Jump to content

All Activity

This stream auto-updates

  1. Today
  2. Hey guys, First off, many thinks to Denny for all of his great work on this. I love the lyrics (I've been a "lyrics guy" all of my long life). I especially how the lyrics take that well written turn at the end. xBoss thank you for your work on this. Fantastic. As to an album, this may be something that we could build on over time. I've tried putting a Clusterbusters Band together for years. It's been a dream project of mine for,,,,,25 years? It's just always been a difficult thing to do, getting people together. I've tried getting a group together at our conferences. We also did have one very good musician put together an album (wrote all the lyrics and music) and recorded it and we shared it about. This was many years ago. Unfortunately, as happens in our community, he ended up taking his own life shortly after making the recordings. The whole story was devastating to me as we had become very close working with him and his caregiver for several years prior to all of this. Our healthcare system let him down. He also had French citizenship and had to fly back and forth to France to get "free" healthcare. Traveling 5000 miles to see your doctor is not free healthcare but cheaper than our system. Anyway, the recordings were difficult for me to even listen to. None of the songs were as personal as this version you've pulled together. It was more of a version to play while busting to help everyone "feel good" for set and setting. I had also put together a 6 disc set of songs to use during a busting session. Nothing original, just songs I thought would work well during the stages of a 4-5 hour busting session. I just put them on CDs and passed out sets to a lot of friends. So, you can see that music is my safe place. I've noted in my will that my grandson gets my vinyl collection. I've been collecting since 1966-67. Maybe we eventually have a Lyrics contest? Maybe Denny can write an album of lyrics, LOL. So, can we please move forward with this? I don't write lyrics or music and I'm not up on how to use AI for something like this. Here are some of my thoughts. 1. We would need to make sure that we follow copyright laws. 2. I do have some contacts in the music industry. 3. I've played and done some work on CHATgpt. I had one of the paid levels for a time but cancelled the subscription (more of a time issue than a $ issue.) 4. I believe that there may be a better service for this than CHATgpt. Maybe Claude? 5. I am willing to pay for a level of service that would be best to use for this project with whichever program you guys decide is the best. 6. Also, whatever other expenses end up being needed. 7. We have some events coming up that I'd love to introduce this work to our community. 8. If we (you) end up wanting to distribute this, in some way, to the community and our supporters and even "the world" it may end up being quite time consuming for someone. That would be fantastic but we'd possibly need to compensate someone for their time and effort. We have been working on opening up a Clusterbusters store for a long time but it's a lot of work for a non-profit and requires a lot of additional accounting costs. It's possible to add this to a package that we may want to either give away as a special welcome gift to new members, or give away as a prize for our fundraising efforts. I would love to feature this and promote it as much as possible. There are a lot of possibilities and I'd love to hear your ideas and would not want to do anything that would be disrespectful to you guys or the community or a bad look for Clusterbusters. So, I'd take all of your thoughts on moving forward and respect your desires, start to finish. 9. So, if any of you say, "I don't like that idea" then we don't do that. 10. Let me know how I can help. Expenses? I've got it. Contacts, I'm on it. Promotion, CB's got it. Bob Wold
  3. dhuddly I have never been tested for anything like this that I know of. Might be something to look into
  4. Yesterday
  5. @FunTimes Do you by chance happen to be ADHD or diagnosed with ADD? I am finding out more as I read and research that a ton of the researches we like to use in CH space don't account for the differences in the chemical makeup of our brains for ADHD or ADD so busting might not work for you like it does others because the receptors are different than in neuro-typical folks. I also think that we see mixed results on treatments due to these types of differences along with other health conditions we have that throw our chemistry off.
  6. Nice work guys.
  7. Awesome to see ya back spiny. hope all is well with you and your wisdom is always needed around here.
  8. Jimmy, I look at it as better me that anyone else in my family so I am kind of use to things they way they are now. I can not say that I have tried everything but I do stay up to date as best I can on this site and am not afraid to try anything. I have done several clinical trials to help the people that are much smarter that I am to figure out what may or may not work for future generations. I also try a lot of things that are more like myself on this site and have real life experience with what works for them. Things are much better now that I have a room full of tools to fight this and knowing that what works today may not work tomorrow I keep a little bit of everything on hand. I am glad your cycle has come to the end and hope that it stays away for a long time. Go enjoy the pain free time and hope you never need to visit this site again!
