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Clusters hit8 months earlier then normal for me, I moved from the west coast to the east coast for this year to work on a home I own.


mark m
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Not sure if that has to do with the clusters coming early but the new VA Neurologist put me on prednisone and verapamil and knocked the clusters down to shadows only within a day. I am slowly weening off the prednisone He started it with 10 pills then 9 and 8 and so on.  I am guessing it is so the verapamil builds up in my system? The prednisone are 10MG each and the verapamil are 240 mg. Side effects are messed up sleeping stomach issues and I feel like eating all the time. Also I am kind of tired most of the day and  sometimes I feel in general yucky  just not right but much better then pain.  I will report again after I get done with the verapamil. I am not sure if ths would have worked if I got the medications much later though. I started getting clusters and within 7 days was on the prednisone and verapamil.

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Yep, prednisone and verap often prescribed together with the intent of the pred kicking in immediately, while the verap more gradually gains effectiveness.

Personally I used to find a pred burst/taper could knock even a high cycle down - but just temporarily while at the high dose (which would be dangerous to stay on for a more sustained amount of time - I know, I pulled that very dumb stunt 33 years ago and am still paying for it).

 

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