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Hey sir, A bit late to the party on this response, but I wanted to follow up. First, thank you for your service! I spent time in Kyrgyzstan, UAE, Kuwait and Iraq throughout my 11 years. Worked nukes when I was state side up in Montana. Oddly enough, I was rated 50% but there were a few things going on that were all connected. Overall, it was a culmination of both the clusters and the insomnia(which i started having when I forward deployed to Iraq). I hope you don't mind me asking, (feel free to message me privately as well), but was your 30% for the headaches alone, or is that 30% WITH your PTSD as well?... Because if so, that seems exceptionally low.

The range for normal depends on the country and the lab. Quest offers a range of 30-100ng/mL however the specific regimen you may read about here and on other platforms for CH prophylaxis targets a vitamin D blood level of 80-100ng/mL for episodic, the upper limit for Quests range for normal and slightly above that for chronic CH. Enjoy the watch and hopefully a pain free holidays ahead.

One kitty is for wusses.

....not aware if high or low estrogen is a CH trigger....my PERSONAL belief is that changes to routine or body chemistry CAN be. mayhaps a discussion with physician to ramp up the estrogen a bit more slowly. i also note that an amazingly high number of medication side effect warnings suggest the exact reason for taking the med (headache for example) as a potential side effect. a bit frightening until you consider you affecting the system or chemistry that is causing you problem. sorry if thats a little "what?...hard for me to explain things these days... best jon

Update. 3 days ago I started a small amount of topical estrogen replacement and today have had a CH attack. It was a minor one but definitely the kind of thing I would experience at the start of a cycle. Yet Google tells me the opposite should be true, that CH are more likely with low estrogen levels ?????

Many thanks!!!

Hola Luis, solo hablo un poco de español pero quiero ayudarte. Para comencar es muy importante de seguir la recomendacion del manuel. Se recomienda tomar todos los suplementos como se describe en la guía de inicio D3 Quick Start Guide - BATCH - Sept 2023.pdf

Hola yo tomo vitamina d3 como suplemento. Con eso es suficiente? Gracias!

What country are you based in please?

Appreciate your feedback and thank-you for your kind words snafu!

i get the thought behind this and commend you for your efforts with taking over the reigns with the vitamin d3 protocol and education about it. But this AI slop is garbage and unwatchable,imho.

Hi all. Here is a 10 minute explainer video utilizing AI to generate some pixar characters of myself and Pete Batcheller to offer an introduction and "flight briefing" of the Vitamin D Regimen, a patient led preventative treatment protocol for Cluster Headache. For more information on the regimen I know there is plenty on information in the forums here and the guides, interviews and other Vitamin D videos can be found over at www.vitamindregimen.com

Bob, Gary, Matt and Anna with the TAC committee at AHS (American Headache Society)

https://youtu.be/AtoxkK7MeKc?si=vOCKVT0zIXsauhF8

I just wanted to give an update. Bob and 3 of us on the board attended. We had tons of good meetings- just the amount of respect I saw regarding Clusterbusters was huge - from pharma to headache specialists...we have an amazing reputation. Got to see and hear Dr. Schindler, Dr. Burish, Dr. Nahas, and others present. Hopefully some more promising research coming down the pipeline!

Hi all, Didn’t want to post until I had at least 2 years no head aches. Found success with the below. Used to get headaches 2-3 times per year, lasting 7-14 days 2 attacks per day for 4 years. triggers WERE- red wine, excess sauna (dehydration) and changing time zones ie when I came home from over seas. 1) Initially micro dosed psilocybin daily then took 1grm every 1-3 months as a slightly bigger dose. Did this for a year. Helped the severity and duration. I did stop this after 1 year. 2) PROPER hydration (not just drinking more water). Added mineral supplementation for actual water absorption. *stay away from tap water*. Diatomaceous earth 2x day + Celtic sea salt (1 pinch with every single glass of water) + Irish Sea moss for minerals. We don’t get these trace minerals in our foods/ soils and definitely not our water supply any more. Plenty of coconut water too. Once consistent with this I found a massive difference. I truely believe I was chronically dehydrated. 3) Fascial manoeuvres to stretch and hydrate bodies fascia around head/ neck/ face and jaw. Check “Human garage” on YouTube or online they have some amazing routines for head aches and general wellbeing. All for free. May not work for all but for a natural, low cost and low effort routine - give it a crack !!! Wishing everyone all the very best !

Support Groups this Week Needing support? We have a group for you! TUESDAY: Do you live in California? Join Tuesday 7pm PT - message Clusterbusters or anna@clusterbusters.org for an invite link WEDNESDAY: Care Partners! Join Julia at 7pm ET - Register here: https://us06web.zoom.us/meeting/register/8AQ75ckZQn-ddzoYfreZbQ 8pm ET join Joe Stone - sign up here for the 2nd Wednesday of the month meeting: https://clusterbusters.org/get-support/ THURSDAY: Do you live in Texas? Join the Texas group by emailing gary@clusterbusters.org for an invite- it meets at 7:30 CT SUNDAY: Do you live in New Zealand or Australia? New Zealand: 6pm Australia AEDT: 4pm Australia AEST: 3pm Join Craig by registering here: https://us06web.zoom.us/meeting/register/jBEVM84QRs-RP6lgNdFCmw *You do not have to live in the region of the group to join.

Thank you

This post might be helpful as you consider welding O2. Notes about welding O2 - ClusterBuster Files - ClusterBusters

Thank you very much Dallas I have been thinking about looking into it, but that is the little push i needed. Thank you so much!!

Welcome to the community @danawright65, but sorry you had the need to join us! Unfortunately, when you have to deal with getting a (correct) script from a doc, and then deal with O2 suppliers, it can be difficult!!! My solution in 2007 was the procurement of a welding ox setup.....I paid $300 for a large ( 4 ft tall by 9 in diameter) cylinder, $50 for a welding ox regulator, and $25 for a clusterO2 mask from our sister site clusterheadache dot com. And I pay $23 for a refill/exchange. Now for the drawbacks.....cylinders this size are really heavy and difficult to move around, and you can't let the welding supplier know that you intend to breathe it. Same O2....the only difference is that med ox tanks go thru a vacuum process prior to refill. Dallas Denny

Hi everyone — really glad I found this group. I just started a new cycle 9 days ago and the attacks have been way more frequent and intense than my usual pattern. I’m on verapamil, and I restarted Emgality when the cycle began, but I’m now 8 days out from the injection and still waiting for it to kick in. My biggest issue has been oxygen. It should’ve been my lifesaver, but getting it has been a nightmare. My neurologist left the practice, the new one hasn’t responded in days, and my primary care isn’t helping either. I’ve been calling everywhere and still can’t get a script. It feels like no one understands the urgency — they hear “headache” and think it’s no big deal. What do you all do when you need O2 fast but the system drags its feet? Any advice would mean a lot.

That’s interesting I will watch that. I did test my vitamin levels during a cycle to see if I was deficient in anything but everything was at normal levels.

Thank you Jeeb! Holy cow, yes they both came with clob hoppers for feet.. .....enormous! I'm pretty sure we just brought to future whales into our home They have filled our house with all the things that have been missing (and then some)!

Whoa, Blonde BEAUTIES , and so good for them to have been able to remain together like this!! At least one of them is clearly snuggly as hell, they're both ultra squeezable, and judging by paw sizes they'll both be a couple of HONKERS. If there is anything guaranteed to lift everyone's spirits, this is it. Hey the bad times have rolled enough, now let the good times rage! CONGRATS!!!!!!!