Jcdonny Posted September 28, 2015 Share Posted September 28, 2015 I've been getting cluster headaches yearly for about 10 years, this year has been by far my worst year, I go to the doctors and get laughed at when I mention oxygen might help, my last appointment last week I was told that I shouldn't believe what I see in the net and that I should take paracetamol and go to sleep. I'm actually at my wits end, and unfortunately I'm not sure how long I can tough these out, anyone else had a similar experience? Quote Link to comment Share on other sites More sharing options...
MoxieGirl Posted September 28, 2015 Share Posted September 28, 2015 Hi Jcdonny, That sucks. I think my first response would be to kick them in the balls, but maybe that wouldn't be helpful. Apart from that, find another doctor. Push to get an appointment with a neurologist. You're obviously dealing with a clueless person. There are good doctors out there who understand, or at least are willing to try and help. You are more likely to find help with a neurologist. There is also a good headache clinic in London. The neurologists at Addenbrooke's Hospital in Cambridge are good, if you're near there. MG Quote Link to comment Share on other sites More sharing options...
Jcdonny Posted September 28, 2015 Author Share Posted September 28, 2015 I'm in South yorkshire, I work away all week so I'll make an appointment for Friday and push for a neurologist. I've asked to be referred before though and was told they won't refer me just for a few headaches. Twats Quote Link to comment Share on other sites More sharing options...
Dallas Denny Posted September 28, 2015 Share Posted September 28, 2015 JcDonny Best bet is to contact OUCH UK....The kind folks there will help muddle thru ya'lls system and they'll also be able to provide you with a HOOF form that your doc has to fill out and submit Quote Link to comment Share on other sites More sharing options...
CHfather Posted September 28, 2015 Share Posted September 28, 2015 Yes, like Denny says: https://ouchuk.org/downloads Also, I'd recommend opening the CB Oxygen Document here -- https://clusterbusters.org/oxygen-information/-- and printing out the items that are linked to in notes #3 and #4 on the last page. #3 is the study from a prominent medical journal about the effectiveness of O2, and #4 is the European guidelines for treatment of CH. About halfway down the page there you will see that O2 is listed as the #1 abortive, along with sumatriptan injections. Consider bringing that info with you to your appointment. Quote Link to comment Share on other sites More sharing options...
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