farm4all Posted March 18, 2018 Share Posted March 18, 2018 Hi everyone, I'm new to this site, and I'm wondering if many or any cluster headache suffers have also been told or been exposed to Lyme's disease? My husband had cluster ha's before getting Lyme's, but where in the past he would have the clusters, then they would stop for a time, he now has residual pain that never leaves. He struggles with sleep every night, cannot look at a computer screen or television, or bright lights. He no longer drives at night. He just started the D3 infusion yesterday, so we are holding out for relief from that. I am wondering if there is a Lyme's component there too. Not that cluster's aren't enough. Thanks. Quote Link to comment Share on other sites More sharing options...
spiny Posted March 19, 2018 Share Posted March 19, 2018 Hi farm4all! Some people start out with short cycles 2 to 4 weeks. Over time, this cycle gets longer, but still leaves completely for several months. Others wind up with headaches every day or week or whatever 'their' schedule is. Sometimes they are 10's and then for a period may be 7's or 5's if that makes sense. What is your husband taking for his CH at this time? Has he had a scan to check for other issues in his head? A scan is always advisable to rule out other stuff. Does he see a Neuro? I would want the 'constant pain' checked out. Especially with the Lyme component. I know of no connection between CH and Lyme. but I don't know everything by a long shot! The D3 Regimen is great for many of us! Is that what you are referring to? It may take two weeks to see a real reduction in pain. ATB Quote Link to comment Share on other sites More sharing options...
fiftyamp Posted March 20, 2018 Share Posted March 20, 2018 I got Lyme about 8 years ago, and it hasn't had any effect on my CHs. Quote Link to comment Share on other sites More sharing options...
ScienceNerd Posted September 22, 2022 Share Posted September 22, 2022 Hi, I've had some problems in the past with computer and TV screen headaches, but my HAs were never constant and they have improved. I'm thinking of trying a large screen TV and I know some must be better than others. If you are now able to watch TV, let me know if you've found a brand or model that works for you. Quote Link to comment Share on other sites More sharing options...
spiny Posted September 25, 2022 Share Posted September 25, 2022 Hi ScienceNerd, For me, it is the refresh rate that matters. The slower the rate, the worse for my head. They now come with some fast rates, so finding one should not be hard. Best of luck! Quote Link to comment Share on other sites More sharing options...
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