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Tom1956

Atypical Diagnoses

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My diagnosis from a neurologist was chronic paroxysmal hemicrania, atypical. I don't have the red eye or tearing. Indomethacin is somewhat successful in treatment, but headaches still sneak in most days. So I don't have clusters, I have chronic, cluster-type headaches, perhaps 9 days out of 10. Most headaches are fairly short in duration, around 10 minutes. But after them, my brain doesn't work well. Verapamil was tried, unsuccessfully. Mushrooms have no effect, medicinal or psychoactive. probably because I take Effexxor. I also need to take a benzo and trazodone, an SSRI, for sleep. I've tried to taper down on these meds, but it's impossible for me to do so without horrendous side effects. I'm going to try out some 100% oxygen in a can to see if that might help during the attack. Otherwise, 10 years in, I just live with them, on disability pension.

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@Tom1956

welcome to the forum. Sorry to hear that. Was it difficult getting disability pension? 

Kat

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Yes. It took about 2 years and I had to do all the work. The lawyer didn't expect me to win and just took the fee, and the administrative court judge acted like he was doing me a favor. ... Oh I should note that this is in the U.S.

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