JubJub239 Posted March 13 Share Posted March 13 Hello fellow cluster sufferer here I recently spent 5 days in the hospital because of the D3 regimen. I followed the regimen down to the T and the doctors said my kidneys were actively failing. They said my calcium levels were critical in my blood and spent a week trying to get them down. I have been on the D3 regimen for about 10 years. I am not here to blame anyone, but I am here to tell y'all to make sure to take your blood tests and get checked out 1 Quote Link to comment Share on other sites More sharing options...
Dallas Denny Posted March 13 Share Posted March 13 Thanks for the post and the reminder that these tests are an integral part of the D3 regimen and very important!! 2 Quote Link to comment Share on other sites More sharing options...
BoscoPiko Posted March 14 Share Posted March 14 Sorry to hear of this! Were they able to narrow down the cause as vitamin D toxicity? Quote Link to comment Share on other sites More sharing options...
JubJub239 Posted March 14 Author Share Posted March 14 1 hour ago, BoscoPiko said: Sorry to hear of this! Were they able to narrow down the cause as vitamin D toxicity? Yes, with the hospital stay and calcitonin they were able to get my levels to where they needed to be before something really bad happened..... I felt compelled to come to this forum that has helped me so much in the past and give this warning.....please get regular blood tests if you are in the D3 regimen like most of us are 2 Quote Link to comment Share on other sites More sharing options...
KinginTn Posted March 14 Share Posted March 14 I am sorry this has happened to you. I very much appreciate your post ! I have been on the D and cofactors for awhile but have only been getting my D levels checked. To be clear I need to get D levels and Calcium levels checked to avoid problems? 1 Quote Link to comment Share on other sites More sharing options...
CHfather Posted March 14 Share Posted March 14 This is what Batch has written about testing: "You will need to see your PCP/GP for lab assays of your serum 25(OH)D3, calcium and PTH. Adjust the vitamin D3 dose to keep the PTH serm concentration between 20 and 14 pg/mL and still keep the calcium serum concentration within its normal reference range to obtain the maximum therapeutic effect. Once at a stable vitamin D3 dose, annual labs are sufficient. It’s important to drink 2.5 liters of water during the 24 hours prior to the blood draw for your labs. Once you’ve established a vitamin D3 maintenance dose that keeps you CH pain-free, an annual set of assays is sufficient." There is more information about why these tests matter at Cluster and Migraine headache treatment protocol - Sept 2023 | VitaminDWiki 3 Quote Link to comment Share on other sites More sharing options...
KinginTn Posted March 14 Share Posted March 14 Thank you very much. I will show this at my next labs date ! Thank you again Quote Link to comment Share on other sites More sharing options...
JubJub239 Posted March 15 Author Share Posted March 15 14 hours ago, KinginTn said: I am sorry this has happened to you. I very much appreciate your post ! I have been on the D and cofactors for awhile but have only been getting my D levels checked. To be clear I need to get D levels and Calcium levels checked to avoid problems? Y 14 hours ago, KinginTn said: I am sorry this has happened to you. I very much appreciate your post ! I have been on the D and cofactors for awhile but have only been getting my D levels checked. To be clear I need to get D levels and Calcium levels checked to avoid problems? Yes ...get your calcium checked 1 Quote Link to comment Share on other sites More sharing options...
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