charles87sf Posted 1 hour ago Posted 1 hour ago Hey all! I hope you are all well and relatively cluster free/remission... I have some good news, and some bad news. Good news: After years of asking and pushing for oxygen therapy, I was FINALLY given a prescription! Dr. put me on 8-10 l/m for 5-15 minutes. Bad news: This is two fold. First, my insurance through Cigna is now denying my prescription for Emgality. I've been on it for over a year and it has helped tremendously! Now that Cigna won't cover it any longer, I won't be able to take it. I can't afford $800/shot... Second, (i'm hoping some of can help me out with this one....) the oxygen therapy caused what I'm reading as a "rebound" effect. Can someone educate me further on this? I received my first tanks last night around 6pm. At 9:50pm, I started feeling the initial pain of a cluster coming so I figured it was time to give the oxygen a try. I followed the prescribed amount and started at 8 liters... the pain was gone within about 7 mins! Halleluiah! ... But there's a catch... I woke up in the dead of night around 3am with a hard hitting attack. I immediately went to the oxygen and breathed again the prescribed amount. Same, it went away in under 10 mins of breathing. Went back to sleep... Sure as shit, 645am comes along and I wake to ANOTHER cluster. What happened?! Up until last night, i was having avg 2 a day: 1 shortly after lunch time frame and another just before bed(9-10pm). I've had attacks in rapid succession before in the past, but it's been a long time! The worst cycle I've had was back in 2018 time frame and I peaked at 6-7 attacks/day... I haven't had attacks in rapid succession like that since then. I did a quick google search this morning and briefly read something on the "Google AI" that cluster rebounding can occur with oxygen therapy. I decided to post on here to gain additional information. Thoughts? Suggestions? Past experience?? *Side note* ... Is Oxygen always that cold coming out?! Yeesh!! Quote
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