Psiloscribe Posted July 29, 2015 Share Posted July 29, 2015 You are hearing it here first. Clusterbusters is very happy and excited to announce the opening of a very important research study into the genetics of cluster headache. This study is currently recruiting people for possible participation. This study is a collaboration between Clusterbusters, Dr. Robert Shapiro, University of Vermont Medical Center, Dr. Guy Rouleau and McGill University. We are looking for individuals who have received a diagnosis of CH from a doctor, who have at least one immediate family member who also has received a diagnosis of CH from a doctor to participate in the study together. Two (or more) family members must agree to participate. We are currently contacting individuals that have joined our patient registry or completed a previous Clusterbuster’s survey and have indicated they may be good candidates through their answers and information. We will be contacting people in smaller groups so it may be some time before we get to you but we will be getting to everyone that is on our patient registry that meets the necessary criteria. Should you decide you’d like more information, you will be given contact information. You do not necessarily need to reside in the USA to be a possible participant. If you wish to be contacted to see if you are eligible to participate, you will need to first be a member of our patient registry. If you have not already entered your name and information into our registry, you may do so by visiting the following site: http://tinyurl.com/n9ou73a Regards, Bob Wold President, Clusterbusters, Inc. Quote Link to comment Share on other sites More sharing options...
spiny Posted July 29, 2015 Share Posted July 29, 2015 That is awesome Bob!!! Finally CH is getting some of the attention that it deserves. Quote Link to comment Share on other sites More sharing options...
Bejeeber Posted July 30, 2015 Share Posted July 30, 2015 Awesome indeed. [smiley=thumbup.gif] [smiley=thumbup.gif] Quote Link to comment Share on other sites More sharing options...
Psiloscribe Posted July 31, 2015 Author Share Posted July 31, 2015 Thank you. Yes this is huge for everyone with cluster headaches. It is finally a first step in something that others will now be interested in working on cluster research that will hopefully lead to a cure and not just more ways to try and treat symptoms. I want to thank everyone on this particular message board for years of hard work and dedication to helping others. This has grown from a small private group on yahoo to being able to hold conferences that doesn't have enough time in the schedule to fit in all the doctors that wish to speak to our group. To all those that have spent so much time keeping this board open and a place where everyone can come for help. for all these years, I can't thank you all enough. Proud to stand with all of you together. We may have always operated outside the box and have had detractors along the way, and still, but standing on the truth, with conviction, can still get results. Peace, Bob Quote Link to comment Share on other sites More sharing options...
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