Please Help

[maskedmarvel]

Episodic and seem to get them every 2 years or maybe a bit less. Started late September.. Was fairly mild for the first week or so.. Ate mushroom near the start when I wasn't sure if it was the real deal or not. .. and then ate them on October 6th and 11th.. I thought it was maybe over a few times.. Had a slap back(?) On the 13th and only a couple very mild ones about 24 hrs after that.. Felt like I was in the clear yesterday. Then woke up with one at around 1:30am that seemed to escalate slowly.. It honestly still hasn't really left now 4 hours later. I have an appt to see Dr Marel Gawel from the list here but not until Monday.. I did try some fascial release therapy yesterday that seemed to really help at the time (and seemed to help last cycle) but maybe there was some sort of rebound effect? Also been experimenting with Wim Hof breathing when I get an attack.. Seemed to help sometimes but maybe that had something to do with this one lasting so long? Its just been more lingering for the last hour or so... Going to try and see if Dr will talk to me please sooner since Monday seems like an eternity from now. I'm scared. Most of them this time have been fairly mild.

 

Last cycle lasted less than 20 days.. Previous ones (IIRC) before I found this site would last a month. 

[xxx]

Hey MM,

I know what you've been going through and the good news is it doesn't need to be that way.  You're very likely vitamin D3 deficient.  When you see your doctor on Monday ask for labs of your serum 25-Hydroxy Vitamin D3, a.k.a., 25(OH)D3, calcium and PTH.  The odds are very high your 25(OH)D3 will come back < 40 ng/mL.  As CHers we need to maintain our 25(OH)D3 between 80 ng/mL and 100 ng/mL.  We do this by taking at least 10,000 IU/day vitamin D3 plus the vitamin D3 cofactors.

You can pull down a copy of the published treatment protocol at the following link.  Readers of my webpage at vitamin D3 wiki have downloaded over 60,000 copies of this CH and MH preventative treatment protocol since I posted it on 21 Jan 2017.  It works.:

http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708

The following photo illustrates the supplements by brand and dose that I take and suggest to other CHers and Migraineurs to prevent their headaches. 

Take care and please keep us posted.

V/R, Batch

[maskedmarvel]

Been taking about 3-5000 IU per day for most of this year.. Started taking 10,000 IU after reading this. Its been over 72 hours now and still feeling good. Talked to Dr Gawel.. The call lasted about 10min.. Basically just telling me what pharmaceutical options for busting exist. He asked me where I got my mushrooms lol... I asked when I can know the cycle is over and he just said when the shadows are gone. I can be a bit of a hypochondriac and it seemed like I was getting shadows for weeks after the last attack last time... Last episode lasted about 3 weeks and I also didn't go 72hours without getting one unless it was the end last time.. Just wondering if you might be able to offer any reassurance or advice regarding how I can know its over.. I took mushrooms after the last one and didn't seem to get a slap back.. I have had neck tightness through out my life and during an attack i get a big knot in my neck.. I felt my neck getting tight this morning and got really scared, but I distracted myself with something on the internet and it went away without an attack. I forgot to ask about the bloodwork 

Edited October 19, 2020 by maskedmarvel

[spiny]

How are you feeling now? It has been several days since your last bust now and if all is sill quiet, I might feel it was over. You should not get slapbacks after every bust. That part gets easier the more you bust. 

You can call to get your blood work results if you want the D levels. Get a number from them, not 'Oh, it's fine!' That can mean it is 30 and that is BAD low. but, within the current guidelines. Get the number. You want to be above 80.