain? Proranolol injected w botox? Causes memory loss. I refused to do it again vecause i didnt want to lose my memory. Ladt inj's? My memory got pretty soft for a bit. I was in physical shock from whatever all they injected w botox and propranolol for 6 months, 3 months solid.

Causes cha if u have low BP or pots or nmhypotension.

Anyone else get them ?

You might wantvto compketelyvdustegard any and all psych studies onbthese topics? If i was in luded? I was flat assed tortured. Suzanne mcdonald Sedgwick colo Ex ucdenver premed student I bought a doberman puppy (my breed) she started alerting to my cha. She pretty much started being my burse and wld go over me, breath, belly button, underarms, chest, lungs, i mean shed go over me. She also chks other ppl out. I used to think my migraines were facewide across forehead. She centered them as being abive my R eyebrow and past pictures showed increased swelling in those areas. This gave credence to cha being an iffshoot of histamine. Histamine is inflamatory marker for disease and early death. Its aldo a marker fir propranolol causing histamine release. My sec dog has helped me. Shes not pain.meds.. but shes here for me. I am living in fear of being locked up, again with no way to get out.... The man who was locjed ip in psych ward in restraints - ya thats one fear...

Judge resigned got new pd#2. Fired him few days back, he lied to ne andctried to gaslight me.. in process now of rewriting new letter if complaint. Was forced back to holyoke for lower refills on rx to get me to p clinic. What im asking for ur help w? Is there a legal way to use psilocybin or lsd w no-zero hallucinogenic ? Sleep is also ptoblematic.

Grew up ice skating and riding horses, many falls.Started w daily headaches on bus ride coming home from h.s.. Headaches resolved. Until 1980 when i hurt lo back. Then migraines started.... 1987 bad car accdt 100+ mph, dbl impact, braced with both arms extended, whiplash side to side, then front to back. Bad neck, tmj, thoracic outlet syndrome, carpal tunnel. More t3, robaxin. Left work 1989 hypothyroid (they didnt chk it) and fibromyalgia (didnt exist as a dx)... Migraines got worse... 2010 had to quit college- migraines got weird, switched on upon awake, no pain, pain worse. On gout meds 2004 aprox. ~2003 started regimen of 1/4 thyt3 w 1/4 loraz. BUT? What i was doing and did for 10+ years was i was stopping the CHAs in advance completely. It was when only tools u have r 3 & lorazapam. it worked. Until it didnt work. By 2011 i was having CHAs where id beat my head against the steering wheel. Lasted up to 72 hrs pain n u're like a whipped puppy. tried to move 2011, 2012, and 14, 15 n 16. Wild Cherry Pepsi, (or dr pepper), lotta benedryl, lorazapam, msg (Chinese food), chocolate helps. Opioids make CHAs worse. Kno 3 other women in 20 mile radius who also have these CHAs. Statistically anomalous. Did year+ botox - barely helped. I simply cannot use anything illegal. CHAs r extreme.