Oxy-man Posted January 16, 2019 Share Posted January 16, 2019 Hello everyone, Just wanted to give everyone an update-- Had the beast pretty consistent for 4 weeks (through the holidays unfortunately), prednisone helped with severity and I also tried a testosterone shot about a week ago. For four days I was pretty much headache free except for occasional shadow pain.....then it just returned a couple days ago. Not terrible pain, but I've had to hop back on my oxygen therapy int he morning. The last two bouts I had years ago in college and then before that in HS, I don't remember getting a break and having them return. Is it normal for this to happen? Quote Link to comment Share on other sites More sharing options...
MoxieGirl Posted January 16, 2019 Share Posted January 16, 2019 Moxie Girls first rule of Cluster Headaches: No two people's clusters are the same, and just as soon as you figure yours out, it changes. MG 2 1 Quote Link to comment Share on other sites More sharing options...
fireface Posted January 16, 2019 Share Posted January 16, 2019 I did the prednisone burst at the start of a bad cycle and it killed it within 24 hours. It was a miracle. BUT... It returned 3 weeks later with a vengeance. Stay on it. 1 Quote Link to comment Share on other sites More sharing options...
xxx Posted January 21, 2019 Share Posted January 21, 2019 Hey Oxy-Man, You're likely vitamin D3 deficient and that deficiency is contributing to the frequency, severity and duration of your CH. If you think I'm blowing smoke... see your PCP/GP or neurologist and ask for the lab test of your serum 25(OH)D. This is the first metabolite of vitamin D3 that's used to measure its status. Take along a copy of the anti-inflammatory regimen CH and MH preventative treatment protocol and discus it with your doctor when you ask for this lab test. You can download a copy at the following link. http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 If your lab test results for 25(OH)D come back under the following normal distribution curve for baseline 25(OH)D collected before starting the anti-inflammatory regimen, you might want to give this CH preventative a try. Data for this plot comes from an online survey of 257 CHers taking this regimen. This survey has been running continuously since December of 2011. Take care and please keep us posted. V/R, Batch 1 Quote Link to comment Share on other sites More sharing options...
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