  9. ...a few thoughts.... best, jon
  10. Last week
  11. Hi Friends, I'm 53, my CH began at 37. I get them about every 12-18 months for about 4-8 weeks. Maxalt, Verapamil, and Oxygen are my top 3 "helpers". I will though explore busting and anything else that can help prevent, reduce, or extinguish the pain. I'm thinking about the stretch of time between the attack. I'm basically healthy. No smoking, drinking, fairly decent diet. I'm thinking about what I can do to gear my body (and mind) up so that if a cycle comes, I'm ready for it and maybe I'm so "fit" that the severity and length of the cycle gets reduced. Should I take vitamin D regimen throughout the year? Bust every 6 months just to keep the brain peaceful? Lift weight like a madman? Breathe from an oxygen tank or get into deep breathing exercises? what can I do to prevent the cycle or if I I can't prevent it, what can I do to stockpile and prepare when the battle comes? Is sounds like people who bust do it every few months as a lifestyle thing that also either prevents the CH cycle or it makes it so that when the cycle comes, it's weakened dramatically? My primary doctor (not headache doctor) told me that the faster you get to the oxygen when a cycle starts, the better chance you have of destroying the cycle. Maybe just pound oxygen for a few days straight and perhaps that can kill the cycle before it can "take off"? we are all different but I'd love to hear more from the people who have either found a way to cure themselves or make it 1000% easier and better to deal with. is anyone in LA and would anyone be open to phone call about all of this? my thinking is that if I throw enough things at CH and try as many combinations or remedies as possible, someone will break loose and big time progress can be made. has anyone put together an entire list of EVERY SINGLE remedy or option we have to throw at this condition? I'd love to see that list and hear what other people think about it. also, if we use drugs like lexapro or Vyvanse or any type of drug for ADHD, depression, etc, could that help with the CH? how about cold plunge therapy. it seems cold helps with CH. or the caveman diet? there has to be a combination of things that can make a big difference. who is the most successful person to ever combat CH? I'd like to read their book. thank you all and I truly believe by sharing information and persevering, we can help each other end this ailment FOREVER.
  12. Thank Goodness Mike you are pain free! I will pray it never ends and the only time you come back to this site is to encourage others and share your success stories. That day is coming!
  13. Hi Bejeeber and Fun Times, thank you both so much for your help. Beejeber: I'm so happy you are in a long remission period. I will pray that it will be a permanent period. I have so many questions about the busting and everything regarding CH. The written communications are awesome but I would lone day love to talk to people or even meet them in person. I have to find a way to do this because I feel like there is so much more helpful information and guidance I could gather on a 5 minute call. Fun Times: I heart is broken to hear that you are enduring this with frequency. Stupid question on my part but have your tried everything? I feel like there has to be some sort of formula or combination out there that can either stop or tremendously reduce the CH. I wonder if we keep digging deep enough and keep the communications and cooperation super high, there can be a significant nudge forward. Right now I'm post cycle so I'm on my knees in gratitude because of the relief I've had the last week. I'm already thinking ahead to make I can do to prepare for the next storm. That is my next mission, to find out what I can do to get ready and be ready for the next storm. I would give every dollar and possession I have for your attacks to stop Fun Times. It would be my joy in life to know you never has so much as a headache again, ever.
  14. @spiny It was 92°at 12:15 in the shade on the John Deere thermometer on my porch!!! Just looked and it's now 95!!! Got a bad feeling this Okie summer is gonna be all about setting new record high temps!! You know you can always help out here with your wise words my friend !!
  15. I am up and waiting for rain. My life has completely changed guys! It is nice to see ALL of you. Perhaps I can help a bit?
