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Showing content with the highest reputation on 08/23/2018 in all areas

  1. I so wish I lived near Connecticut. And I don't normally wish I lived anywhere in America. :/ Gail, you might be better off starting a new thread in the Theory and Implementation section, people will have a better chance of seeing your request there. If you live in the UK, PM me and I'll see if I can help in one way or another. MG
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  2. Depending what country you are from the answer varies substantially. In the UK you would have to resort to "dark-net marketplaces" which i presume moderators would prefer i didn't expand on in public, as mushrooms were made illegal here back in 2005. In holland, just pop to your local smart-shop. There are routes however, a friend has been prescribed both MDMA and Psilocybin by a psychiatrist for micro-dosing to help in depression (mdma) and migraine (Psilocybin) - all supposedly legally - no idea how though.
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  3. I agree with all what has been said above. Diagnosis can be complicated and it can take a long time before getting there. I have experienced it myself. As a lifelong "hardcore" migraine patient, I started to experience something that looks like cluster headaches 8 years ago during my migraine attacks. Around 1 hours of a sudden increase in very sharp excruciating pain around temple and eye together with autonomic symptoms and sudden restlessness. I found it all very weird as it was clearly very different from the usual migraine attacks. For a long time i thought it was caused by taking triptans but these bouts kept coming back in a vague "cluster like" fashion. I did not trust the entire thing and finally made an appointment in the headache department of the university hospital here. After talking for 2 hours with the doctor and answering all kind of questions, he diagnosed me with cluster on top of my migraine and prescribed me oxygen. And thanks the man ever did that because oxygen is saving my life currently !! My GP doctor still doubting the diagnosis... for him it is migraine and he do not believe migraine attacks can generate cluster events. So you see even doctors sometimes don't agree with each other. In July this year I had my second appointment in the hospital. Now I did my homework ... detailed headache diary, detailed reports of a few of these headache with detailed description of every symptom that appears every 10 minutes (that was hard to do during such a painful attack !) and after going trough all these materials and discussing again with their colleagues, the CH diagnosis was again confirmed. When my GP saw the diagnosis confirmation, he says he is still not convinced. They also give me verapamil but after 5 weeks of taking this, with their proposed doses increases, it did not do anything so I stopped it. I ask my GP if I should go for a second opinion in another headache clinic but he told me it will not make much sens as they will probably confirm the same. And as long as the oxygen does its work, why bother ? In the meantime I have done a lot of research myself. Maybe they were confused with migraine with cranial autonomic symptoms which can be very tricky to distinguish from CH. Maybe I need more accurate data for my diagnosis. Recently I was reading on clusterheadaches.com that in rare occasions "migraine and CH can blend together in one" referring to a few studies that indeed seem to confirm my case. I also have the impression that the last two years, the migraine (which I have already since age 8) is getting weaker and the CH character of my migraine attacks is becoming more and more pronounced. So it is constantly evolving. I have been very bad since May but now it seems to have stopped since 3 weeks. I started to take the vitamin D regime since 1 August so maybe that contributes, or it is just the end of a cycle. So as you see, it can take time and patience to come to a diagnosis and maybe it will never be entire clear especially if you are a borderline case. Best what I can advise you is to collect as much as possible accurate data. Write down everything what is happening, all the symptoms with their start and ending times etc... Also film yourself during an attack. Your behavior can give a lot of info to the doctor. All the best ! siegfried
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  4. I use the 5hr energy drinks and keep them in the car, at work, at home and in my pocket. Small easy to carry around and they do the trick for me. I do not keep them cold and drink them at room temp. The first feeling I get I can sometimes drink one and push the cluster off totally. If you used 1/4th of your tank it sounds like you have a E size tank. I would ask for about 4 more of them and at least 2 M or M60 size tanks. My oxygen company is not the best at keeping track of how many tanks I have or they just dont care so if I order 4 tanks and only have 3 to return they still give me the 4 tanks. this is a good way to build up the stock pile you will need when the shit hits the fan!
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  5. That is great!! I am setting up to have a big cook out this weekend, My son told me he has my back if I can not make it through the day and get hit with a CH. The reason I and I would think most people visit this site is for just this.. A little reassurance goes a long way Thanks
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