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I keep them in the car, the office and any other place I might be going to. I even take them on vacation with me. I figure they do enough work for me they deserve a little vacation too.

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Thank you!

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Again, thank you all! Some updates — O2 concentrators, while not ideal, are DEFINITELY aborting my headaches. Used 7 times with 100% success rate after ~10-15mins of use. Half of these were headaches I woke up to mid-sleep, not onsets. Haven’t used for a “monster attack” yet, just standard CHs. Intensity may matter considering sumatriptan nasal spray failed for my worst “monster.” (I have 3mg injectables in place of nasal spray, now, but have not used them). To repeat a common CH phrase: “best thing since sliced bread.” Really. I’m sure this is common, but now that I have a taste of O2 and sumatriptan, my tolerance of untreated attacks has gone way, way down. Haven’t had to use the 100%-O2 canisters yet but will be taking your advice and asking for larger canisters nonetheless.

I appreciate i am very late to this conversation but I just want to drop in that red bull is now a key part of my armoury the moment the dreaded knock kicks in. I will post a detailed synoptic of my experience in coming days but for anyone suffering right now, seriously consider taurine. To me it's a life saver but I do have to say we are all different and some of us have intolerances and other complications so do be conscious of your personal needs. But if you don't have an issue with caffeine and taurine give it a go. Pour on lots of ice and gulp it freezing cold so it hits the back of your throat which is the nearest you can get to your pituitary gland without poking a hole in yourself. The cold soothes the brain and the taurine does some magic and at least dulls the agony. X

I was a management consultant for many years. As I said to a former colleague the other day, ChatGPT is a better consultant than I ever was -- in less than a minute, and for free. I don't have grandchildren, but Chat is becoming like my grandkid, where I keep saying to others, "You'll never believe what Chat did today! Isn't this fantastic!?!" Still a bit of a jokester, though. I had it colorize an old black-and-white photo of my father the other day. Everything looked right, except that it was someone else's face! I pointed this out, and Chat said "Oh, gosh, you are right. Let's try that again." It did. A different face, still not my father's.

I'm loving my AI tools for web dev. My image assets, logo's and scripts are better than ever. You have to move with the tools because everybody else is...

Double barrel meow meows!!! All is rt with the world now

Sod off @jon019your mad as a hatter

....well, it's a given Shaun is quite batty, but as for myself...i am perfectly normal since the transplant...

@Craigoonly speaking the true my friend, we have to be mad to put up with this

Welcome, sorry you had to find us but glad you found CB. I had a chuckle at Shaun’s comment but I would agree we are a lovely but mad bunch. I am sure you’ll get the support you need here. I’d be another of the replies to encourage you to investigate the vitamin D3 anti-inflammatory regimen; has worked beautifully for me with eCH.

Hi all. I saw a post recently from a fellow CH warrior that designed and built a CH tracker app. Heres the link: https://clusterheadachetracker.com I believe it may be in beta test mode but love the ingenuity and skill in our amazing community.

Just spotted: A quick response Avatar update, with DOUBLE BARREL KITTIES - both shoulders! All is suddenly sooo doubly right in the avatar world, proof that AI can indeed be used for good.

Very late to the festivities here, but THE SHOULDER KITTY HAS CURRENTLY GONE MISSING FROM THE ACTUAL AVATAR, and needs to be restored there ASAP, right @BoscoPiko??!!

Of course! I think we can all agree that any and all help is appreciated! If there's anything I can do or say to help even one person with clusters, I'll certainly do what I can!

...ha!...plenty funny padre! you so far ahead of me i can't see your dust...i just throw some once in a while...

jon019 has about a fifth as many posts as I do here -- and the combined value of his posts is at least five times mine! i would advocate for proper tanks, including a large one -- your oxygen supplier is treating you like most of its other customers (COPD, etc.), who get small tanks for outside and a concentrator for inside, but they are, i am sure, legally required to give you what you need for ch. for some people a concentrator does "work," in that an attack is stopped. perhaps because it's first times using, and because you are smaller, you will get okay results from the concentrator, particularly if you combine it with some caffeine. but for reasons jon' gave, it's highly likely that you would always get better results from the tank. if you don't outrace the O2 supply at 15lpm, the "ClusterO2 Kit" mask might not make much of a difference for you, as long as you block any leakages from the nonrebreather.

I get what you mean. When you’re dealing with health issues or just trying to build a better routine, it’s crazy how small changes can completely shift the way you feel.

...ok, speaking for myself, not the "good father", but...1) cost, they lease it to you at ridiculous price, and its an ongoing scam 2) it aint pure O2, something like maybe 85-90+%, we desperately need PURE O2 3) warm up time!? golly that's a killer...every minute you delay oxygen reduces the effectiveness hugely...if it even works at all after any delay. 3) flow rate!?...if it aint enough to keep the bag filled for next breath it's nearly useless...to get more than 10 lpm ya need TWO of them linked....sheesh, try paying/travelling with THAT! 4) speaking of travel, i went EVERYWHERE with e tanks, including a job for 30+ yrs...ya gonna have severe limits with a concentrator. m60 for home, e for travel and backup. 5) they run hot...over heating is a CH symptom, why add it to your room? 6) can ya tell how i feel? it saddens me that some clusterheads have no option thru insurance or an ignorant/greedyO2 shop. if its all ya can get...God bless, and i hope it works for you...it does for some. the likely failure sadly also convinces some WRONGLY to claim the WORST comment a clusterhead can make w/o ABSOLUTE certainty..."oxygen doesn't work for me!" saved my sanity, perhaps life...starting in 1985... ...as for verapamil...i used successfully for 7 yrs...only stopping when i dialed in the oxygen and energy drink and a form of the vit D regimen. nothing less than480 mg/dy of immediate release was effective...over the yrs it seems to be the reported sweet spot for many clusterheads. in high cycle i went to 1000+. as chF said...80 is pointless... j

Thank you for all this. Unfortunately the CH O2 kit is out of stock On the supplier — they know it’s for CH - albeit I don’t know that it means they’re experienced with supporting it - though I was given a few tanks along with the concentrators. I’ll get in touch to see how often I’m allowed to have extra(s) delivered. I had a feeling the concentrators were divisive; I’m a small person and found while testing that I didn’t out-inhale the 15L/m offered by simultaneous usage. (I’m supposed to combine both to hit the high flow target). Out of curiosity, what do you feel are the largest drawbacks of the concentrator, aside from “warm-up” time and flow rate? Won’t know until I’m hit with an attack, but my hope is concentrators sufficient. If it works, it works. Maybe it’s a little optimistic. The regulator I was given for the tanks is 15L/m. Again, I don’t think I can out- breathe that without serious hyperventilation. small correction on the verapamil — I start 80mg/day (40mg twice) and then bump to 160mg/day. thank you again for guidance!

40mg/day is a very very very low dose. So is 80. As you say, you never know, but the likelihood of this helping you seems to me to be very close to zero.