  16. Welcome Mike and congrats on ending your cycle and getting O2 to make the cycle easier!!! I must tell you though that you're carrying your oxygen safety concerns to the extreme an totally unnecessary! O2 is NOT flammable!! It's an oxidizer, and will enhance an existing fire, making it burn hotter and longer....if it's in your bedroom away from a fire source you'll be good...and if you're a smoker, wait a few after aborting before lighting up!! Or, just keep doing what you are if it makes ya comfortable! DD
  17. Hi all, I wrote on this board for the first time after many years of just reading, during my most recent cycle, which started in March of 2026. I remember the day distinctly because it was Daylight Savings on Sunday, March 8, 2026. I quit drinking beer for the duration of the cycle a week later as the attacks intensified. April was the cruellest month. (Hat tip to T.S. Eliot.) Finally, in the first week of May, they began to taper off slowly. By the second full week of May, it was over. It was about nine weeks total, which is kind of average for me. This was the first time I had oxygen and I have to say, it was a game changer. Oxygen aborted some attacks completely, lessened the intensity of others, and gave me an alternative to medications. There were a couple of times in this cycle where I had an attack a short distance from home, so instead of taking a pill, I just rushed home and used oxygen and it ended the attacks. If you suffer from cluster headaches and you're not using oxygen, you should try it. Go to a doctor and get a prescription for medical oxygen. It is much easier to use than I thought it was. Lots of places will even deliver it to you. You have to be careful with oxygen, obviously, it is flammable. I did not even turn on my gas stove once for the entire time I had a tank in my home. I would microwave stuff, get takeout, or just make a sandwich or something. It was totally worth it. Anyway, I just wanted to drop a line and say thank you and that my most recent cycle is over. If you are in a cycle now, hang in there. It will end eventually. I hope it is soon. - Mike
  18. Well there she is @spiny!!! Nice to see ya girl!!
  19. Ahhhh, the return of Spiny!
  20. Hey all! The stabbie critter is perfect Jon! For what it's worth guys, I am happy to be among friends! I moved south about two years ago. Yes, I've been told I did that wrong too! I want no more snow. So, Anatoly and I are living it up! It is great to see familiar faces!
  21. @xBoss....Rip on brother!! I sent the link to our fearless leader BobW yesterday evening! His response was "Holy crap, we need to talk about this!!" Lol! Ima relinquish the completion of this project to you brother...."this mission, if you choose to take it....".....lmao!! I was working on the most advanced airborne computer system the Marine Corp had at the time in 66.....had a final top secret security clearance and cudn't talk about it for 10 years after I was discharged!! But this stuff in today's world boggles my feeble old mind!! DD
  22. Ai is insane. I have been coding websites and stuff since 1986 and I cannot believe the tech. It gets a bad rep but wow brother. I can rip this song 100 ways with it. I love metal and disturbed and I'm hoping to get a good one. So far just using the free model, the 20 a month one is much better. It's fun to play with!
  23. @xBoss well dude, as far as I'm concerned, you nailed it!!! I'm not a "metal" kinda guy in my old age but I think it's "out fecking standing" as my DI would say in bootcamp!!!! I would still love to hear it done to a disturbed version of Sound of Silence....the live late night TV show recording, not the studio version.....but this is really good imo!!
  24. @xBoss.....I just listened to the 1st verse and I freaking love it so far dude!!! Right on!!!
  25. I can link to it. I have many versions, still not happy with the results yet... https://suno.com/song/624b389d-4b0d-4fe9-b875-356c67964ad0
  26. @xBoss hmmmmm....are you able to upload them here?
  27. I did rip a couple in the "style" of that disturbed song, not too bad.
  28. Hey @xBoss!! Thanks for the input bud! Unfortunately, ive explored that avenue of thought unsuccessfully! Downloaded ChatGPT and played with it for awhile but "no joy"! The problem is copyright and artist protection prevents the bot from creating a song using original lyrics against a copyrighted tune so it was a deadend!! I'd sure love being able to get that front guy from disturbed to do me a solid and sing it and the group play it but that ain't gonna happen so I'm back to the drawing board for now!!
  1. Load more activity
×
×
  • Create New...